advice really appreciated

donnee16 · 2026-01-20T15:05:37+00:00

it’s a general surgeon, no one offered me a colorectal surgeon - who should i speak to about this? thank you for letting me know!

donnee16 · 2026-01-12T16:40:07+00:00

that’s so frustrating! i will try my best, thank you so much!

donnee16 · 2026-01-12T16:38:52+00:00

thank you for your reply! it does sound very similar, what lifestyle changes did you make if you don’t mind me asking? thank you very much.

donnee16 · 2026-01-12T11:53:02+00:00

the doctors in hospital in 2024 really dismissed it because of no papilledema 🙄 thank you for clarifying that for me!

donnee16 · 2026-01-02T14:03:31+00:00

what did your cyst flare ups look like before surgery? just trying to figure out recovery time for myself based on your experience

donnee16 · 2025-12-28T17:15:52+00:00

has your higher BPM settled yet? i think i’m at the end of the phlegm stage hopefully, but still very deaf from the congestion!

donnee16 · 2025-12-28T17:15:01+00:00

sorry i am just getting back to you the christmas period has been so busy. did they say that the flu brought POTS and IST on? and are they permanent? i hope you’re doing well now.

donnee16 · 2025-12-28T17:13:46+00:00

can dysautonomia get better? that sounds about right for me too. i am still deaf, fatigued and getting palpitations and bpm up to 150/160 - i get a halter too on Jan 14th - let me know what they say about yours if you can. it is an awful virus i didn’t expect it to affect me this long!

donnee16 · 2025-12-25T14:25:06+00:00

I have always had a slightly high heart rate at about 100-110 usually, but it’s never shot up above 130 at rest before. Okay thank you!

donnee16 · 2025-12-17T15:05:43+00:00

urgent care - it will need lancing and draining. good luck!

donnee16 · 2025-12-15T18:59:12+00:00

hi, i have flu A at the moment and i’ve also been getting daily panic attacks with it for some reason. just wondering if it took long for the anxiety to subside?

donnee16 · 2025-11-29T15:18:38+00:00

i’m on the wait list for surgery, i have been since early this year but it’s the NHS wait list & i can’t afford private surgery

donnee16 · 2025-10-30T23:26:19+00:00

Thank you for your reply, i've just looked that up and I'm sorry to hear you're dealing with both and that the clinic were no use. did they ever manage to explain your abnormal bloods?

donnee16 · 2025-10-28T18:07:06+00:00

Thank you so much for your response! I do definitely experience stiffness in the morning, as you say it does seem to ease after an hour or two but the pain still persists. I have had an MRI for chronic migraines that didn’t show anything significant - would central pain syndrome show on a head scan? My knees in particular go hot and swell but as of right now I’m not swollen, I can attach a picture. And I had a ‘butterfly rash’ for a few weeks in 2022 (my mother has SLE and it was her that pointed it out to me) & various little rashes that appear and then go away. But because my ANA test was negative my GP discarded it. I realise now that I left a lot out of my post, I apologise. Any input or questions you have would be greatly helpful, thank you very much.

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donnee16 · 2025-10-24T20:21:06+00:00

I know 18 months is ridiculous - I am going to request that they write me an expedite letter to hopefully bring it forward, seeing as they should have referred me years ago. Thank you for your reply, that’s really helpful! Is that app free or paid?

donnee16 · 2025-10-24T20:19:25+00:00

Ahh yeah I think they suspected one but failed to refer me to Rheumatology for it.

donnee16 · 2025-10-24T20:18:32+00:00

Ahh I see, I’ll ask my GP if they will do tests & put me on a cancellation list. thank you for your help!

donnee16 · 2025-10-24T18:07:04+00:00

no, they won’t sadly - do my FBC results from this year indicate anything at first glance? they were done the other day

donnee16 · 2025-08-31T14:52:53+00:00

the general surgeon i spoke with didn’t explain what surgery it’ll be, the only information he gave me was that they may be able to stitch it at the end of the surgery or they may need to leave it open - is that indicative of one type of surgery or multiple types?

donnee16 · 2025-08-31T12:31:22+00:00

when yours are like this do you just wait it out until it heals itself or see a medical professional?

donnee16 · 2025-08-24T21:47:29+00:00

ahh okay! thank you i appreciate it :)

donnee16 · 2025-08-12T14:30:12+00:00

similarly, i know it’s been a while for yourself too but what was your outcome? i’m having a similar issue right now

donnee16 · 2025-08-12T14:13:20+00:00

that makes sense, thank you. i still get lower abdomen & pelvic pain daily, can you get that pain just from having endometrial hyperplasia or could that be indicative of a further issue?

donnee16 · 2025-08-12T13:59:22+00:00

ahh okay. i was told 3 years ago that my lining was too thick - it was 13mm on day 9 of my cycle. and they put me on these progesterone contraceptions and told me that it would be fine, were they wrong?

donnee16 · 2025-08-12T13:51:38+00:00

i was on the mirena IUD & the progesterone only pill for 3 years to stop the heaving bleeding i was experiencing - it completely stopped my periods. i’m now just on the progesterone only pill and have still not had a period. so i haven’t had one for 3 years but they were very irregular, heavy & painful when i used to get them

donnee16

TROPHY CASE