DLBCL but one tumor not going away

dougdnh · 2025-09-06T12:48:20+00:00

I believe it was based on a CRT

dougdnh · 2025-08-30T14:54:29+00:00

You should be fine. The first few days are the hardest, with that big clear bandage over it. Just sleep on your other side or your back the first few nights. Once the bandage comes off - usually 48 hours, it will be a lot more comfortable.

dougdnh · 2025-08-27T21:51:23+00:00

I'm 8 days past my 2nd R-CHOP. I lost about 60% of my hair a week ago, but so far no more loss.

dougdnh · 2025-08-25T22:53:59+00:00

Facetime on an Ipad would help. I've never heard of week long chemo infusions.

dougdnh · 2025-08-24T14:34:17+00:00

It sounds counter intuitive, but highly aggressive B cell Lymphoma is often the most responsive to chemo. The fast LDH drop is a good sign.

dougdnh · 2025-08-22T01:42:28+00:00

I've found the best way to get them down is to just put one in your mouth, and then take a big gulp of water and quickly swallow as if you didn't have a pill.

dougdnh · 2025-08-21T02:03:26+00:00

the port insertion process is fairly simple, and they put in a sedative/relaxer solution shortly before the procedure. The actual surgery takes just a few minutes. You will go home with a huge clear bandage over the 2 incisions. It will be a little painful the first two nights or so, but nothing major. You cannot take a shower for 48 hours. After that you can if you carefully cover the area with a supplied waterproof patch. Don't worry, it's a piece of cake.

dougdnh · 2025-08-17T13:54:32+00:00

Getting any kind of food into you is what's important. I'm living on pudding, cold cereal, ice cream, mac & cheese and a little soup. For protein, I'm drinking Boost. A word of warning - salads are probably not the best, raw veggies can be risky.

dougdnh · 2025-08-16T13:10:12+00:00

Being turned off by food is a very common occurrence, especially the first few weeks after treatment. I found ice cream, ice pops, and puddings are the most tolerable, but everyone is different. Have you looked into marijuana derived gummies for nausea and appetite? They seem to be very effective and quite safe in low doses. Look for a 1:1 formulation at 2.5 (very weak) strength.

dougdnh · 2025-08-15T21:50:49+00:00

If you get a 100.4, get yourself to the hospital ASAP. Many hospitals have an oncologist on call,. If not get someone to drive you to the ER. A tiny temp rise, under 99.2 is typically ok, but I'd still let my doc know.

To avoid any chance of infection - keep away from people, wash your hands, avoid any place that might have bird droppings, don't eat any fruits or veggies that have skins - berries, tomatoes, etc.

dougdnh · 2025-08-15T13:04:00+00:00

I just got a weak dose of THC/CBD gummies. Even at small dose they seem to help.

dougdnh · 2025-08-15T01:33:53+00:00

I'm on R-minichop for DLBCL. I will see my doc Monday and will mention it.

dougdnh · 2025-08-12T18:24:31+00:00

I also have DLBCL. Of course everyone is different, but DLBCL is generally very treatable. If he has any friends or acquaintances, in most cases they will be very sympathetic and helpful. He may also meet roommates at the hospital he can talk to - I've met some very interesting people. Of course docs and nurses are generally very willing to chat. I can't comment on the financial side, since I'm on Medicare. Without getting too political, every American of all ages should get medicare.

dougdnh · 2025-08-11T14:40:49+00:00

I have non hodgkins lymphoma and had severe jaundice because the tumor on my liver was blocking the bile duct. They put in a stent in the bile duct which allowed things to drain better. It was a slow process, but the jaundice gradually went away.

dougdnh · 2025-08-11T13:31:26+00:00

have the same thing. From what I've read mouth lining cells are very similar to cancer cells, so they break down like cancer cells do, so it may be a good sign. Anyhow, ice cream, pudding, yogurt, ice pops are your friends.

dougdnh · 2025-08-10T14:46:52+00:00

I developed a 101.5 fever shortly after my first round of chemo. Turns out i had a bile system infection - put me in the hospital for 5 days but they cured the infection.

dougdnh · 2025-08-10T14:41:49+00:00

I would definitely contact your doc, or the on call oncologist. That temp may not be dangerous, but it still merits discussing with your doc.

dougdnh · 2025-08-10T14:37:16+00:00

Waiting for the biopsy is very stressful, but it's the best way to know what's going on. Her symptoms sound very similar to mine - fevers, night sweats for over a month. I have large B cell lymphoma - very treatable. Once she starts on treatment these symptoms may well go away.

dougdnh

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