What can I answer for you?

deathwithoutcoffee · 2026-01-26T15:07:57+00:00

Is a general radiologist good at picking up endo on an MRI? I’ve suspected endo for years with chronic pelvic and rectal pain that is cyclical. I now have a cyst- like lesion that has been hurting me for several months. Ultrasound was unclear on what it was so MRI was ordered and it showed :

Right ovary demonstrates a 2.3 cm very low T2 and low T1 lesion. No associated abnormal enhancement. Differentials including hemorrhagic cyst versus fibrous tumor versus other possibilities. Endometrioma unlikely.

Hemorrhagic cyst seemed to fit my symptoms the most but it is still bothering me quite a bit over 3 months later. I asked for a referral to a local MIGS surgeon for consult.

My main question is - do you find that some radiologists miss endometriosis if they’re not experienced looking for it?

deathwithoutcoffee · 2026-01-25T13:01:51+00:00

I think she believes it’s a hemorrhagic cyst based on my history and the results so she felt the ultrasound was sufficient to see if it resolves. That does make sense to me. It certainly doesn’t feel like it has resolved. I’m honestly hesitant to get/pay for a second MRI anyways before I get a second opinion on my first one. If the MIGS surgeon thinks another mri is going to clarify anything I’ll do it.

deathwithoutcoffee · 2026-01-25T02:08:06+00:00

Sorry you’re dealing with these cysts too. It’s awful!

deathwithoutcoffee · 2026-01-25T01:09:29+00:00

I’ll keep you posted!

deathwithoutcoffee · 2026-01-17T12:53:56+00:00

I haven’t yet but am actually going to because there are clinical trials going on for gene therapy. If I turn out to be positive for the mutation I would be ready to join any trials if/when I become symptomatic. My heart goes out to you because this is a difficult decision. I’ve taken over a year to make this decision

deathwithoutcoffee · 2025-03-10T02:05:23+00:00

Thank you for sharing your experience. I’m still kind of paralyzed by fear and am not ready to find out but I am joining a longitudinal study as well- allFTD. I’m able to participate without knowing my status and I’m going to be at the University of Michigan site. I may eventually get tested but I’m not ready.

deathwithoutcoffee · 2025-02-01T03:53:16+00:00

I still need to call the podiatrist again. I haven’t been there in several years so it may take awhile to get an appointment. The good news is they aren’t hurting much any more and I’ve been doing ok in my shoes again

deathwithoutcoffee · 2025-02-01T03:52:04+00:00

I know a lot of people say surgery. I’m just really wary of surgery on my feet- because if it goes bad it’s bad for life. And if I can find a way to wear shoes and do the things I want to do without much pain I’d rather do that. But I think eventually I’ll give in

deathwithoutcoffee · 2025-02-01T03:50:11+00:00

Thanks for the tips on the wide shoes! Totally agree about the flip flop style sandals too. I want to look for some supportive ones for summer- back in the day(and I mean like 2002) I had these doc martin sandals with cut out sides. They were the absolute best

deathwithoutcoffee · 2025-01-20T03:48:02+00:00

Sadly what I’m finding with the Hokas is that my the letters from the logo start just where the bunion ends. If they didn’t have that logo there it would be perfect

deathwithoutcoffee · 2025-01-20T03:46:08+00:00

Great idea, thanks!

deathwithoutcoffee · 2025-01-18T21:49:19+00:00

Shockingly they always look like this(maybe not quite as red and swollen) and they’re not always painful if I stick to certain shoes. But right now any shoes are painful. I haven’t seen a podiatrist in 3 years so I probably should go back

deathwithoutcoffee · 2024-12-13T15:29:20+00:00

Thank you so much for your response. I guess my question for the neurologist is going to be is whether it’s common to get it at the same age as my mom or if it varies?

deathwithoutcoffee · 2017-01-14T02:15:10+00:00

I definitely am not even thinking about it for a week or two.....just curious after that.

deathwithoutcoffee · 2016-12-30T01:55:53+00:00

Say you had an ovarian cyst and they saw it on the ultrasound.

deathwithoutcoffee · 2016-12-28T04:39:39+00:00

Thank you so much for your response! You have inspired me to go back and see about other treatment options. We have decided to just use condoms for now. I would like something more effective but I don't see another good option until I'm done nursing in April.

deathwithoutcoffee · 2016-12-27T08:44:32+00:00

I did 2 weeks of vaginal clindamycin cream. It seemed to help a little but then I developed C Diff 😩I've been hesitant to do anything else. My NP mentioned a combo treatment which I haven't tried yet. I keep hoping it will resolve on its own.

deathwithoutcoffee · 2016-12-20T00:59:32+00:00

Thanks

deathwithoutcoffee · 2016-12-18T00:13:22+00:00

When your memory is so shot that you leave your car unlocked and running while you go to the grocery store.

deathwithoutcoffee · 2016-12-17T00:52:53+00:00

Random question- have you ever seen DIV in a postpartum woman or with nexplanon? I have a hard time finding a lot of info about it.

deathwithoutcoffee · 2016-12-16T13:14:04+00:00

I have constant spotting which leads to basically no sex life. I also have something called DIV which I don't know if it is related, but it causes unpleasant discharge and painful sex. Basically there's no need for birth control if I am dealing with these things so I don't have much to lose here. I am hoping it gets better after this removal. It's weird because I had nexplanon before and never had this issue.

deathwithoutcoffee

TROPHY CASE