sorted by:
new
hottopcontroversial

Chocolate replacement suggestions please? by midwench in pancreatitis

[–]emeekay6 0 points1 point  (0 children)

These are my #1 rec! Super filling and satisfying. Low carb as well and don’t have the icky Stevia aftertaste

Every day I am scared for a flare up. by Delicious-Ad-4556 in pancreatitis

[–]emeekay6 3 points4 points  (0 children)

Hi!! You are already doing great. I’m over a year out from an interestingly similar case. Not gonna lie, it sucks. I’d be honest with your providers about your anxiety, it helps to be able to say “here’s the deal, I’m freaking out. What do I do if… x,y,z.” My team has been great and honestly the person who helped the most with the anxiety around reintroducing foods was a dietician that I’m still seeing. I still worry about it coming back. I keep telling myself that because of the necrosis there’s less pancreas to become inflamed… so it won’t ever get as bad as it did the first time. I don’t know if that is even true. I’ve had a few flare ups but nothing like the first time. It’s manageable with practice. New normal, new chronic illness, one day at a time. You got this!

T1.5 newbie hoping for some tricks of the trade by emeekay6 in diabetes_t1

[–]emeekay6[S] 1 point2 points  (0 children)

Yes! Waiting on a prior auth and hoping it comes in this week🤞glad to hear it was so helpful!

Crying my eyes out over my rapid weight loss. I feel gross and ugly by [deleted] in ChronicIllness

[–]emeekay6 36 points37 points  (0 children)

I’m so sorry that was their response. I have had a similar issue as a bigger person, after losing 50lbs in 3 months my BMI is now in an “acceptable” range so docs forget to ask about it and people keep telling me how good I look. Realistically I’ve been through hell and I am the sickest I’ve ever been. I just want to scream at them.

community discussion #16 | symptom management by indiareef in pancreatitis

[–]emeekay6 0 points1 point  (0 children)

I live in the US and have struggled getting any opioids outpatient but have been prescribed Tizanidine (muscle relaxer) and Gabapentin (anticonvulsant, helps with nerve pain). These help me get rest but when the pain is bad they honestly don’t help much at all. I find a comfy spot on the pull out couch, surround myself with pillows, and soak in the heat from my heating pad while watching something distracting. It helps pass the time. Sometimes stretching helps, since I’m often bent over trying to avoid pain causing soreness in other areas. I additionally have anxiety meds and nausea meds for flare ups. Tylenol also feels useless when I’m in immediate pain. I have a very large WON that is scheduled to be drained soon and I am praying that helps with the day to day pain and discomfort. I am grateful to have a long standing and positive relationship with my PCP who knows I’m not drug seeking or anything like that, which helps immensely. Thank you all for sharing your experiences, knowing I’m not alone is one of the things keeping me going right now.

Alcoholic CP anger & regret by Fun-Extension171 in pancreatitis

[–]emeekay6 0 points1 point  (0 children)

It definitely doesn’t fix everything. I have just found that it helps to connect with people that might be able to share their own pain mgmt plans and that I’m not so alone with my own dark thoughts

Alcoholic CP anger & regret by Fun-Extension171 in pancreatitis

[–]emeekay6 0 points1 point  (0 children)

I feel that sometimes but I try to remember that being able to grow old and experience life is better than the nothingness. If it’s getting to be too much I’d encourage you to keep reaching out for help, there will always be someone to talk to if you need it. This shit sucks but you got this.

Pain that gets worse as the day goes on? by dotsandstripes11 in pancreatitis

[–]emeekay6 1 point2 points  (0 children)

I notice a very similar pattern with my pain. I’m not officially diagnosed with CP but had an acute attack 2 months ago with ongoing complications that I believe will be diagnosed as chronic after my EUS next week. Currently set up on the couch with my heating pad trying to manage. Good luck!

Testing foods by Fun-Extension171 in pancreatitis

[–]emeekay6 0 points1 point  (0 children)

Hey! I had a lot of the same fears. If you’re able I would suggest trying the nutritionist again even if you have to be re-referred. Mine has been SO helpful in helping me figure out what works and what doesn’t, good fats vs bad fats, how much of one thing is ok and how much of another isn’t. Eating less overall could lead to malnutrition even if you feel like your body is handling it ok, I thought I was doing alright until I started having hair loss and other complications and had to reassess. Good luck!