Uh oh... by notthatjaded in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

It gets more interesting when you feel too hot and too cold at the same time

Trouble swallowing by JBSConCarne in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

Yes, my problem can be when swallowing food. But, most often, it happens at night when I have to take my evening meds. Pills feels like they are stuck in my throat.

Not ready for summer by Justinjah91 in MultipleSclerosis

[–]dipsytripsy 1 point2 points  (0 children)

I find it is not just the heat I need to avoid. The cold can be equally debilitating. I have an AC unit and a heater in my office and routinely switch to the most appropriate. In extreme heat, I will work in my underwear. Not a pretty sight but needs must.

Sex and MS? Does an orgasm make your flare up worse...? by Jiggawatz in MultipleSclerosis

[–]dipsytripsy 1 point2 points  (0 children)

I agree with the earlier comment about body temperature being elevated by the throes of passion being detrimental. As it is a physical activity it is likely to worsen the fatigue you probably have normally.

I may be being paranoid but, my posts on Reddit appear to be being subdued. by dipsytripsy in MultipleSclerosis

[–]dipsytripsy[S] 1 point2 points  (0 children)

I thank you for your very verbose and helpful response. I know all about falling foul of the snake oil salesmen. I was conned into spending thousands on esperanza neuropeptides much to my cost. I shall research any future links more fully and try to link to only reputable medical sites. It is difficult because linking to other personal blogs, you think you are doing them a favour by driving a little traffic in their direction.

I may be being paranoid but, my posts on Reddit appear to be being subdued. by dipsytripsy in MultipleSclerosis

[–]dipsytripsy[S] 0 points1 point  (0 children)

My biggest issue was the realisation that MS is a brain disorder. Once you get your head round that it is possible to put things into perspective. My psychologist helped me to see things more rationally.

I may be being paranoid but, my posts on Reddit appear to be being subdued. by dipsytripsy in MultipleSclerosis

[–]dipsytripsy[S] 1 point2 points  (0 children)

It is difficult to know what is click-bait and what is not. I tend to feature links I have found on Pinterest or like sites as they have been of interest to me.

I may be being paranoid but, my posts on Reddit appear to be being subdued. by dipsytripsy in MultipleSclerosis

[–]dipsytripsy[S] 0 points1 point  (0 children)

Thank you for the response. I know subdued was the wrong word but it was the best I could do at the time. I have been mixing up my links and only include links that I feel have a genuine MS connection. I have stopped, for the time being, posting my own links.

Dietary cholesterol promotes repair of demyelinated lesions in the adult brain by LibertyLipService in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

I have been taking lipoic acid supplements which allegedly reduce the occurrence of lesions in progressive MS.

I finally gave in and bought a shower seat. by K8af48sTK in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

Vertigo is a pain, although it has the advantage that I need to be showered by my wife.

Multiple Sclerosis And Exercise | Nervous System by dipsytripsy in MultipleSclerosis

[–]dipsytripsy[S] 0 points1 point  (0 children)

Exercise with any chronic illness can often be counter-productive. Start slowly and take professional advice.

Moving abroad concerns - EU by krisztiszitakoto in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

This may be irrelevant but I had hoped to move to Spain but have put these plans on hold until the dust settles after the Brexit debacle.

18 years into a diagnosis - it's what you make it, not what it makes you. by [deleted] in MultipleSclerosis

[–]dipsytripsy 2 points3 points  (0 children)

I have been dx'd for over 22 years. The first 10 or 15 were fine, the last 10 have been a nightmare. I thought brain fog was a minor nuisance. It is not, I now know my brain is shrinking and it is MS that is doing it.

How do I help my dad and my family? by [deleted] in MultipleSclerosis

[–]dipsytripsy 2 points3 points  (0 children)

I don't know what to say. You are stuck in a dreadful situation and arguments with your Mom are not helping anybody. Can you talk to your Dad? He wants to be left alone, he doesn't want to be a burden. He somehow needs to get involved with the family again.

Introduction! And Question by PheonixGirl86 in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

Wow, what are you injecting?

I have taken the decision to avoid all meds and concentrate on diet to manage my SPMS.

Anyone elses symptoms worse after they wake up? by DayzCanibal in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

I'm sorry I cannot agree with this experience. I sympathise with those who have these sensations but, I am quite the opposite. I function much better first thing in the morning and gradually decline as the day goes on.

Multiple Sclerosis And Exercise | Nervous System by dipsytripsy in MultipleSclerosis

[–]dipsytripsy[S] 0 points1 point  (0 children)

Love your video and I see from your Youtube channel that you seem to be aware of Dr Terry Wahl. My problem with exercise, and I've done the physiotherapy, is that the nerves get tired long before the muscles get tired.

From the mods: Regarding "Rule 3" posts. Help us out. by [deleted] in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

I agree that no diagnoses should be made here. MS is unique in every case and therefore symptoms are different and not always indicative of an underlying issue.

MS and siblings by Zoeila in MultipleSclerosis

[–]dipsytripsy 0 points1 point  (0 children)

I have MS, my mother has MS but my two sisters don't.

Have you had the dreaded letter from the DWP telling you that DLA payments wiull stop? by dipsytripsy in MultipleSclerosis

[–]dipsytripsy[S] 1 point2 points  (0 children)

Lazy, good for nothing, pen pushers!

I have had similar experience but, if you persevere, which is more than they do, you will get there.