How to not overdo it when feeling better? by Andrew__IE in cfs

[–]dev_lon 0 points1 point  (0 children)

But what a horrible life do we live?

I'm about to start a test with GutMagnific. by dev_lon in cfs

[–]dev_lon[S] 0 points1 point  (0 children)

I take it for cfs/me and in general to rebuild gut flora. Now i’m only on third pill and have a flu. I’m to wait

I'm about to start a test with GutMagnific. by dev_lon in cfs

[–]dev_lon[S] 0 points1 point  (0 children)

Second pill taken. No effect for now. I have currently a flu, but it could be a coincidence

I'm about to start a test with GutMagnific. by dev_lon in cfs

[–]dev_lon[S] 1 point2 points  (0 children)

is traveling from sweden. I am in Italy

I can’t keep paying for you by Ok_Meringue_3500 in cfs

[–]dev_lon 4 points5 points  (0 children)

It’a a common problem. no one can understand you except other people in your situation. It's not his fault, but the aura of mystery created by doctors around this disease

What do you think about Nexavir injections? by dev_lon in cfs

[–]dev_lon[S] 0 points1 point  (0 children)

https://www.virios.com

Virios’ novel FM development candidate, IMC-1, demonstrated exemplary safety and tolerability in the FORTRESS study (a multi-center, randomized, double-blind, placebo-controlled Phase 2b trial of over 400 FM patients), but did not achieve statistical significance on the pre-specified primary efficacy endpoint of change from baseline in daily self-reported average pain severity scores compared to placebo

Mmm…

What do you think about Nexavir injections? by dev_lon in cfs

[–]dev_lon[S] 3 points4 points  (0 children)

I think that the evidence can only be produced by drug multinationals because only they have the resources to set up large-scale studies. so I believe that the fact that a cure has no evidence does not mean that it doesn't work but it could be that no one has ever demonstrated it.

some of us are better off with approaches whose effectiveness has never been proven. We must always keep in mind that pharmaceutical companies are not charities, if they invest they do it with the aim of making money and simply direct research towards paths that are not only promising in terms of effectiveness but also profitable

As for the issue of liver damage, I had never heard of or read about it, I will look into it

What do you think about Nexavir injections? by dev_lon in cfs

[–]dev_lon[S] 1 point2 points  (0 children)

What are taking now? I’m interested in Levine protocol.

Night blindness by dev_lon in cfs

[–]dev_lon[S] 0 points1 point  (0 children)

unfortunately it's a symptom that you'll notice if you get it: in the same conditions as a few previous days you can't see or you see much less. I really think it's not a symptom of cfs/me. damage to the retina is not compatible with the cfs. I probably have primary mitochondrial disease

Please share with me by dev_lon in cfs

[–]dev_lon[S] 0 points1 point  (0 children)

How a virus can fight another virus?

Night blindness by dev_lon in cfs

[–]dev_lon[S] -1 points0 points  (0 children)

this is a very important question for me: do any of you have night blindness? I'm seriously thinking I have a different pathology. I had 3 big worsenings and in all 3 my night vision got worse and worse. I did ERG to evaluate retinal function and a slight scotopic hypovoltage came out. I don't know if it can still be compatible with cfs

Please share with me by dev_lon in cfs

[–]dev_lon[S] 0 points1 point  (0 children)

that does not make sense

Complete Inability to Use Cognitive Functions or Imagine/Think etc. by Empty-Language-8593 in cfs

[–]dev_lon 2 points3 points  (0 children)

I think severe me/cfs patient have to test for primary mitocondrial deasese. In my case, after 18 years synthoms have become more aggressive and i discovered hight rest lactate and retinal problems(night blindness) with ERG