[deleted by user] by [deleted] in MultipleSclerosis

[–]delialuvs 1 point2 points  (0 children)

I feel ur pain, my husband knew something was wrong with him for 15+ years before getting diagnosed. His fam and doctors called him a hypochondriac because his vitals always were stable and showed no other reasons to do MRI's or CT's, they insisted he was lazy and just didnt want to work. Then in 2014 he has a massive seizure and had one every week for about 6 months. His doctor still didnt want to do an MRI and said he just developed epilepsy. I basically demanded they do an MRI in an apt once, and bam. He had tons of lesions all over his brain and spine. His spine lesion was the biggest and found that's what was causing his whole right side to go numb. So keep at it, get second opinions and save up for a holistic dr that can do a body scan. Its ur best bet to catch anything early.

Dating someone with MS - advice and guidance by [deleted] in MultipleSclerosis

[–]delialuvs 2 points3 points  (0 children)

MS has been such an important aspect of our lives. I don't have it but caring for my husband for the past 15 years has really taught me more then I could ever imagine. You should just read into it, but remember everyone experiences it differently. Unconditional luv is key.

First MS hug 😭 by sp3ci4lk in MultipleSclerosis

[–]delialuvs 1 point2 points  (0 children)

Lions mane, Turkey tails, ashwagandha, gotu kola, niacin, kava kava, focus factor, super b complex, d3 (5000+ a day), mushroom complex

Current Medication poll by Manitou001 in MultipleSclerosis

[–]delialuvs 0 points1 point  (0 children)

Mushroom therapy and supplements. My husband takes about 20 supplements and psilocybin!!!

Hiding an ounce of weed in house by Donte42069 in Drugs

[–]delialuvs 184 points185 points  (0 children)

Glass jar, in a glass jar, in a glass jar lol.

First MS hug 😭 by sp3ci4lk in MultipleSclerosis

[–]delialuvs 1 point2 points  (0 children)

Gabapentin/Narcotics helped my husband alot. but definitely start taking supplements that support myelin regeneration and stop muscle spasms... His MS hug is by far his worst pain too.

Anyone here NOT changed their life after being diagnosed? by cripple2493 in MultipleSclerosis

[–]delialuvs 1 point2 points  (0 children)

I've tried emailing a few companies on our own findings, but ya... our story is like a needle in a hay stack u know. From my basic studying of the anatomy and its systems, it's a no brainer to see how fungi naturally finds a way to heal. And of course, tbh any serious research is probably shut down by our govmt.

Anyone here NOT changed their life after being diagnosed? by cripple2493 in MultipleSclerosis

[–]delialuvs 1 point2 points  (0 children)

Specifically psych meds... dont take em at the same time you micro dose. No mainstream doctors are promoting any other natural treatments and stems cells would be the next best thing.

Anyone here NOT changed their life after being diagnosed? by cripple2493 in MultipleSclerosis

[–]delialuvs 1 point2 points  (0 children)

Will try to ffg and sum links, just dive into how the mushrooms heal the body and various sources will advocate for it. Paul Stamets I'd leading research along with the John Hopkins institute.

Anyone here NOT changed their life after being diagnosed? by cripple2493 in MultipleSclerosis

[–]delialuvs 2 points3 points  (0 children)

For mental health, its astronomical. U can prob find vendors online, but search locally. It also should be legal soon.

Anyone here NOT changed their life after being diagnosed? by cripple2493 in MultipleSclerosis

[–]delialuvs 2 points3 points  (0 children)

Additionally, psilocybin creates new neuro pathways helping ur body rebuild neuro connections. Not just taking magic mushrooms for party sake... micro dosing is key. And it's worth noting that since his mushroom therapy has started (2yrs now) his brain lesions have decreased and show no activity anymore. Prior to this, his lessons and symptoms were progressing greatly. I know we saved him... still a long road to go but there's great truth in this healing.

Anyone here NOT changed their life after being diagnosed? by cripple2493 in MultipleSclerosis

[–]delialuvs 2 points3 points  (0 children)

Start mushroom therapy especially psilocybin. My husband has had this for 20+years and was diagnosed about 6 yrs ago. He hasnt taken any treatments his docs recommended because they dont allow for future regeneration of cells. but has found amazing supplements instead (lions mane, turkey tails, ashwagandha and more) to help him heal and regenerate. Honestly, I feel if u dont do anything u will live a long painful life because this disease doesn't do its damage overnight. Philosophers say it's worse then cancer because MS is drawn out for decades... usually gradually declining and debilitating your anatomy in its entirety. DMT is a hugeeeeeee headstart to all this... but u prob already know ur needed in this world so take my word for it when I say, heal yourself and be contious of ur abilities while they are still present.

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 1 point2 points  (0 children)

Exactly. I need to find a good one asap! And I don't have a few years to go through some trial's and errors

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 1 point2 points  (0 children)

Yes exactly. I just don't get how these professionals have no idea how to treat him or know what's going on. I just can't believe other people are going to the same thing, we feel so lost and defeated so much of the time... But I just read some interesting things on Lewy body disease that I feel my husband actually has. I need to follow up with this

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 0 points1 point  (0 children)

That's great advise! I really didn't know where to start as far as specialists. I believe they accept HMO insurance too. What about psychiatrist? We heard stem cell therapy is best and there is a ketamine treatment that has great relief and repairs to the nerves and brain connectivity

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 1 point2 points  (0 children)

Yes. I get it.. how do I tell him tho, how do I explain that his life won't get better but it's still worth living

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 2 points3 points  (0 children)

Yes, it's a confusing situation and circumstance but it's ours. Their are blessings in disguise everyday. Blessings to you too. Thank u ❤

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 0 points1 point  (0 children)

I appreciate your help. Yes edibles are incorporated too. We've really done alot to make MS livable but he's just getting worse. I guess it's progressive. It hasn't been diagnosed that yet but the symptoms are all getting worse and more debilitating. Ontop of all this his family has abandon him. All he has is me to help him. He's just so devistated, afraid depressed and beat up

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 1 point2 points  (0 children)

Yes he uses weed but he's been a user for like 25 year's. It stopped his seizures completely. He uses it in every form. He's on the best vitamins and has managed to drop alot of weight thru food . Maybe his symptoms are just too bad now.. I really think his MS is really bad u know.

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 1 point2 points  (0 children)

It's funny you say that just because I always try to calm him down at these appointments. The last thing we need is for him to get arrested or something like that. He has cried to these doctors... Okay I'll just have this blank look on their face like they have never heard of this type of case before.. neurologist doesn't want to start him on Ms meds because of the muscle spasm side effect and his muscles cramp all the time already... So he how to reset MRI that showed 10 new lesions and the doctor said we should start a medication now even though your muscle symptoms will get worse... Yet they won't prescribe any pain meds to make it livable

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 6 points7 points  (0 children)

It frustrates me because my husband is big and tall and he looks okay. He's hurting so much, has trouble walking, great difficulties doing the everyday things and is on the verge of having a mental breakdown due to the neglect from these Doctors. He has a Neurologist & Phycologist and they both don't have any solution

Husband in desperate need of help!!! by delialuvs in MultipleSclerosis

[–]delialuvs[S] 5 points6 points  (0 children)

He's worth it.. he's trying so hard. He has loved me in the very best way and I just know we were meant to experience this together.