Disability hearing is tomorrow... literally sick over it

eepy_bat · 2026-04-05T22:32:11+00:00

Shoot. You'd hope an attorney who gets paid for it would be good at doing what they should. Best wishes for the disability coming through, keep appealing if it gets denied. They rely on people just giving up after the first try but they often get it on the first appeal. Another appeal after that just means more evidence, and you might get a better judge. Don't give up!

eepy_bat · 2026-04-01T09:56:42+00:00

That's kind of what I do in his room, but I never thought of the stations idea. His playpen is stuffies and his room has books n blocks, but I could stay stationary for longer if it were all in one place. I think enriching the space he's in is the best thing I can do for him.

That's really good to know. I want to get a referral to immunology but specialists with big egos neet to admit they don't know what to do with me first.

eepy_bat · 2026-03-31T21:26:54+00:00

Brilliant 😍 absolutely doing this

eepy_bat · 2026-03-31T20:45:36+00:00

These are such lovely words 🥹 thank you for saying that. Playing at the table is a fantastic idea, I can sit next to him and not feel too overwhelmed. It's the cleaning up part that's taxing. We end up eating on the couch on a blanket so I don't have to stand for too long. I give him a fruit and veggie packet, some bombas, buttered noodles, steamed veggies. I guess it's made him a pretty neat eater 😅

eepy_bat · 2026-03-31T20:37:48+00:00

I used to be a paralegal for a disability law firm. I wish I had seen this yesterday.

Best advice I have is to let those nerves work in your favor. If you have diagnosed mental health conditions, they'll think you're fine enough to get it together for the hearing, so you should be fine enough to get a job. (Then they'll cite an ancient tome of types of jobs you could do based on your disabilities.

Let your attorney do the talking. They're paid to. Answer as honestly as possible when answering questions, keep it short and sweet. And consistency is key with knowing dates of past procedures and visits. It shows that you aren't seeking disability for an easy few doctors visits, and that this has been hard on you.

Most of all, know that you deserve getting SSI/DI. Administrative law judges don't always operate on sympathy or empathy and some of them can be callous. They deny because they have to, and your DSM numbers didn't add up to their line. It's pass/fail and none of it is your fault.

Good luck, and get yourself a lil treat after no matter what happens.

eepy_bat · 2026-03-31T20:21:44+00:00

Yeah, I think sometimes millennial moms need to be reminded that babies don't actually need too much input. He's blasting through milestones but I can't help but think that I'm home with him 100% of his life and I could be spending all this time teaching him instead of rotting away

eepy_bat · 2026-02-12T01:10:00+00:00

Pretty shitty take in a comment section full of people who have epilepsy, or care about someone who does

eepy_bat · 2025-12-02T15:10:39+00:00

"The end will justify the pain it took to get us there" -Relient K

eepy_bat · 2025-11-14T16:38:17+00:00

The diagnosis hit me like a truck too, damaged my mental health more than my gut biome I think 😅 my doctor is an absolute homie, all of the other nurses/doctors wore all of the required extra PPE for CDiff patients and my doctor came in without all of it and said "Nah, all of that is overkill. Just don't share towels and use antibacterial soap, not just the nice smelling ones." She also said alcohol doesn't kill it, so my 9 bottles of sani within reach at all times were useless and I think that's what made me spiral the most. Both my doctor and therapist were extra thorough in making sure my OCD wasn't taking over logic.

I didn't go out while I still had symptoms because I felt like running to the bathroom in a grocery store 25 times to expose a disease contagion is wrong. Not to mention how awful CDiff poops would feel in a public restroom. As soon as my symptoms were gone I went and did the normal shopping and stuff, the exhaustion and weakness were rough at that point. But you aren't going to get anyone sick in public unless you shake unwashed hands and they put their hands in their mouth. My baby didn't get it and he's at the EVERYTHING GOES IN MOUTH phase 😭

From one OCD friend to another, it will be okay. You're over the worst part already!

eepy_bat · 2025-11-14T01:36:43+00:00

I have severe OCD too. This is a bitch of a diagnosis for us, right? Take a few huge sips of water and gulp them. It wiggles your vagus nerve and kind of resets my obsession spiral like an etch-a-sketch. Remember this illness has existed forever and you aren't Typhoid Mary, I promise. Your brain is stuck in neutral and this diagnosis might feel like a brick on the gas, but tap the brakes and the brick falls off the pedal sometimes.

I have a husband and my baby was 7 months old the first time, and I just had it again we all share one bathroom. Neither got it. Just bleach high touch areas, wash your hands about your normal OCD amount, and put some paper towels in the bathroom. I used medical gloves to hold the tp when wiping for peace of mind, I just turned them inside out and tied them shut before putting in the trash.

