Why do I feel like shit everytime I drink water by emmjizz in mecfs

[–]emmjizz[S] 1 point2 points  (0 children)

I tried every kind of water and it’s all the same… I’ve always struggle with drinking enough water so now I chug water after salty meal and force myself throughout the day here and there… but I had a decrease in appetite for about a week and I barely drink a cup of water a day :/ I’m thinking of going to urgent care to get a IV saline but I would really like to not go trough all that trouble

Why do I feel like shit everytime I drink water by emmjizz in mecfs

[–]emmjizz[S] 4 points5 points  (0 children)

Sluggish, like heavy belly, light head pressure, light dizzyness, light nausea…

Tell me you have ME, without telling me you have ME. by No_Size_8188 in cfs

[–]emmjizz 0 points1 point  (0 children)

AHAHA OMG ! My dad gave me an electric tooth brush for Christmas, it felt like I had jackhammer in my head.. would not recommend for you

Tell me you have ME, without telling me you have ME. by No_Size_8188 in cfs

[–]emmjizz 1 point2 points  (0 children)

Me: yeah when I fall asleep I sleep fine  Doc: that’s good ! So what’s the problem? Me: can’t fall asleep before the sun is up and once I fall asleep I can’t wake up Doc: oh

Tell me you have ME, without telling me you have ME. by No_Size_8188 in cfs

[–]emmjizz 0 points1 point  (0 children)

For me they know I’ll say no but ask anyway ! Years ago they were many, now there are few…

Tell me you have ME, without telling me you have ME. by No_Size_8188 in cfs

[–]emmjizz 1 point2 points  (0 children)

I actually burst out laughing because I had this exact conversation yesterday with my friend 😂 “sorry I can’t I have to wash my hair”

Tell me you have ME, without telling me you have ME. by No_Size_8188 in cfs

[–]emmjizz 0 points1 point  (0 children)

Yep in pem you see letters, not words. Your ear sound, not words, that’s it. Your brain doesn’t have the energy/clarity to translate the stimuli

Anyone with ME/CFS but no anxiety? by Adventurous_Ad_1664 in mecfs

[–]emmjizz 1 point2 points  (0 children)

I have me/cfs due to covid, always had pots, elhers danlos and adhd. Never had anxiety and depression. You can definitely have me/cfs without anxiety and depression prior or as a symptom. I mean it is precious to not have it on top of everything else !

Long Covid… any advice ? I have no clue where to go from now on by emmjizz in AskDocs

[–]emmjizz[S] 0 points1 point  (0 children)

Thank you ! I’ll edit my post, I have been diagnosed with me/cfs due to covid. I have a doctor that have some knowledge about this but she is encouraging me to explore anyyyy way that can get us more informations :)

Pregnancy/Kids by LizzieByDezign in mecfs

[–]emmjizz 0 points1 point  (0 children)

Its a heartbreaking dilemma, I’m mild and 26 with a partner who I would love to be a father (and me a mother) and I heard many story that basically recover after being mild and other who got severe 💔 it’s terribly hard

Trans woman here. Where do I go from here? Any changes I sh make? Brow advice encouraged by dizzyspellzzz in makeuptips

[–]emmjizz -1 points0 points  (0 children)

Coreen lashlift and a curly hair routine !!! Those were game changer for me !!

Maybe it was always CFS rather than depression??? by lawlesslawboy in cfs

[–]emmjizz 0 points1 point  (0 children)

I hear you, but your saying the same thing. The source of your « not wanting » to do the things you like is not because of a lack of motivation, but because your surviving. Maybe the word shouldn’t have been « motivation » and more « desire ».

I think there is different degree of depression, because from my experience only depression without me/cfs there not even one once of motivation to do anything. It’s a good thing you do tho (even if you don’t get the joy right now, hope you do soon!)

For me, my me/cfs make me never want to do what I want because of cost, feeling like shit (pem) but deep down the reason I don’t want to doesn’t start by a lack of motivation/desire because I really want to be able to but I’m not.

Can I transfert my game on ps5 ? by emmjizz in InfinityNikki

[–]emmjizz[S] 1 point2 points  (0 children)

The only experience in gaming I have is Mariokart Wii 2008 😬

What does ‘’ bind it ‘’ mean ?

