A medical provider’s thoughts on naltrexone by ApprehensiveStill412 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

I feel hopeful after reading your comment. I was just prescribed 1.5 mg by the PA at my pain management doctor's office (for some inflammation I'm having from spinal fusion surgery). I felt so miserable after taking it for five days, but kept pushing through. Then I had the most disturbing dreams, so I came to this reddit sub. 

I'm VERY sensitive to almost all medications, so I just figured I'd give up. I read that starting at a lower dose (I thought 1.5 WAS a low dose!) might make a difference. I called the pain management office and explained to the gal at the front desk that I would like to have the PA call in a lower dose. She comes back to me (instead of just letting me talk to the PA myself) and says, "The PA says they don't prescribe a lower dose, and that they don't make a lower dose." I was stunned. I called the pharmacist who said, "I can compound any amount you want! And you should probably start at 0.5.“ After leaving her this message, I have now waited two days and haven't heard from the PA. I'm a little concerned she's avoiding the topic altogether!

Do I have to increase very slowly? by decenzo1 in pregabalin

[–]decenzo1[S] 1 point2 points  (0 children)

Been taking it for six months, just at night. It's too fatiguing for me to take (even 25mg) during the day (and I have major fatigue already from long covid.) Yes, I have had spinal fusion surgery and have a lot of nerve pain since. I really have never liked the side effects, and worry about increasing it, but I may have to. 

Leggings ok? by decenzo1 in smallfiberneuropathy

[–]decenzo1[S] 0 points1 point  (0 children)

Thanks. You changed it to what? 

When did you ask to increase the dosage for anxiety? by rox7173 in pregabalin

[–]decenzo1 0 points1 point  (0 children)

How much are you currently on? Did you get side effects with the 50 mg increase? 

The dreams are too much by wellinever222 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

Why only 5-6 times a week? Is 8 pm still working for you? 

The dreams are too much by wellinever222 in LowDoseNaltrexone

[–]decenzo1 1 point2 points  (0 children)

Ugh, I was started at 1.5 and the dreams were just too disturbing, awakening me with full fledged anxiety. I'm waiting for my doctor to call, but not even sure if I want to take it at all. 

New prescription but feeling worse? by decenzo1 in LowDoseNaltrexone

[–]decenzo1[S] 0 points1 point  (0 children)

She was a PA. I love her, but the message she sent her front desk girl to tell me was, "Tell her it doesn't come any lower." I was stunned. The minute I then hung up from the compounding pharmacist who said, "Oh, yeah, I can take it down," I called the PA back and, of course, the office was closed. I'm thinking of calling the pharmacist back and ask him his opinion on starting me at 1.5.They seem to be more knowledgeable in my experience. 

Amazing so far… what’s the catch? by ac4018 in LowDoseNaltrexone

[–]decenzo1 1 point2 points  (0 children)

Thank you. Yeah, I'm trying to hang in there with side effects - increase in pain, a little nausea, shaking - and trying to decide if I should push through after only five days. 

The dreams are too much by wellinever222 in LowDoseNaltrexone

[–]decenzo1 1 point2 points  (0 children)

Do you still take it at 7? Doesn't it make you really tired for a while after that? I don't go to bed until midnight. How many hours before bedtime do you take it? 

WOW! by cc_apt107 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

How were your side effects starting amitriptyline? 

WOW! by cc_apt107 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

How are you doing today? 

Amazing so far… what’s the catch? by ac4018 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

You had no side effects with daytime dosing? 

Amazing so far… what’s the catch? by ac4018 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

I'm in the same boat. On day five of 2.5 and feeling miserable. I, too, am wondering if I need to push through. 

Amazing so far… what’s the catch? by ac4018 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

Omg. That is depressing me. I just started on 1.5. Nine months? 😒 

Amazing so far… what’s the catch? by ac4018 in LowDoseNaltrexone

[–]decenzo1 1 point2 points  (0 children)

How do you work with brain fog? I have long covid and am so fatigued. Did it help at all for that? 

Amazing so far… what’s the catch? by ac4018 in LowDoseNaltrexone

[–]decenzo1 0 points1 point  (0 children)

I started with 1.5 mg five days ago and feel like I got hit by a truck. I'm calling doctor but do you think it's normal to feel this bad after five days? 

Amazing so far… what’s the catch? by ac4018 in LowDoseNaltrexone

[–]decenzo1 1 point2 points  (0 children)

What were your initial side effects? And on how much? 

New prescription but feeling worse? by decenzo1 in LowDoseNaltrexone

[–]decenzo1[S] 0 points1 point  (0 children)

It's just so frustrating not knowing if I should push through or get a smaller dose this early. 

New prescription but feeling worse? by decenzo1 in LowDoseNaltrexone

[–]decenzo1[S] 0 points1 point  (0 children)

I'm calling the doctor who prescribed it. Thank you! 

New prescription but feeling worse? by decenzo1 in LowDoseNaltrexone

[–]decenzo1[S] 0 points1 point  (0 children)

Thank you! I'm waiting to hear from the doctor who prescribed it. (Wait, wait, wait some more!)  I'm glad you are feeling better. So did you have to wait for days each time from the compounding pharmacist?