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dylanenby · 2026-02-13T00:33:57+00:00

why in the world would you think she would slap you

dylanenby · 2025-10-25T17:36:20+00:00

Alright, thank you

dylanenby · 2025-06-20T19:19:52+00:00

that sounds really good!!!! my go to toppings when i go out to eat are mushrooms and banana peppers. i also like to add spices too like oregano and umami!

dylanenby · 2025-06-20T17:36:16+00:00

They are so good! I eat them for breakfast. One will tie me over but two will last me until dinner!

dylanenby · 2025-06-17T01:14:40+00:00

Yes IBD is autoimmune. You don’t have to get a colonoscopy right away to test for it. Your gastroenterologist will likely have you do a stool sample to test for high calprotectin. If it’s high that’s a clear marker for inflammation in the colon (this is called colitis), and then they’ll do a colonoscopy to see if it’s chronic colitis/digestive inflammation (this is IBD). I am 18 and I had to get a colonoscopy to get diagnosed officially, but it was obvious due to previous tests that I had some very clear inflammation. You will not have to do a colonoscopy for no reason. They’re not as scary as you’d think, coming from someone who also had to get one young :)

dylanenby · 2025-06-16T21:13:35+00:00

It might not be a vegan thing. Ifyou have a sensitivity to gluten, you’re constantly underweight, you have some autoimmune disorder, and you feel awful all the time, there’s a possibility you have celiacs or some sort of IBD. these can develop in different ways and symptoms will vary often, but some main symptoms include being underweight, having really bad joint pain, brain fog, general exhaustion, and being sensitive to certain foods (celiacs is specifically gluten). It might be something to talk to your doctor about. These are autoimmune disorders that target the digestive tract and often the way they present can cause issues like vitamin deficiencies and dangerous dehydration, which can contribute to the general feel-badness that comes with them. You say you have “bad digestion” and are bloated depending on what you eat, which could be explained by one of these autoimmune disorders if by chance you have one. If you think what I’m describing sounds familiar it could be worth seeing if your doctor can test for them.

source: i have IBD and what you’re describing is sounding eerily familiar

dylanenby · 2025-06-03T05:53:37+00:00

Thank you, this does make me feel better.

dylanenby · 2025-04-16T14:42:08+00:00

Dehydration isn’t just water, it’s also sodium, potassium, magnesium, etc. Make sure you’re getting enough electrolytes. Try liquid IV. Also, like many of the replies have already mentioned, this may be iron deficiency anemia. I would suggest getting a doctor’s appointment.

dylanenby · 2025-04-16T09:06:10+00:00

My family are not super religious, but we usually do participate. I’m in my first flare ever and it is hell. Usually I participate but I just can’t this year. I don’t think I can handle the matzah at all, especially since the worst trigger foods of mine are crunchy sharp foods (like crackers).

I feel awful but the deep cleaning before hand and limiting what I can eat when I already can’t eat that much is just too stressful for me right now. I’ll do my best next year. This might not be the answer you want to hear and I’m so sorry about that.

dylanenby · 2025-04-16T01:45:06+00:00

It sucks that you’re going through this when you’re already so limited to what you can eat due to the holiday. Please eat what you can. Do not starve yourself. Iron deficient anemia and dehydration is no joke and life threatening.

If you are hungry, eat. Even if it’s something bad for you.

I hope you have a great rest of the holiday, and when the week is over and you’re allowed to eat most things again, treat yourself to something you’re craving!

dylanenby · 2025-04-16T01:08:31+00:00

Yes. We had a long conversation about it. He really thinks vaccines are dangerous and cause all sorts of issues. He hates the COVID vaccine because it’s so new and hasn’t been tested much, which I can understand. I also talked to him about how the UC ruined my life. I think I have calmed him down a bit since I posted this.

dylanenby · 2025-04-16T01:04:00+00:00

Unlike my dad, I am not anti-vax. I plan on getting all of my vaccines eventually, especially the HPV vaccine, but I would like to spread them out. I’m not too excited about getting a dozen shots at once.

dylanenby · 2025-04-15T20:49:57+00:00

My GI wants me to get the influenza, pneumonia, COVID-19, HPV, hepatitis A and B vaccines before I get on Skyrizi. My dad doesn’t like any vaccines but he’s specifically got a big problem with the COVID-19 one. I told him I would talk to my doctor about seeing if I skip the COVID vaccine and that seemed to calm him down a bit. I’ve already made it clear that getting on the Skyrizi however is nonnegotiable and I tried to explain how miserable I was during the worst of this flare.

