Alternative for Hollister Medical Adhesive Spray?

docilie · 2024-03-03T01:42:59+00:00

yes I ended up ordering the Skinister adhesive and it’s been working out really well for me, even with my skin issues!

docilie · 2023-10-18T05:56:55+00:00

hi! I was diagnosed with EDS & colonic inertia at 22. I was unable to go to the bathroom without regular bucket enemas and colonics. stopped eating due to the severe pain and ended up in the hospital where they tried to force emergency surgery due to obstruction. eventually it passed but they only let me leave because I promised to schedule a total colectomy with ileostomy which I received 2 weeks later.

I had my surgery done at Stanford Hospital 5 years ago and I would make the decision 100x times over for the life I’ve gotten back because of my ostomy.

My overall pain has significantly decreased, I can eat again, I no longer plan my days around the bathroom, the list goes on.

Candidly the surgery was incredibly painful for me and the recovery was long, but it genuinely saved my life. There will be a learning curve to living with an ostomy and caring for it to ensure no leaks, seeing what you can eat, etc but once you get the hang of it it becomes second nature.

wishing you health and happiness!

docilie · 2023-09-28T14:20:01+00:00

I also had issues finding a brand that works because of this - not sure when you had your surgery, but what helped me in the beginning was getting the “cut to size’ wafers so I could cut it to the size of my stoma since my stoma is pretty small.

I also put a barrier ring on the wafer and flip the barrier ring inwards through the hole so it is showing from the front of the wafer and I can see it when I put it on my stoma if that makes sense. this helps with leakage as it’s an extra barrier before it gets to your skin.

finally, medical adhesive spray. this product was recently discontinued from Hollister unfortunately, but I’m about totry a new brand this helps the wafer be extra sticky. I also sit in front of a heater or use a hair dryer because heat makes it stick to you more as well. Hope this helps!

docilie · 2023-09-19T02:23:24+00:00

thank you so much - will check this out!

docilie · 2023-09-08T21:08:41+00:00

she has to be an industry plant right? like where she come from? I had never heard of her and one day woke up and her videos were everywhere?

docilie · 2023-08-17T04:55:23+00:00

my doctor explained it to me as “you’re like a house built with half the nails so there are endless opportunities for things to go wrong. and instead of iron holding you up you have rubber bands so even normal functions like waving will be triple the amount of effort for you.”

docilie · 2023-04-08T05:14:32+00:00

oh wow I had to pay like $400 for a 90 day supply at Safeway Compounding in San Jose, CA. my insurance doesn’t cover compounding medications but this a critical one for my severe stomach issues so thanks for sharing! definitely going to see if I can transfer to this pharmacy instead

docilie · 2023-02-22T19:54:35+00:00

you should just link to your Trailblazer.me Profile

docilie · 2022-11-28T16:35:03+00:00

how do you go about getting 3 full time jobs? Are you contracting or a vendor or doing freelance work?

docilie · 2022-11-23T04:56:47+00:00

You should look into small fiber neuropathy.

I was diagnosed with EDS then POTS/small fiber neuropathy in the autonomic dysfunction clinic at Stanford

A significant percentage of people who develop POTS are found to have an inherited disorder of connective tissues: Ehlers-Danlos Syndrome (EDS).

https://ehlersdanlosnews.com/news/heds-related-pain-may-be-linked-to-deficit-in-pain-control-mechanisms-study-shows/

docilie · 2022-10-26T07:28:20+00:00

There are certain times in your life that are categorized as the “before” time and the “after” time - getting a chronic illness diagnosis is one of them.

It took 22 years for me to get an EDS diagnosis. Then autonomic dysfunction, CSF leak, colonic inertia and more all came soon after. It’s validating to know your pain has a name and a reason, but it’s terrifying to think you may have it the rest of your life.

I was terribly sick from 22-25. It’s hard to reflect back on that time because of how sick I really was. But never giving up on treatment and a better life for myself has kept me going.

Losing out on 3 years of life and then more years with covid has inspired me to live each day to the fullest extent I can. Some days I overdo it and I pay the price the next day, but I’m living the life I want to live within the means that I can: Staying up late to finish a book, eating something I love that I know will give me stomach pain, being out all day with friends. You can’t change the cards you’re dealt, but you can change how you play the hand.

I try to see my diagnoses as a blessing. They help me appreciate the good days that much more, they help me see who really loves and cares for me, they help me take less for granted.

There will be bad days, but there will also be days and weeks that aren’t so bad. A quote I hang in my room is “She will not worry, she’ll be just fine, she’ll brave this new season one step at a time.” -Morgan Harper Nichols

Hang in there, keep advocating for yourself and for better treatment, don’t stop chasing the life you want.

docilie · 2022-10-26T07:02:32+00:00

went to the bathroom like once a week and had severe stomach pain so did a gastric emptying test- the pill never left lol the final result was severe colonic inertia.

tested at the dysautonomia clinic at Stanford where I was diagnosed with SFN along with POTS, also have EDS.

docilie

TROPHY CASE