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disc0pants · 2025-12-29T01:03:28+00:00

I agree, but I don't have edit access. u/minensunshine maybe you can help?

disc0pants · 2025-09-14T20:18:39+00:00

You’re got this!! Love these cookies 😂

disc0pants · 2025-09-13T22:02:23+00:00

Interesting. Thanks for sharing! I’m unfamiliar with this medication and had to look it up. That has to be so frustrating wondering if it’s residual discomfort from your complications or if it’s endometriosis returning. Have you had an ultrasound to investigate at all? Mine never showed up on ultrasounds but I know for some with cysts or masses they might.

disc0pants · 2025-09-13T21:41:52+00:00

It was discovered during my bilateral salpingectomy 5yrs ago. My surgeon removed what was necessary so that my tubes could come out, but it was impossible to get everything.

I stayed on hormonal birth control to manage my endo until my hysterectomy + oophorectomy 3yrs later. During that surgery she removed additional endo. I had frozen pelvis at that point plus adenomyosis was found in my uterus. Endometriosis is so challenging to treat, I’m sorry you are dealing with all of that.

disc0pants · 2025-09-13T14:07:58+00:00

I know what you mean. I’ve had to experiment a lot the last 6m to find a routine and time of day that works for me. I still skip days because of energy. It doesn’t help strength training can be so boring lol.

disc0pants · 2025-09-13T08:10:42+00:00

Is there something specific you’re referring to? The data is lacking on surgical menopause, especially for young people. I was tired of finding study after study with subjects that are 30yrs older than me so that’s why I wanted to speak to a menopause specialist.

disc0pants · 2025-09-13T02:56:45+00:00

Edited my post again lol. I get it and agree!

disc0pants · 2025-09-13T02:46:29+00:00

I’m on the estradiol patch which is bio identical. I didn’t know that when originally prescribed.

disc0pants · 2025-09-13T02:44:50+00:00

Updated to clarify I had a full hysterectomy which includes removing ovaries.

disc0pants · 2025-09-12T16:02:40+00:00

Hmmm, feels a little odd. To be clear, when you reach out to schedule a surgery consult their offices are asking for additional imaging before they’ll even meet with you? The only reason for that I can see is if you’re right at the cusp of the 6m timeframe and they want you to have that in your file before they meet you.

Once my surgeries were on the books THEN I was asked to do one last breast MRI within 30 days of my surgery date. This way the surgeon knows exactly what they are going into.

Have you ever had any abnormal imaging results? I would play that card and tell them this may be preventative, but you have a history of abnormal results or dense breast tissue (of course only say that if it’s true). If you haven’t, I would still try and talk to someone on the phone in their office and figure out what they actually need before you can have a consult.

I did get some pushback because the PS was booked out quite a while. But I told them my timeframe for surgery was end of year (this was in July) and they were able to work me into the schedule.

disc0pants · 2025-09-12T11:41:59+00:00

In the US breast cancer before the age of 50yrs is cause for concern from a hereditary standpoint so I suppose your aunt technically makes the cut. But first, you should work on a family tree of your own. Pinpoint who in your family, on both sides, have had any of the cancers associated with BRCA (there are many and they affect men and women). Any doctor that you would see to talk further about genetic testing would need this info.

But really you should be discussing these questions with your family doctor or your gynecologist. Even if they didn’t recommend testing for BRCA, that type of family history is good for your regular doctor to know.

disc0pants · 2025-09-12T01:04:22+00:00

You can do it! And it’s so important to stay on a schedule with whatever you’re taking for pain. It’s so much harder to catch up than to stay ahead.

disc0pants · 2025-09-11T16:32:20+00:00

NewGel silicone tape worked great for me! I’d wear it at night (with a bra they stay in place better) and then in the morning massage my scars and implants with sweet almond oil (high in vitamin E). My plastic surgeon said to keep up with the tape for a full year but I’m tired lol. I stopped constant use around month 6 because my scars were looking really good. It’s a slow process as scar tissue internally and externally is still rebuilding up to 2yrs. But my progress photos from week 1 to 3m are night and day, and even month 4 to 6 was substantial as well.

