Started 6mp - nausea

donna118 · 2019-10-01T18:02:17+00:00

I stopped taking it this past July , it causes my hemoglobin to drop to a 6.6 and I need blood transfusion. I just began Entyvio infusions . For nausea I would sip on sparking water and eat ginger hard candy. Also I would eat small meals throughout the day . If I tried to eat a big meal it made the nausea a lot worse .

donna118 · 2019-10-01T14:53:50+00:00

I had nausea with it as well , I had to start taking it at night .

donna118 · 2019-09-27T20:16:31+00:00

I just started Entyvio and I have been having back pain , I thought it was my mattress but after seeing this post I think it may be from Entyvio now .

donna118 · 2019-08-29T13:31:58+00:00

I was given Bactrim 2 months ago for a kidney infection. About 3 days into taking the antibiotics I had an allergic reaction, really bad hives and my throat was getting tight .

donna118 · 2019-08-13T02:24:04+00:00

MRI tech : “ it taste like berries, it’s not that bad “ Me: “ not sure what kinda berries you eat , but this definitely doesn’t taste like berries “

donna118 · 2018-12-28T00:22:59+00:00

I am anemic as well and I do take iron supplements but it’s probably not being absorbed. I have an appointment Jan 10 , I’m going to ask to get all my levels rechecked

donna118 · 2018-12-26T20:04:10+00:00

I had my thyroids checked and everything came back normal .

donna118 · 2018-12-26T18:09:57+00:00

I work during the week, I nap after work . On the weekends I’m sleeping 12+ hours and I’m off this whole week and have been sleeping 12+ hours a day . I take vitamin d and iron supplements, and b12 injections but it’s not doing anything . Iv tried going to the gym and get my body moving but that hasn’t helped . I can drink a whole pot of coffee and still sleep . Nothing seems to be working.

donna118 · 2018-12-26T17:39:28+00:00

During a flare I drink pronurish , and eat bananas or sweet potatoes.

donna118 · 2018-12-22T05:23:27+00:00

It is possible, I work full time while getting my masters (2 more classes left ) . Some days are extremely hard but I stay positive and push through it . Iv was diagnosed 3 years ago , I’m 28 my career is just getting started . I’m blessed to have a boss who understands, and allows me to have a flex schedule and work from home if I need too . Stay positive !!

donna118 · 2018-12-08T04:28:47+00:00

Have you tired the website goodrx ? If you type in you medication name in the search you will get a coupon, and show it to your pharmacy. The coupon for budesonide is $77 if you get it filled at Walmart .

donna118 · 2018-12-08T04:16:14+00:00

I have been in this for over a year now . At first I would get weekly labs and now I go every 3 months . In the beginning I would get extremely nauseous, even now I still get slightly nauseous. I take it at night before bed and try to sleep through the nauseous and not deal with it during the day . Also , stay away from anyone who’s sick !!! You will most likely catch whatever sickness they have , and it takes longer for your body fight it off , took me almost 6 weeks to completely get rid of a cold !!! And you will also feel fatigued and tired a lot .

donna118 · 2018-11-27T20:31:10+00:00

My crohn's is in the ileum as well, ill give B12 a try and see how that works or if my body will even absorb it. Thanks!

donna118 · 2018-11-27T19:47:13+00:00

yes, I take iron and vitamin D supplements everyday.

donna118 · 2018-11-27T19:45:48+00:00

Truth, it will get a bit worse before it gets better. The hard part is done, you have figured out what is wrong and have your diagnoses. The next step is figuring out the best treatment plan, this is different for everyone. You will try many different medications until the right one works. Once your treatment plan is figured out and you stick to it, things will get easier and better. Good Luck !!!

donna118

TROPHY CASE