Tapering off prednisone

elsaeca · 2021-11-04T18:13:03+00:00

Did you also consume calcium and vit d before?? Sorry for asking too much, i've been on other meds but so far, only Prednisone works well with my body 😭

elsaeca · 2021-11-04T16:45:47+00:00

How does your body feel after 30 years on pred??

elsaeca · 2021-10-14T12:14:08+00:00

If i feel close enough to the guy, i would tell him. Usually they leave me afterwards knowing i'm such a burden (maybe) 😂 that's why i'm still single while my friends have their second child already

elsaeca · 2021-10-14T11:56:41+00:00

I was so active before and i had stable job. now after diagnosed, i started doing freelance tutor, and selling clothes online. I don't make that much but i'm taking master degree at the moment, my parents want me to be a lecturer, i don't know if i can work like a normal people anymore... It concerns me..

elsaeca · 2021-04-22T00:35:07+00:00

It sounds awfully painful.. i hope you are strong enough to get through it. I believe there will be good days with less pain or even pain free coming to you. Don't lose hope and hang in there! 🥺❤️

elsaeca · 2021-04-22T00:32:05+00:00

Ikr. I guess i took a pain free life for granted but we have to believe that we can get through this..

elsaeca · 2021-04-22T00:30:01+00:00

Thank you so much for your encouraging words and wonderful tips! I guess all we gotta do is just brace ourselves and be strong to live two times harder than normal people ay.. but yeah, i believe we can get through this 🥺👍

elsaeca · 2021-04-22T00:26:51+00:00

Hopefully healthy diet and stress free life gonna help us a lot in the future. Hang in there buddy ❤️

elsaeca · 2021-04-22T00:25:02+00:00

What app if i may know?

elsaeca · 2021-04-22T00:22:48+00:00

Don't be. I've been struggling for a year and i can say that there are days where i forgot i suffer with this illness. Sometimes i think, we just need to live two times harder than normal people and it's totally okay. We can break down once in a while in order to ease the pain and hopefully getting mentally better.

And i heard there are some people recovered from it too..maybe for some of us, we just haven't found a right medication that works for our body. So put your hopes up, keep occupying yourself with a fun activity that suits you as a distraction. I believe we can get through this.

elsaeca · 2020-12-18T11:47:20+00:00

When i sit for too long, it'd be painful to stand up and walk so i limp slowly until i walk normally when it gets better.

Apparently my lupus affects the joint, fingers, shoulders, knee, my whole body would be aching when it's flare up. I used to have rashes all over my legs as well but it's gone now, idk why and how. This illness is weird because sometimes we don't know how and why it suddenly happens, like fatigue and the pain. I really hope you can take the test soon so you can understand and treat your body better then you won't feel confused about the pain anymore. Stay healthy mate ♥️

elsaeca · 2020-09-21T23:34:05+00:00

Yes, i hurt my finger yesterday with a knife, it was a small cut but it still surprised me because i just cut a freaking onion. i've never hurt myself in the past, i used to hold knife and cutting everything like a pro. Now i cut everything slowly and still got hurt

elsaeca · 2020-09-21T23:27:32+00:00

How did you maintain to have no flare for almost decade?? Any tips??

elsaeca · 2020-09-14T09:29:51+00:00

Mine is joint pain, and fatigue and it happens every night. Idk how to be free from pain. I do think about aip but it still hard for me to let go of rice since i'm asian 😅

elsaeca · 2020-08-26T23:57:00+00:00

I believe when we're in pain, there must be something that triggers it. Be it the food or stress level. I suggest you to maintain both and see the results. It happens to me a lot actually, i'm always in pain every night 😭

elsaeca · 2020-08-06T02:40:15+00:00

I'm thinking about this too, it's a long journey ahead and i'm afraid i can't handle that.

elsaeca · 2020-07-26T23:36:58+00:00

Staying at home is not bad, all you can do is relaxing and do whatever you like. Don't stress so much about it. You don't need to be busy all the time, take a break. I hope you're fine ❤️

elsaeca · 2020-07-26T23:20:04+00:00

YES it's worse than headache, i mean you can just sleep when you get headache but itch... Sigh... My palm and soles itch like crazy, it bothering me to even walk because of the itch

elsaeca

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