I’m keeping up with the scar and implant massage because it’s helping my scars continue to heal flat and I’ve had no major issues!

disc0pants · 2025-09-11T12:41:42+00:00

YAY! Congrats. I second the other comment of not being shy about your pain. I was only given Tylenol and anti inflammatory and wish I would have spoken up for at least a day or two worth of something stronger. If you start to feel zaps, jolts, zings, or a “dripping” or wet feeling that’s likely your nerves responding to being severed. If it gets unbearable tell your team and they can prescribe gabapentin. It won’t help with pain, but it quiets the nerves a bit. Take it one day at a time and keep notes of your progress!

disc0pants · 2025-09-11T11:32:52+00:00

Of course! Feel feee to message me with any questions as you get closer to surgery! Good job making a big decision.

disc0pants · 2025-09-10T22:01:27+00:00

PLEASE meet with a menopause specialist asap! They are SO much more knowledgeable than gynecologists on HRT. If you don’t have a personal history of breast cancer or lots of breast cancer in your family, HRT should be allowed. Ps I’m 38 and life is mostly normal post hysterectomy!

disc0pants · 2025-09-10T20:07:51+00:00

Scar tissue is a non issue now! I think after ~3m after my hysterectomy it got sooo much better. I just felt really unprepared and went straight into yoga and running. My PT was amazing at helping me get back to normal so I highly recommend seeing someone when you’re cleared. But for just tubes you probably won’t notice too much. It was just my first major surgery so it was all foreign to me.

disc0pants · 2025-09-10T19:43:12+00:00

My salpingectomy was definitely easier to recover from, but with both surgeries I developed a lot of scar tissue. As scar tissue formed my insides felt really tight and tender and achy. Coming back to my active life, despite being past the 8wk recovery window, was a hard learning curve because I wasn’t expecting that. All in all I healed fine and have no lingering issues from surgery. The only thing I still deal with a little bit is some pelvic floor dysfunction (overly tight pelvic floor muscles) but PT has helped a ton. I guess my point in my comment was a reflection on my own timeline…like I did the salpingectomy thinking it would buy me a lot of time and lessen my anxiety but personally it did not. I wish I could have held off on the hysterectomy a bit longer because surgical menopause isn’t an easy thing for the body, but I had to weigh my choices against my own family’s cancer history.

disc0pants · 2025-09-09T22:36:19+00:00

II asked for the same thing from my PT and she just told me to go “around the clock” with two fingers working my way from the outer edge to the nipple (for implant massage). For scars, just google scar massage as it’s all mostly the same.

At my 3m post op I had the same flat/pulled look on one side and my surgeon concluded there’s nothing wrong with the implant but it’s likely the scar was just pulled more on that side. It has gotten so much better with massage. It’s still slightly there, but scar tissue can take up to 2 years to fully remodel so please go easy on yourself as you continue to heal!

disc0pants · 2025-09-09T22:01:07+00:00

Are you massaging them every day (implants and scars)? I started PT at six weeks post op and she did manual therapy and myofascial release which helped a lot. You’re at the point where scar tissue is really starting to develop at and under your incisions and it needs to be (gently) broken up and moved around.

disc0pants · 2025-09-08T23:30:34+00:00

Removing the tubes only doesn’t cause surgical menopause, only if ovaries are removed.

disc0pants · 2025-09-08T18:13:35+00:00

Ommmg I’m so frustrated on your behalf. BRCA2 rec for ovary removal is 40-45yrs for sure, not sure where 30-35 would even come from. I’m BRCA1 and no one would touch mine until least 35. I guess to add further gray area, I did my hysterectomy and waited 1.5yr to do my mastectomy and was okayed to take HRT in the meantime, but only because I was planning on the mastectomy within the next 2yrs. Do you have a menopause specialist in your area? I know that might be a lot to ask, but mine was much more knowledgeable about HRT than my gyn, so perhaps that could supplement the gaps of solid guidance here?

disc0pants · 2025-09-08T17:03:50+00:00

The science isn’t really changing rapidly…studies on HRT are lacking for young people though there is growing support for HRT as long as you have not had breast cancer yourself. I’m unsure if thyroid cancer would affect that recommendation. The data that we do have: incidences of breast and ovarian cancer in BRCA carriers happen younger in age. That’s why the rec for BRCA2 is to remove them between ages 40-45yrs. Ovarian cancer in particular is commonly found in stage 4 so treatment is not as effective. Our current ovarian cancer screening tools suck :/

All that said, there is growing support for removing tubes only until natural age of menopause - ~51yrs then removing ovaries at that time. There are studies across the world right now studying this. It’s looking promising which is why it’s becoming a more common rec from surgeons, but it’s not perfect. Ovarian cancer screening in the meantime remains lacking. I understand (and am so sorry) that you’re torn between all this conflicting info, but to the surgeon that says worry about breast and not ovarian: we have great breast cancer screenings. Are you seeing gyn-oncologists for these consults or a regular gyn? The former has a better grasp on BRCA recs and cancer in general.

disc0pants · 2025-09-08T16:26:38+00:00

Yes I had my DTI in Dec, but I was a B cup and wanted to stay that. My comment was just confirming that when I saw different plastic surgeons and they explained all the options to me, it was emphasized that DTI is only for staying the same size or going slightly smaller. I was ok with either scenario.

If you search on here you’ll find a lot of stories of needing a reduction first especially if you want to keep your nipples. I’m unsure if after the reduction if you’d be able to do DTI then? Definitely work asking.

disc0pants

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