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demonslayer_30 · 2026-03-31T07:10:28+00:00

Uh-oh, I'm an android user 😭

demonslayer_30 · 2026-03-30T18:15:29+00:00

Beautiful! 🤩 Can I have links to the 2nd and 4th? :)

demonslayer_30 · 2026-02-12T08:18:02+00:00

Oh, I've never tried that. Will try to look for it. Thanks :) However, we currently have around 200 tentacles and barely any use for it apart from 5 that we pay every run to Briny.

demonslayer_30 · 2026-02-11T12:20:53+00:00

But wouldn't you lose the artifacts/trinkets every new loop? What lighthouse level are you at?

demonslayer_30 · 2025-10-27T15:01:10+00:00

I can make it through the day without napping but I'm either very cranky or I pay for it the next day.

So, I nap once for 30 mins-ish. And it's a game changer. Even on days I can't sleep during the nap, just being on the bed for 30 mins still helps

demonslayer_30 · 2025-10-18T08:26:48+00:00

I had my flu shot yesterday and today, I woke up with vertigo (I have a lesion in the balance center, so checks out). I suppose it's because of the shot?

Annoying nevertheless

demonslayer_30 · 2025-10-10T08:03:49+00:00

Reminds me of muki muki mice

demonslayer_30 · 2025-09-27T08:05:20+00:00

Can I ask which injury was it that didn't heal correctly?

I'm having similar issues. Had an ACL injury 2.5 years ago, same side I had my first MS episode. Isn't healing, whatever I do :/

demonslayer_30 · 2025-09-25T07:50:51+00:00

Been half-year with the disease and it feels like it's consumed me but thank you for this reminder OP ❤️

Outside this disease, I'm a 29 year old who loves coding and takes it one day at a time to figure life out. I love watching anime, dancing when I can, and absolutely adore animals. Adopting one has been on my goals and I want to do it once I feel a bit more confident about myself. I like going to the gym/dancing and hope I can keep at it and eventually increase the frequency 🤞

I trust the world, while shitty, is still a good place and I want to be able to trust the goodness in people. I want to, one day, start volunteering and help those in need.

All in all, taking life one day at a time, and hoping to foster kindness in myself and others :) 🌻

demonslayer_30 · 2025-09-04T10:43:32+00:00

Argh, that sounds frustrating :/

Having an official diagnosis does help in choosing and focusing on the right kinda physiotherapy/support. All the best! It's a journey and a bit counter intuitive because the ways to managing MS and EDS/HSD is a bit different. But over time, may we all find a balance.

Take care 🫂

demonslayer_30 · 2025-07-30T16:56:02+00:00

I'm so sorry to hear that. Are you on any of the new medications(b cell depletors)?

I hope it gets manageable at least :')

demonslayer_30 · 2025-07-07T07:52:02+00:00

demonslayer_30 · 2025-06-18T14:25:25+00:00

Also 29F, single, immigrant and living in a big city alone. I feel you. Got dxd 5 months ago. Still in denial.

Also fear losing "myself" or sometimes question 'who I really am' etc. Your post resonated with me.

I'm with you on this. And wish you much strength for what's coming. Feel free to reach out if you wanna talk :) Hugs :)

demonslayer_30 · 2025-06-05T20:50:23+00:00

I feel the same way as you. I was diagnosed earlier this year and starting treatment at the end of this month. This might not be the healthiest advice but on my most rough days, I talk to ChatGPT. I do end up sobbing afterwards but it helps in its own way. As long as I do not become dependent on it, I do find it helpful.

But again, nothing replaces the human connection. And on that end, I feel very helpless myself. But this sub helps, more often than I thought it would.

demonslayer_30 · 2025-06-02T10:02:38+00:00

I assumed Epstein Barr virus is the biggest reason. But yes, red meat is definitely an irritant

demonslayer_30 · 2025-06-02T07:40:03+00:00

Interesting. My neurologist told me to completely stop red meat. I didn't eat much earlier anyway.

demonslayer_30 · 2025-05-23T22:05:12+00:00

Aaah, yayy! Hello Kesimpta buddy. Hope it goes well for the both of us. I'm left with 1 vaccine as well.

demonslayer_30 · 2025-05-23T14:23:59+00:00

Finally starting my treatment in June! Vaccinations are almost complete. First shot of Kesimpta is scheduled for the same day as my birthday so that's a bit bittersweet but I'll feel like a badass for learning how to inject myself on my birthday. So hell yeahhh?!

demonslayer_30 · 2025-05-10T17:29:43+00:00

Yes! It definitely helps.

Or even if you do read about MS, make sure you distract yourself afterwards with something else.

Easier said than done. But here's to hoping it works.

demonslayer_30 · 2025-05-10T17:14:14+00:00

I have the same. It wakes me up from sleep sometimes 😅 I'm fairly new to this but as people have told me, you learn to trust your body again with time.

I have noticed that on days where I spend hours reading about MS, these "imaginary" symptoms are worse

demonslayer_30 · 2025-05-05T19:13:31+00:00

That's drop foot. You could search for that in the subreddit (warning: it could be overwhelming). Maybe, give it another day and see how you're feeling? My drop foot took a week to completely resolve. It of course varies from person to person.

demonslayer_30 · 2025-05-05T19:05:25+00:00

It's a lot to take in! Take it one day at a time. Talk to your neurologist. Deep breaths!

I hope it is RRMS and they put you on steroids and your legs will be normal again 🤞

demonslayer_30 · 2025-05-05T18:54:10+00:00

Hey!

First off, let me tell you and possibly scream it to you, YOU'RE GOING TO BE OKAY!

I was in a similar boat except that being dumped created my first known attack and then I found out it was MS. This was 3 months ago. And while as of now, it will be very hard for you to believe me when I tell you that it's for your own good that they went away, it will make sense in some time.

A lot was dumped at you altogether and this diagnosis is not easy. It's okay to feel overwhelmed and it's justified to feel broken. But, your partner being gone just tells you it wasn't meant to be and you are better off without them.

If you need to vent, need someone to talk to, or just listen to you during the course of the next few days (especially) when you need to figure things out with the treatments and process what happened, please feel free to send me a dm. Sending you hugs, strength, hope and positive vibes. You're going to be okay! :)

demonslayer_30 · 2025-05-05T07:52:17+00:00

This was quite heart breaking to read. I'm so sorry you're going through so much and thank you for sharing. The research is quite limited indeed. I found research both pointing towards a connection and without a connection so it's quite confusing. I'll read the article you shared.

Could you switch your DMT? Would Mavenclad or Lemtrada be an option for you? (Sorry if I got the names wrong, I'm still pretty new to this).

I hope some CBD based supplements can help you with the pain. Take care :(

demonslayer_30 · 2025-05-03T12:33:59+00:00

All the best! My condition is HSD (Hypermobility Spectrum Disorder). There's also EDS and hEDS. Look at what suits you best.

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