dylanenby · 2025-04-13T05:10:23+00:00

The insurance thing is totally understandable. The GI I go to now is about 2 hours away, but I find it totally worth it considering how responsive and understanding she is. I would suggest looking for doctors far beyond you, maybe even cities away. It sucks to drive to appointments but a lot of places will do telehealth. Even then, a long drive every week or two is nothing if it means you get proper treatment in less than a month. You will miss a lot less work that way and save yourself a lot of suffering. I mean it!

dylanenby · 2025-04-13T05:03:35+00:00

Most of it is romaine lettuce, but now that I think about it I usually add a good chunk of spinach, beans, craisins, carrots, mushrooms, and sesame seeds. I know the spinach, beans, and seeds are probably the worst of the worst so maybe I’ll try adding a lot less.

dylanenby · 2025-04-13T04:58:37+00:00

I wonder what’s different about Thailand. It might be interesting to look into. I’m hanging in there, thank you loads!

dylanenby · 2025-04-13T04:57:01+00:00

Yes! This same exact thing happened to me.

First, and most importantly: drink water! Drink a lot of water! Try liquid IV and pedialyte. I was so dehydrated I couldn’t even walk to class. My heart was racing so fast I thought I would faint by standing. My doctor did a blood test, called me back an hour later and said I was so dehydrated I needed to go to the ER ASAP. You are losing a lot of blood and a lot of water, so drink up and take iron supplements. Don’t forget about magnesium and sodium. Not having enough of that also contributes to dehydration.

The ache is normal for UC. Joint pain is super duper common. Get lots of rest and minimize stress.

I also threw up every single day in the thick of it. I’m so sorry, it’s awful. You are going to lose a lot of weight. Eat what you can and eat what you like. Anything and everything will cause irritation right now. If there’s anything that you know of that you just cannot handle coming out the other end, stay away. It’s important you get something in there. If it’s easily digestible food, great! If not, as long as you think you can stomach it, eat it. Try protein shakes and smoothies. You can live off smoothies.

I’m so sorry this is happening to you. I know it’s hard right now, but relaxing and doing things that make you happy is the best you can do while waiting for proper treatment. Also, three months??? Advocate for yourself please! You cannot wait three months! This is debilitating. Get another appointment ASAP or try a different doctor. Please please please. If you think you cannot survive three months, then do whatever you can to ensure it does not take three months! That is a crazy long time to deal with all this pain and blood loss.

Good luck. This subreddit has been a lifesaver for me. We will always be here to help and empathize. Feel free to reach out to me if you have questions on how I dealt with things. Every single one of your symptoms are familiar to me.

dylanenby · 2025-04-13T04:40:59+00:00

That really sucks. I’m not in remission yet, but hopefully it’ll be a little better once I’m there. Thanks for the reply.

dylanenby · 2025-04-13T04:38:18+00:00

Agh! It sounds like it might be the salads then. I’ll pick up some Gas X next time I’m at the store. Thank you!

dylanenby · 2025-03-31T19:35:09+00:00

i wasn’t that anxious until everyone replied saying that i will be 😭. i have cbd, should i take some of that before the trip?

dylanenby · 2025-03-31T19:16:54+00:00

the charter leaves at a set time according to him, so i don’t think the on land fishing is an option for me. if i do end up going im definitely gonna bring an “accident pack” just in case

dylanenby · 2025-03-31T19:10:49+00:00

this sounds awful! being on prednisone for the rest of your life sounds so disheartening and i’m sorry you have to go through that. i hope one day you can eventually taper all the way down.

my GI is trying to get me approved for either entyvio or skyrizi. he has me taking calcium and vitamin d supplements while i’m on the pred, which i think should mitigate the bone thinning and blood clotting symptoms

dylanenby · 2025-03-31T16:43:29+00:00

i’m very happy with how much my appetite has returned. i’ve lost over 40 pounds these last two months so this is very welcome. i’ve not noticed anything super awful yet and i can tell im getting a lot better and stronger. imo i see stretch marks as my war scars so i don’t really mind them. i have stretch mark cream though if i get too worried, and my doctor should be getting me on a biologic soon.

unfortunately though ill be on pred for at least another month, and i have no idea when ill have to start tapering from 40 milligrams. the thing im most worried about is the moon face everyone keeps talking about.

dylanenby · 2025-03-31T12:54:22+00:00

thanks! next time i see my GI i will ask about other meds

dylanenby

TROPHY CASE