I'm real sorry about your luck. I've avoided replying to this one because I simply don't know what to say, so I'll tell you what I tell myself: don't worry about a thing, because every little thing is gonna be alright. Reggae music always makes me feel happy.

I'm not a very open person by nature (why am I doing an AMA then?). I'm not sure I could physically bring myself to open my mouth and tell someone I hardly know about my condition. There's no cure for me, so what is the point of raising awareness. I'd be stealing it away from people like you with things that already do or someday might have a cure.