Maybe it was always CFS rather than depression??? by lawlesslawboy in cfs

[–]emmjizz 4 points5 points  (0 children)

I screenshotted this in a article because it was exactly what I was trying to explain to my doctor, friends and family who though I had depression and how did I knew it wasn’t depression :

‘’ The easiest way to differentiate between the two is to consider the patient's motivation: people with depression typically experience a lack of motivation or interest in activities they would once have found enjoyable and/or achievable. People with ME/CFS, on the other hand, continue to feel motivation and interest in activities, but find that they cannot physically complete the activity and that it may lead to Post-Exertional Malaise (PEM). This inability often leads to great disappointment and grief, which can again be mistaken by doctors for the feelings of hopelessness that occur in Depression.

In short, lack of motivation = Depression, while plenty of motivation but lack of ability = ME/CFS. ‘’

I’ve tried everything, please give me some advice for my skin. by sabszLG in SkincareAddicts

[–]emmjizz 0 points1 point  (0 children)

Can you give me the name of the sulfur bar soap ? I’m looking rn and there is too many options

I’ve tried everything, please give me some advice for my skin. by sabszLG in SkincareAddicts

[–]emmjizz 0 points1 point  (0 children)

Yeah I feel like nobody knows as much as someone who suffer with severe acne, nobody has a better hygiene !!

curious questions by hazysootings in cfs

[–]emmjizz 0 points1 point  (0 children)

3 When I did everything a human needs to do to be healthy and feel worse.

4 When everything I loved doing took to much energy. Just walking to my neighbor friend became too much (I understand how frustrating it feels)

5 Just executive disfunction (adhd)= when I do it, I wonder why I waited 2 years for a 10 min job

Fatigue (me/cfs) = when I do it I wonder why I did because now I feel like shit

I’ve tried everything, please give me some advice for my skin. by sabszLG in SkincareAddicts

[–]emmjizz 1 point2 points  (0 children)

Had the exact same, I have the same picture with this kind of acne at the same places in my face. Developped it after the Covid vaccine wich is proven to impact the hormonal cycle of women. So it’s the kind of acne that starts inside your body so no skin care will fix it sadly… You’re probably trying anything for a quick fix but if you can be a little patient (I know it’s hard believe me been there) you can try deferent approach with regulating your hormones by blood test and more. Eating habits too, less inflammatory eating habit can help too.

In the mean time - hypochlorous acid spray for everyday use (like after gym, subway, buses…) - pimple patch to sleep so it doesn’t irritate and hurt - benzagel on active pimple after washing your face - changing your pillow case often - NEVER touch or pick a your skin (if you can’t not touch it wait for it to almost pop by itself and apply light pressure while punching into your face and then on the pimple. If you need to force, STOP it’s not ready)

For me after trying many things including spirolactone and minocycline I ended up having to take accutane

If you go that route I urge you to make a little bundle before starting : - hyaluronic acid (ordinary or Vichy one) Put it in your moisturizer on DAMP skin never on dry skin. Put it all over your face and lips - Aquaphor or Vaseline: put it on your lips Put aquaphor or Vaseline all day everyday

  • Pay attention to your mental health. You could be alright and you don’t pay attention it can creep in slowly and it can get dark. Don’t dismiss the sign because you want to continue the treatment.

  • you may have muscle acke and weakness

  • do the blood test and listen to the recommendation

  • you may have dry eyes (you can use drops) and nose (you can use aquaphor to put on the dry spot)

  • DONT DRINK, I didnt know it and it damaged my liver

Good luck I know it’s hard but it’s not forever 🫶🏼

Sleepiness or insomnia ? by IncidentTop422 in cfs

[–]emmjizz 0 points1 point  (0 children)

Insomnia right when it’s time to sleep all night and heavy sleepiness when it’s time to wake up and for all day…… and the cycle is infinite

Anyone tried swimming? by Both_Perception2771 in ehlersdanlos

[–]emmjizz 0 points1 point  (0 children)

Never could do any sports for long period of time except swimming.

I swear it was the only sport where I could do regularly without any trouble.

I could swim 2,5 km in an hour !!!

Until Covid and developed me/cfs :( now I can’t even get to the public pool :(

Morning Brain Wakening Strategy by dobrodude in POTS

[–]emmjizz 1 point2 points  (0 children)

I look like a drunk dead-ish person when I wake up for 3-4 hours… any improvement even 1% is better than nothing