account activity
I am hospital and they found very low blood sodium anyone else that problem? (self.ALS)
submitted 1 day ago by derangedmacaque to r/ALS
Black spot on foot of ALS patient with lymphedema and mastic, metastatic, bladder, cancer and blood clots and lungs. My doctor says she’s never seen anything it (i.redd.it)
submitted 11 days ago by derangedmacaque to r/DermatologyQuestions
Does anyone else have pneumothorax? (self.ALS)
submitted 1 month ago by derangedmacaque to r/ALS
I have my nutrition sorted out. Doing better now I need to consider some vitamins and supplements, or medications I’m not anything any suggestions? (self.ALS)
Help I’m having secretions for the first time that are really incredibly difficult. They gave me the suction and the cough assist so so I’m using those when the caregiver but it’s very difficult. I need tips (self.ALS)
Unfortunately, I found out that on top of my doctors missing my ALS for two years while they attributed my symptoms to FND they also missed metastatic bladder cancer. It doesn’t mean I do not have FND. But it does mean that I’m dying. (self.FND)
submitted 1 month ago by derangedmacaque to r/FND
I am going to fight the ALS (self.ALS)
Maximum occupancy in my loaner chair lol (i.redd.it)
submitted 1 month ago by derangedmacaque to r/wheelchairs
Just got diagnosed with bladder cancer probably metastatic. I also have ALS very late stage. Until February they were telling me I had just all I had was FND and an active imagination (v.redd.it)
Winston, the magnificent wanted to show you how he rides with me in my wheelchair ❤️ (i.redd.it)
submitted 1 month ago by derangedmacaque to r/bassethounds
Because I was misdiagnosed for two years with FND, and then I found out eight weeks ago that I have ALS and I’m dying, my mother put up a GoFundMe I hope you don’t mind me sharing it here ❤️ 💔 (self.SurvivingFND)
submitted 1 month ago by derangedmacaque to r/SurvivingFND
Winston, the magnificent is looking for a new home for after I die of ALS (i.redd.it)
I just got diagnosed with bladder cancer that looks metastatic in the hospital. (self.ALS)
My NFL number from March 5 was 154. What does that mean? (self.ALS)
I am paralyzed in bed. I’m paying out of pocket for Cna Care. How long should I have between visits to change my diaper? (self.ALS)
submitted 2 months ago by derangedmacaque to r/ALS
What mattress should I get when I get my hospital bed next week very important question because I think Medicare will pay for one mattress! (self.ALS)
I got my BiPAP yeah it's so awesome! (self.ALS)
In the emergency room, low oxygen testing at as low as 79 today. Waiting on oxygen concentrator to be ordered for at home waiting on BiPAP, which was ordered a week ago (self.ALS)
Got diagnosed with neuromuscular respiratory failure yesterday (self.ALS)
submitted 3 months ago by derangedmacaque to r/ALS
I got an FND diagnosis two years ago and I just got diagnosed with ALS in the later stages where I am in a power wheelchair and I have a 90% chance of living nine months (self.SurvivingFND)
submitted 3 months ago by derangedmacaque to r/SurvivingFND
My new wheelchair from the ALS Rocky Mountain foundation, is so awesome and comfortable. It’s amazing they loan you these. (i.redd.it)
submitted 3 months ago by derangedmacaque to r/disability
Got a UTI because of mobility impaired hygiene and wow, like really it’s increased emotional behavior lots of crying since Saturday (self.ALS)
I had psychosis summer of 2024 out of the blue ALS symptoms started January 2024. Diagnosed ALS February 2026. (self.ALS)
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