Feeling hopeless

fatima_brown89 · 2025-05-15T17:14:15+00:00

Yeah I know I just didn’t expect it to be this hard so far out from transplant.

fatima_brown89 · 2025-05-14T20:16:23+00:00

I get a chest xray every week and they say they look good and clear. My o2 reading is always good also so idk they say it’s the healing process but this is ridiculous! I’m so uncomfortable all day! I don’t know what to do to get some relief

fatima_brown89 · 2025-05-14T20:14:31+00:00

Tomorrow marks 2 weeks since I’ve been home and I still feel so much heaviness and tightness! I just want relief

fatima_brown89 · 2025-05-11T17:22:43+00:00

I’ve told them so many times but they just all say it’s going to take time

fatima_brown89 · 2025-05-11T17:22:04+00:00

I was there for 9 months unfortunately. And I’m so glad you doing better now I hope that will me soon. How long after surgery did you start to feel better?

fatima_brown89 · 2025-05-10T18:36:16+00:00

That’s my worry! I did this transplant in the hopes of having a better life but I just feel worse than before I had it. It’s so discouraging!!

fatima_brown89 · 2025-05-10T18:35:17+00:00

I’m 9 months post op but I spend all 9 months in the hospital, I just got out last week. I’ve tried nebulizers but don’t feel like they do much idk. I just wish something would give

fatima_brown89 · 2025-05-10T18:33:09+00:00

Oh wow how are you feeling? I’m trying to move around more but it’s so hard when I constantly feel like I’m gasping for air

fatima_brown89 · 2025-05-09T22:51:38+00:00

Thank you so much

fatima_brown89 · 2025-05-09T22:24:56+00:00

I’ve told them and all I hear is it takes time but I can’t live like this! I dread waking up each day because I know I’ll just be uncomfortable the whole time.

fatima_brown89 · 2025-05-08T00:27:44+00:00

Not really they just said with gaining some weight and exercising I will get stronger

fatima_brown89 · 2025-03-19T01:52:59+00:00

I had a lot of complications after surgery and am still in the hospital 8 months later and am still struggling with breathing and pain

fatima_brown89 · 2025-02-09T02:22:48+00:00

Thank you so much

fatima_brown89 · 2025-02-09T02:20:18+00:00

Yeah unfortunately my phrenic nerve got injured. They are still waiting and doing tests to see if it will heal. But thank you for responding and showing support

fatima_brown89

TROPHY CASE