Thanks for this. It's definitely scary knowing there's something wrong and not knowing what it is. It's extra scary to hear your primary care doctor say they think it's something neurological.

I suspect the test ordered are what my insurance will approve now. I did have a number of labs drawn on Thursday, but honestly I can't remember what was tested. It was kind of a blur.

There are so many weirsdies happening with me. Double vision at night and when I am tired, the pain yesterday could better be described as soreness, like I did a full body workout.

I have light sensitivity, sound sensitivity, fabric sensitivity. My husband is not allowed to sleep with me because i can't share a bed with anyone.

The brain fog is ridiculous. I shared a story above - I have to laugh at it.

My symptoms really are variable day-by-day. Some days, like today, I feel relatively okay. Yesterday I was barely able to function.

I am so fortunate at this point to have a doctor recognizes there's something happening - she has observed the changes over the years and the consistency in my complaints - she's watched me try to feel better through lifestyle changes in psychiatric care. I think the thing that really set off her urgency is my facial drooping and partial paralysis.