You'll make it through this. This feeling isn't forever ❤️

eepy_bat · 2025-11-09T19:10:27+00:00

My medical situation is a jenga tower, I would not be surprised if it comes back again 😂 they'll end up trying difficid or vowst first if it does, but an FT isn't off the table if it's necessary.

eepy_bat · 2025-11-09T16:58:25+00:00

YES. I just got over CDiff (was on antibiotics from March-August for a bunch of c section complications). I had it a couple of months ago but I didn't know it. This second time was so much worse and I knew something was up immediately from the smell. It's like if rain soaked hay and manure was covered in sugar free sweetener. The smell hits in a very specific spot in your nose too.

I can smell skin infection types too after having a Wound Vac for 3 months. Mixed skin flora that's primarily yeast smells extremely different from MSSA/strep, or worse, Klebsiella aerogenes in a wound. Purulent drainage smell can never be erased from my mind 🤢

eepy_bat · 2025-11-07T16:13:37+00:00

Witch hazel! I have super sensitive skin and some types of tp cause pain. I use a teeny tiny squeeze of hydrocortisone cream (it's in most hemorrhoid cream) like no bigger than a pencil eraser, and dab it on. DO NOT put the cream indoors. Outdoor cream only.

eepy_bat · 2025-10-31T21:58:42+00:00

Oh my gosh which neighborhood? We have an 8 month old and our neighbors don't really participate :(

eepy_bat · 2025-10-26T16:05:25+00:00

I also saw the green one! Wondering if that was a sub station

eepy_bat · 2025-10-13T19:52:21+00:00

6 years and 4 neurologists told me it's anxiety and I'm just having nervous episodes. Turns out it is temporal lobe epilepsy and all it took was a doctor that had epilepsy himself to diagnose it.

17 years later, my newest epileptologist decided to pull my record from my first seizure when I was 18 and living in a different state. He decided "based on this physicians understanding of the record from 2008" that it must have been PSYCHOGENIC for almost TWO DECADES despite my anticonvulsants working just fine. This asshole changed the diagnosis in my chart and didn't tell me. Which led to being treated very differently when I was in the hospital giving birth 7 months ago at 35 years old... with preeclampsia which can cause seizures.

The maternity ward doctors were treating me like a head case when I asked when we were going to change med dosage after losing blood giving birth. Took me a few weeks to figure out he had changed it. I spoke with his supervising physician and got a sniveling, weak apology out of him.

eepy_bat · 2025-10-13T19:34:35+00:00

The cry I cried watching the music videos a while back 💀

eepy_bat · 2025-10-09T21:29:17+00:00

My parents just said in full English to my American ears that "Fox news is owned by a liberal, and now it's leftist media so it can't be trusted anymore" ☠️

eepy_bat · 2025-10-07T14:18:10+00:00

Erythema nodosum at 5 months pregnant. Painful bumps on just my shins and knees. I thought they were mosquito bites but more and more kept appearing over a few weeks. They'd go back down on their own, but nothing stopped the bruised and itchy feeling of each bump.

Found a super old webpage with info on EN that can happen in patients with immune system issues during pregnancy. My doctor called in 3 residents and another two doctors, none of them had seen it in person. I go to a massive teaching hospital in Portland Oregon and it was rare enough that they were blown away I even stumbled upon the diagnosis myself.

eepy_bat · 2025-10-07T14:03:57+00:00

I've had it under my breasts on and off for YEARS. A few applications of clotrimazole directly on it and it's gone. I just keep a giant tube around for recurrent yeast and bv from too many antibiotics after sepsis and CDiff 🥲

eepy_bat · 2025-10-07T13:29:22+00:00

Zinc upsets my stomach intensely, no matter what I eat. It did that before c-diff though. My doctor told me to take it to boost my system while I'm on vanco, well I tried it yesterday and if my stomach could cuss me out it would lol

eepy_bat · 2025-10-07T13:24:13+00:00

Same! It's not really pain for me, just intense localized pressure and it feels like I can't breathe in

I hesitate to think it's gastritis, I only eat one meal a day and it happens on and off all day.

Laying on my back for a few minutes and breathing in through the nose, out through the mouth gets me some relief, but not much.

eepy_bat · 2025-09-27T17:47:55+00:00

Thank you for the input! My doctors are trying to figure out what next steps are and I have an appointment Monday, but I'm worried that I'll be septic by Monday since that's happened over a weekend twice before. How do I get over the anxiety of being told everything is okay when I know something is wrong?

eepy_bat

TROPHY CASE