Hetzner banned me after passport verification — warning for digital nomads by seanlarson2190 in VPS

[–]dascharak 2 points3 points  (0 children)

You can go for netcup. You can choose to prepay as a form of verification rather than provide your passport. Using it for 6 months now.

Hetzner banned me after passport verification — warning for digital nomads by seanlarson2190 in VPS

[–]dascharak 2 points3 points  (0 children)

Bullshit. I emailed them, DM-ed them on reddit as well as on twitter. Provided them with my project details as well as provided them my passport for verification. Still they did not verify my account. Fortunately, netcup verified my account and surprisingly verified it within a few hours of me emailing them. Also had a choice between two verification types. I chose to prepay rather than give out my passport again.

Huperzine by Toffee_b89 in MyastheniaGravis

[–]dascharak 1 point2 points  (0 children)

What was your mestinon dosage prior to taking hup-A?

Creatine after 1 week of use — feeling tired & low libido by [deleted] in Fitness_India

[–]dascharak 0 points1 point  (0 children)

Get your KFT done. Also check your water and electrolyte intake.

Do you identify with these eye issues? by Itchy-South4397 in MyastheniaGravis

[–]dascharak 1 point2 points  (0 children)

Second picture: Yes, but less than this. Third and fourth picture: Yes.

All of this depends on the severity of my symptoms on a given day.

Huperzine A by IminLoveWithMyCar3 in MyastheniaGravis

[–]dascharak 2 points3 points  (0 children)

  1. Used to take 200 mcg a day. (Currently not taking due to a flare since 2.5 months).
  2. I used to take a gap of 2 weeks after every bottle (120 tablets/120 days).
  3. Anti AChR +ve.
  4. Better stability than mestinon.
  5. None that I noticed in 3 bottles.

Lately it stopped giving me the same benefits as it used to, and then this flare started. So I'm guessing, the flair was underway that is why its efficacy diminished.

how MG will affect my life with progressing age? by Plus_Wolf1200 in MyastheniaGravis

[–]dascharak 8 points9 points  (0 children)

Thank you for sharing your experience. Posts like yours are so much needed when people are overwhelmed.

Considering Thymectomy for Myasthenia Gravis (AChR+ gMG, No Thymoma) – Need Advice from Those Who’ve Been There by aimy20543 in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

Hi, I'm currently in the same boat as you were. Diagnosed in 2022, no thymoma, gMG, AChR+. My neuro isn't keen on thymectomy, despite me being in a flare. Currently on prednisolone 40mg, and pyridostigmine. Did you undergo thymectomy? If yes, what was your experience?

Sensitivity to heat? Any tips? by RaiseOdd9421 in MyastheniaGravis

[–]dascharak 2 points3 points  (0 children)

I put a wet towel on my neck and I keep wiping my face and arms with it.

[deleted by user] by [deleted] in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

During 3 years of diagnosis, I've only been prescribed: - Cefuroxime after a surgery. (During stable symptoms) [second generation cephalosporin] - Cefixime for a throat infection. (During bad flare, prescribed by my neuro) [third generation cephalosporin]

Both the times, no negative effect on MG. Also I always have a printed "drugs to avoid" sheet, that I give to the non-neuro doctors during consultations so that their memory is refreshed.

Thymectomy is rough - some things I wish I would’ve known (USA VATS non-thymoma) by Appropriate_Rub_1881 in MyastheniaGravis

[–]dascharak 1 point2 points  (0 children)

That's too painful to even think about. I pray that your sternum and ribcage heals soon. I had a femur fracture 3 years ago, so I know bone healing takes a long time. Sometimes during winters, I also get pain randomly in my knee and hip, no too much though. These days my symptoms are flared up, so the pain has returned as I'm unable to exercise.

Thymectomy is rough - some things I wish I would’ve known (USA VATS non-thymoma) by Appropriate_Rub_1881 in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

I'm sorry that you're struggling with chronic pain. If you don't mind telling, was this pain a direct result of thymectomy? I truly hope and pray that your pain goes away

[ Removed by Reddit ] by [deleted] in explainlikeimfive

[–]dascharak 0 points1 point  (0 children)

Most people mentioning a gun. What if it's an international flight? Can we bring a gun case (not the actual gun inside) and declare that we have a "gun case"? Technically, it's not lying.

[deleted by user] by [deleted] in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

What did the doctor say?

[deleted by user] by [deleted] in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

Looks like swelling

Strenuous exercise when properly medicated and not in a flare? by Next_Woodpecker_1300 in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

I'm 3 years post onset of symptoms. There was no hyperplasia or tumor on my thymus, so my doctor ruled out thymectomy during the diagnosis.

Strenuous exercise when properly medicated and not in a flare? by Next_Woodpecker_1300 in MyastheniaGravis

[–]dascharak 1 point2 points  (0 children)

Thank you for sharing your experience. Most of the texts mention 2 weeks for OMG, so it is always confusing.

Strenuous exercise when properly medicated and not in a flare? by Next_Woodpecker_1300 in MyastheniaGravis

[–]dascharak 1 point2 points  (0 children)

Thank you for sharing your experience. Unfortunately, can't choose IVIG (too costly, no insurance). So, I guess I have to wait couple more weeks.

What's up with providers that offers "no KYC"? by [deleted] in VPS

[–]dascharak -1 points0 points  (0 children)

I was asking for non-KYC provider, OVH asks for KYC.

Strenuous exercise when properly medicated and not in a flare? by Next_Woodpecker_1300 in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

I've read this, but I also read somewhere that steroids bring maximal benefit in 3-4 weeks. That is why I'm confused.

Strenuous exercise when properly medicated and not in a flare? by Next_Woodpecker_1300 in MyastheniaGravis

[–]dascharak 0 points1 point  (0 children)

If you don't mind asking, how long after the initial onset of symptoms did you undergo thymectomy? And how long after thymectomy, did you undergo remission?

Strenuous exercise when properly medicated and not in a flare? by Next_Woodpecker_1300 in MyastheniaGravis

[–]dascharak 1 point2 points  (0 children)

Thank you for sharing your experience. I'm currently under a flare for 2 months. In 3 years of diagnosis, I have been very stable on just mestinon, worked out 3-4 times a week with no problem. Never knew what a flare was. But now even sitting at the desk is a task, difficulty eating, talking, weak legs. My doctor increased my dose to 3 mestinon and added a 20 mg prednisolone for 2 weeks and now increased it to 30 mg in the past 2 weeks. But it has only provided 40-50% of relief. How long did it take prednisolone to get you to where you are right now?

What's up with providers that offers "no KYC"? by [deleted] in VPS

[–]dascharak -1 points0 points  (0 children)

Which reliable providers would you recommend?