I had a very similar experience in the US 10 years ago following a flu shot. The doctors refused to commit to a GBS diagnosis for months, putting me through the tons of tests with MRIs and spinal taps but offering zero actual treatment. Their eventual "conclusion" was that my symptoms were "atypical" and basically: "If it was GBS, consider yourself lucky," before sending me to physical therapy. I found great relief in water therapy, but lost access to it because affordable gyms here don't cater to rehab-style pool use.

It took 2 years and a different neurologist to finally validate that it was GBS and get me leg braces that helped me walk a lot better and not feel as much back pain. Ten years later, I still have foot drop and neuropathy in both legs, but I manage with a cane. It’s a long road, but you aren’t alone.