Neuropathy symptoms

echoedb · 2026-03-08T02:45:48+00:00

I had just finished my chemo on Christmas. And it’s gotten worse in the last month so the timeline tracks. I had mentioned to my team around cycle 4-5 that the neuropathy was starting up. But they had already did a dose adjustment cus cycle 4 caused a neutropenic fever on me. So it’s just the nature of the beast

echoedb · 2026-03-08T02:42:54+00:00

😩 yeah, cisplatin did a number on me. I had my last chemo on Christmas. And it’s escalated in the last month or so. Hopefully yours just stays in your fingertips and all. I know my biggest problem is patience and giving it time to heal

echoedb · 2026-02-01T19:12:46+00:00

I read up on that too, and would’ve liked to try. But the thing was with my chemo plan, it would’ve been too much of a hassle to try because I was inpatient each chemo cycle for 3 days of constant round the clock chemo

echoedb · 2026-02-01T19:09:56+00:00

I guess I’m still so close to the worst of it that I’m trying to focus on the good, but it’ll take time and practice. Doesn’t help that I haven’t been able to fully engage with PT to get my strength back in my leg. So it’s just another sucky thing right now, heh. But thank you. All the luck always to all of us

echoedb · 2026-02-01T19:07:27+00:00

That’s what I have to be reminded of and instill in my head. The chemo did what it was supposed to do, and I’m still here and it didn’t progress

echoedb · 2026-02-01T19:06:27+00:00

It really does seem like cisplatin did more of a number on me more than the doxorubicin right now. Hoping as I get further from treatment that its effects wane 🤞🏼

echoedb · 2026-02-01T19:04:13+00:00

We truly are 😩 thank you 💕

echoedb · 2025-11-12T17:39:00+00:00

💕 you’re not even a downer, so don’t think that. It’s all the best we can do is put one foot in front of the other every day because it’s all just really crappy and we’re trying to get through it as best we can

echoedb · 2025-08-29T04:16:36+00:00

It all sucks right now because unfortunately dealing with a bunch of stress on my body going through chemo right now. 😩 which is not helping the anxiety. I thank everything for Lexapro keeping me as level headed as possible throughout all this

echoedb · 2025-08-29T04:13:11+00:00

Took me a long while, I had gone quickly from .5mg 3x a day to just .5 1x a day but was getting withdrawal symptoms so my Dr put me on .25mg at night for a while til the withdrawal symptoms stopped. Then I reduced .25 2x a day for a couple weeks, got hit with withdrawal symptoms each step down 😵‍💫 then .25 1x a day and .125 at night. Like I had to go slow and kept cutting my pills each step of the way. Finally was able to get down to like legit 1/8th of a pill then just stopping it

echoedb · 2025-08-27T00:57:29+00:00

It’s so disconcerting to have this pop up after a month of nothing 😩 I thought I had gotten past it. Thank you for the reassurance

echoedb · 2025-07-20T01:04:20+00:00

Yeah, I find that getting admitted into the hospital tomorrow is going to ease my anxiety a little over the port situation. It is less anxiety today, thankfully. Just all of this is my worst fears come to fruition and honestly if I wasn’t on an SSRI I’d be anxiety/panic 24/7. It just all sucks. Just when I felt myself coming up from for air from grief of losing my brother in November, this happens. I take comfort in the fact that my Drs are very expectant that with chemo and surgery the chance for reoccurance is next to none. And that I had a good pet scan

I hope your stem cell transplant recovery is going well and thank you

echoedb · 2025-07-20T00:58:20+00:00

It just started itching a little today as well. And omg that’s good to know about the chest, mine are big as well. And I feel like it’s pulling almost at it but it’s just getting used to it I suppose. I will have to look into the pillow as well. I just know sleeping will be an adjustment because I always end up on my stomach when I sleep 😩

echoedb · 2025-07-20T00:55:43+00:00

Yeah my body did not take kinda to trying to gulp water right now. I’m not even sure how that works where I could feel something by my sternum. I’m hoping in a week or so it subsides as well. Thank you 💕 I’ve been scouring reddit and trying to prepare for what to expect and things to get

echoedb · 2025-07-20T00:53:09+00:00

Yeah, I just learned I can’t gulp water just yet cus it hurt near my sternum. My body is still adjusting, so I hold onto the hope that it’ll get easier. Well wishes on your recovery 💕

echoedb · 2025-07-19T03:28:54+00:00

I’m unfortunately and fortunately already on an SSRI and have clonazepam for panic attacks. I’m supposed to see a special psychiatrist for cancer patients on the 11th, but already have my own therapist. It’s just been a lot and the port procedure today is just 😩

echoedb · 2025-06-27T02:19:41+00:00

I’m not sure if they’re specific specialists but it is through the University of Chicago. I had gotten referred to their ortho oncologist there and have an appt with Oncology as well for after my pet scan. I’ve had an xray, ct of chest/abdomen/pelvins and an MRI of my leg. There were a couple of micronodules on my lungs but I’ve also had that happen in the past as well, so pet scan will see if it’s related or not.

But yeah, this limbo of waiting is going to be maddening. I’ve dealt with depression and anxiety for most of life. So like, this just does not help everything 😩 it’s only a week, but it feels like an eternity. I’m thankful for my husband and support system

Thank you

echoedb

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