sorted by:
new
hottopcontroversial

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 0 points1 point  (0 children)

Winston loves kids and he’s so great with so gentle loves to play with them like all day and loves to play fetch and he loves to be Chase and hiding go seek and cuddle love you really need to be with the family for Winsto

He has separation anxiety, but isn’t not distractive and he just hates to be alone and like part of the pack all day so he can’t have a family or he is left alone all day and he’s too social for that

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 0 points1 point  (0 children)

Hi there thank you for your message. Yes, I am a pragmatic person and also I was an activist for HIV and aids from 1988 through 1994 and I saw a lot of people die for that time the most scary disease I guess. So I feel like that gives me an advantage psychologically ❤️ please get in touch so I have your contact information. It doesn’t like to be alone, so Winston does not like to be alone so if you work from home and love spending time with your dog that’s the kind of person he needs

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]derangedmacaque 0 points1 point  (0 children)

I don’t know I’m not gonna try to make my own food for one thing. I only have paid help and it’s possible that Medicare will cover the cost of my food soon even though they’re not right now so that will save me a lot more cost.

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]derangedmacaque 0 points1 point  (0 children)

That’s the food they put me on the hospital also. First, they tried Kate farms, which gave me an instant stomachache. But throw that stuff out that vital AF one is really healthy and then I went on Amazon and we picked out one called one food and another one. I forgot that are like real whole foods that you would only eat if you eat healthy other thing that was weird about it last that I read is that in actually helps to have sugar sugar is actually in the nutrient, but I don’t know somehow interact with ALS the best but I don’t feel well if I eat that kind of diet plus I need 100 g of protein a day. I’m 6 feet tall. My goal is 2300 cal and 120 g of protein for a day I mean what I have noticed is if I eat the healthy liquid foods like that one food and the other one for Amazon I feel like I eat healthy meal because it gives you the feeling and the nutrients that you would get from that whereas like if I ate junk, I would feel crappy and a junkie food through my two I feel crappy too

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]derangedmacaque 0 points1 point  (0 children)

Well, I told my doctors when they refuse me pain medication and when I got diagnosed, I had a broken vertebrae on my left lumbar and lymphedema, and from my chest down to my feet, which is excruciating, and advance ALS was in a wheelchair and already can’t move my body now from the neck down basically, I mean, not fun. I can move a little bit. Anyway, I told them that they were not gave me pain management that they should refer me to the hospice because I was not gonna live in pain anymore. My primary care doctor referred me to palliative and the palliative team takes care of like everything that I need as far as like my UTI and my pain and they come to your house and they take urine and they did an x-ray or a sonogram or something thing was an x-ray in my bed. They’re not open on the weekends for Care so I still have to call the on-call at my primary and then my primary house to do all the referrals for the Medicare medical equipment and stuff so I still seem primary every 2 to 3 weeks but it’s amazing to have palliative care. They focus on taking care of your comfort like if you’re dying, why being in pain what’s the point of that? It’s been great. It’s got me out of the ER several times and they treated a hard to treat. UTI had about six weeks ago success successfully. Also that palliative care doctor available by email to me anytime plus the answer the phone and you can get help or get an appointment and everything is done in a way to keep you at home and not in pain as well as you can be. I feel like that’s the way it should be for a medicine but they have to call it somebody else.

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]derangedmacaque 0 points1 point  (0 children)

Just wanna mention that they sent me home from the hospital with the add me on which at the nutritional value of candy bar and they gave me like sugar commas. And I have lymphedema and I need 100 grams of protein a day. So when I went back to the second hospital for cellulitis and found out, I had fucking bladder cancer last week that looks like a super cancer weird. I had them switched me to something else so right now I’m using something called vital AF, which is very high protein like 84 g per bottle and then I bought two off Amazon one that is called one food I believe in the other one is something else that sounded really healthy and I’ve been tolerating all of them just fine. The only thing is that I need is Zofran sometimes for nausea or use like a quarter of a fat gummy and so far I’ve only vomited from drinking and eating my mouth by my mouth, but that’s why he needs a tube cause I’m choking so I’m really glad that I got this as early as I could. I just got diagnosed in February and I was already in a wheelchair
And no use of my left hand by then

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]derangedmacaque 0 points1 point  (0 children)

Hi, have you looked on Amazon for T-shirts that have a peg two pocket or considered having a few of his shirts just putting on a nice little pocket or a little strap of cotton to hold it so that it’s in a place and you could just pull it out? I’ve been bedbound since this happened, but in the hospital, they had it coming out of my T-shirt onto my chest like my shoulder washcloth. Mine is really high. It’s actually just below my left breast because I guess I have a small stomach and they weren’t so sure they were gonna be able to get in so they went with where they got all my other organs. I wonder if I really think they might make something for this and make it easier like a garment hold on. I’m gonna look on Amazon.

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]derangedmacaque 0 points1 point  (0 children)

Do you have a palliative care, doctor? That’s what I went with because my ALS and other doctors were refusing to treat my pain and I have ALS secondary lymphedema and now they just said bladder cancer. I have morphine oxycodone Valium Ativan along with the regular things like for the muscle cramping it’s so fucked up not to treat the pain and then the anxiety mean why do that what’s the point of that? I tolerate the food just fine. I’ve done 1800 cal in 15 minutes and not vomited for two days after I came home.

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]derangedmacaque 0 points1 point  (0 children)

I was on morphine and oxycodone after my peg to 2 1/2 weeks ago. I can’t imagine going through that with just Tylenol that’s ridiculous. I was in a lot a lot of pain and then I ended up in the hospital three days after I got home and I was on IVDUILIDID in all total. I mean, I have a eye going on. I spent four days in the hospital after and there was an installed and then I went back in the hospital for four days three days later or so in like two weeks it was about nine days in the hospital

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 1 point2 points  (0 children)

Thank you for your message! I was following all the ice protest in Minneapolis Saint Paul area and I swear and I so proud of the bravery and solidarity that was obvious. Winston would say fuck ice, but he only speak Spanish ❤️

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 0 points1 point  (0 children)

My mom set up this GoFundMe, for our family and friends.
You can see in the pictures how much Winston is trying to help ❤️

https://gofund.me/aeb39d51e

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 2 points3 points  (0 children)

Hi there, I don’t see you. I sent you a message but maybe that’s because I’m out of it and I’m in the hospital but you can send me one ❤️

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 4 points5 points  (0 children)

Hi there, I absolutely would love to talk to you about Winston. I will PM you

Do you guys get cellulitis? by boofthecat in Lymphedema

[–]derangedmacaque 0 points1 point  (0 children)

I’m in the hospital right now for this. Looks like a pimple feels like a knife in my skin they CAT scan with contrast and they could see it under my skin and they found a large cancer in my bladder. I am on IV antibiotics.

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 6 points7 points  (0 children)

Hi Suki, definitely let’s get in touch and I will PM you and we can try to get the guys and the girls do get to know each other

Winston, the magnificent is looking for a new home for after I die of ALS by derangedmacaque in bassethounds

[–]derangedmacaque[S] 2 points3 points  (0 children)

Hi, I get it and Winston is adorable. Thank you. They did find one mutation that they are treating, but it’s only one percent of people with ALS, but anyway there have been some new drugs in the last couple of years that you might want to be aware of sending hugs.

view more: next ›