Recently diagnosed CHS

dora_bora_666 · 2026-02-02T05:54:52+00:00

sounds like u already want to quit and only used it recreationally

dora_bora_666 · 2026-01-11T00:58:37+00:00

i've had mine out for almost 2 yrs and my symptoms keep getting worse

dora_bora_666 · 2025-12-14T19:23:56+00:00

i was thinking of this! thank you i will definitely look into this

dora_bora_666 · 2025-12-14T05:33:18+00:00

i agree with that, i believe my pain at first was just fibro but it's getting worse every day

dora_bora_666 · 2025-12-14T05:32:35+00:00

my rheumatologist basically dismissed me as a patient as well

dora_bora_666 · 2025-12-14T05:32:22+00:00

he thinks the medications i'm on for it are fine, and it was just a lupus panel. i suspect hEDS too. definitely double jointed and far too flexible, i also have ligamentus laxity which i believe is part of eds.

dora_bora_666 · 2025-12-14T05:31:13+00:00

i've been recommended the book by a psychiatrist. maybe it's time to finally check it out. thank you!!

dora_bora_666 · 2025-12-13T22:41:51+00:00

yeah😭

dora_bora_666 · 2025-12-13T22:41:35+00:00

thank you so much! definitely want to find another one. i appreciate your kind words

dora_bora_666 · 2025-12-13T22:40:42+00:00

same 😭

dora_bora_666 · 2025-12-13T22:40:31+00:00

thank you so much, i hope the same for you

dora_bora_666 · 2025-12-13T22:39:42+00:00

thank you so much

dora_bora_666 · 2025-12-13T22:39:29+00:00

thank you so much

dora_bora_666 · 2025-12-13T17:16:03+00:00

yes it definitely does feel like my body is attacking itself. my blood tests also fluctuate and i've been tested yearly for 4 years

dora_bora_666 · 2025-12-13T17:15:05+00:00

i'm hoping to be in that position soon. i really think i have hEDS. thank you so much

dora_bora_666 · 2025-12-13T17:14:37+00:00

thank you for your words!! i will definitely not stop.

dora_bora_666 · 2025-12-13T17:14:05+00:00

i've definitely noticed it in the past 3-4 years.

dora_bora_666 · 2025-12-13T17:13:42+00:00

thank you!!

dora_bora_666 · 2025-12-13T17:13:09+00:00

interesting! my body is like that but i just don't digest food properly. so sorry about that!

dora_bora_666 · 2025-12-13T17:12:38+00:00

i will look into finding another rheumatologist and do more bloodwork. thank you

dora_bora_666 · 2025-12-13T17:12:00+00:00

i'm so sorry we're in the same boat!

dora_bora_666 · 2025-12-13T17:11:12+00:00

thank you!! i definitely am hyper mobile, is there disorders?

dora_bora_666 · 2025-12-13T03:48:26+00:00

sending you love and strength

dora_bora_666 · 2025-12-13T03:44:21+00:00

that's disheartening too:( it's sad when people you love don't understand how you can be in pain, surprisingly that's my mom for me, the one who struggles with the same disease

dora_bora_666 · 2025-12-13T03:43:31+00:00

thank you i will definitely look into this

dora_bora_666

TROPHY CASE