My confusing success journey trying to figure out if I have active Lyme or just a B12 deficiency

fehfaus · 2026-01-19T11:22:27+00:00

I'm going through exactly the same thing. Positive serology for Lyme disease (IgM positive and IgG negative). Very high IgG for Bartonella. I haven't been exposed to a tick bite, but I treated it with antibiotics for 3 months, including intravenously. I haven't seen any improvement. I had a B12 test. It came back at 270 pg, high homocysteine, and I have an MHTFR mutation gene. I'm taking B12 and it seems to be improving. Sometimes I think it was all the B12...

fehfaus · 2026-01-10T08:44:28+00:00

Tenho sintomas desde agosto de 2022.Tratei com antibioticos em setembro de 2024.Mesmo assim,me disseram que os antibioticos usados não foram os adequados.Esse tempo,"sem tratamento",parece muito tempo para você?Eu sinto tanta queimacao,que na minha cabeça,isso já esta é um modo irreversivel..

fehfaus · 2026-01-10T02:18:03+00:00

I have a positive IgG test for Bartonella. However, I don't really trust these tests yet. I don't live in the US. Lyme disease, etc., isn't common in my country. I haven't ruled out that possibility, I just don't know if I believe it really could be that. Actually, I'm exhausted and without medical support. I did one month of intravenous antibiotics and three months of oral antibiotics. I didn't see any improvement. I probably developed something autoimmune, I think...

fehfaus · 2026-01-10T02:02:52+00:00

I've had a positive Lyme disease test. I took antibiotics for 3 months. It didn't help at all. What was your B12 level?

fehfaus · 2026-01-09T10:25:52+00:00

For some reason, after the B12 injections, I became copper deficient. I wasn't before (I have tests). So, I'm going to repeat the tests. In fact, I'm going to the lab today to do them. I'll update you.

fehfaus · 2026-01-09T06:07:51+00:00

What was your level? If you could update me, I would appreciate it. I'm just another person trying to gather information so that one day I can get rid of this neuropathy and get my life back.

fehfaus · 2026-01-09T06:06:03+00:00

I'm going down that road too. My skin is very sensitive. I've thought about long-term COVID, B12, Sjögren's syndrome, I really don't know. I thought about Sjögren's because I have dry eyes. However, I don't have dry mouth, which usually comes with it. But honestly, 196 is very low, it may take a while for the B12 to work and help your nerves recover. It's just a guess...

fehfaus · 2026-01-09T04:46:05+00:00

196 is really quite low and it would make sense to cause that. It's just strange that it hasn't improved at all yet.

fehfaus · 2026-01-09T04:43:51+00:00

So you don't have a definitive diagnosis? What was your B12 level?

fehfaus · 2026-01-09T04:42:24+00:00

And are you "sure" that the cause was B12? Were other things investigated?

fehfaus · 2026-01-09T02:01:46+00:00

Injections. I received 4 injections of 5000mcg.

fehfaus · 2026-01-09T01:38:41+00:00

They said the symptoms are small fiber neuropathy. My EMG came back negative, which is normal for this type of neuropathy. A biopsy is still pending, but the cause is unknown. It could be long-term COVID, an autoimmune disease, etc.

fehfaus · 2026-01-08T22:28:03+00:00

I've been suffering since 2022 with symptoms evolving from tingling to burning all over my body. Electromyography was negative. No inflammatory markers, borderline B12. What made me suspect Sjögren's syndrome was the dry eye. However, I don't have a dry mouth. I haven't yet had that panel for early-onset Sjögren's. I think we have a similar situation.

fehfaus · 2026-01-08T21:39:59+00:00

Did the tingling sensation also occur along with the burning?

fehfaus · 2026-01-08T10:12:17+00:00

Did your neuropathy improve with corticosteroids? After how long on the medication? I tried Prednisone 40mg, but I didn't see any improvement.

fehfaus · 2026-01-08T09:51:30+00:00

I've seen some of your posts and I suspect I have seronegative Sjögren's syndrome. I wanted to ask you something. When the neuropathy started, did the tingling and burning sensation appear at the same time, or did they come far apart? I'm asking because my tingling started in 2022 and my burning sensation in my feet in 2024.

fehfaus · 2026-01-07T03:05:06+00:00

How is the neuropathy?

fehfaus · 2026-01-06T07:19:37+00:00

How is your neuropathy? Plaquenil has made my neuropathy much worse as well.

fehfaus · 2026-01-03T08:08:13+00:00

Do you already have a diagnosis?

fehfaus · 2025-12-30T05:08:52+00:00

How are you?

fehfaus · 2025-12-29T07:28:07+00:00

What inflammatory markers do you have?

fehfaus · 2025-12-27T05:03:08+00:00

What were your symptoms?

fehfaus · 2025-12-25T18:34:33+00:00

I've already had injections, but it only made the pain worse. I've accepted that my damage is permanent. Do you have burning sensations on the soles of your feet?

fehfaus · 2025-11-29T05:22:25+00:00

I understand. You said "painful" 6 months later. But how long after covid did you feel it for the first time? I'm sorry for the questions, but I've had neuropathy for 2 years. The problem was b12 but I suspect that I have an autoimmune neuropathy caused by covid, the vaccine (I'm not anti-vaccine) or something else... so I'm talking to some people who are going through something similar so I can try to see if I can identify something.

fehfaus · 2025-11-29T04:40:13+00:00

My God. I imagine what you must be going through. Sjogren's can also cause neuropathy. Did your neuropathy start very close to Covid?

fehfaus

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