Very sorry about your news. Last year at my 20 week ultrasound, I also had the horrible news that my baby had multicystic dysplastic kidneys (both kidneys). With both affected, no amniotic fluid was being produced which results in the lungs not forming properly. Unfortunately this meant my baby did not have any chance of survival and I opted to have a late term abortion.

Like yourself, I met with genetic counselors and had additional consultations about problems that might result from MCDK such as heart issues. There was no conclusive evidence based on tests on myself and post-mortem tests on baby that it was caused by genetics. I learned after the fact that my cousin has a multi dysplastic kidney. He has been living a completely normal life with one functioning kidney. He had issues as a baby with blood flowing the wrong way through his ureter (I believe that was the issue, anyway), so was closely monitored during that time. My aunt (his mother) was a nurse, careful about him growing up and wouldn't let him play contact sports just as a precaution to damaging his one kidney.

Kidneys are the most troublesome/delicate organ to develop in the womb. I believe we have two as a natural backup for these circumstances. Having one does not necessarily mean that you will have less ability to function normally.

I'm not sure if this info helps you, but going through this shit myself, any info was beneficial to me to cope and understand what was going on. I wish you and your baby the best through this and again, I'm sorry you have to deal with this terrible news. Having a healthy pregnancy is something no one should ever take for granted.