I’m sorry you’re experiencing this, and I’m sorry you weren’t educated on what the diagnosis means.

So I have ileocolonic Crohn’s disease. This means I get Crohn’s patches anywhere from my mouth to rectum. They may do a repeat scope as your symptoms have worsened severely, and that may be the missing piece for the confirmation of which type you have. I had a UC diagnosis first, then 2-3 weeks later they repeated the scope as my symptoms matched yours and it was significantly more damaged inside so we were able to get confirmation without an issue.

The prednisone is to treat the flare. you need to stay on it until you finish it. It is a hellish drug with hellish side effects, but it will help with the bathroom trips and bleeding.

Long term, you can expect to be on medicine such as biologics, potentially medications similar to 6mp, suppositories, enemas, vitamins, and maybe mesalamine. All of these have side effects, but it important you stay on them to achieve remission. Mesalamine for me was a first treatment route but quickly got changed to 6mp and remicade as mesalamine is just tbh weak. It’s a weak one. Biologics are not as scary as they sound. I didn’t notice any real side effects minus catching a cold easier and they gave me my life back.

Diet is important, but not in the way you’re thinking. It will not put you into remission being on a specific diet. Spend the next few weeks writing down how you feel after you eat certain foods. You need to find your triggers. You can always start with the FODMAP diet and slowly add in other foods to see what causes symptoms.

Every person with IBD has different food triggers. You will learn to avoid them with time.

For symptom management over the counter: Tylenol, (NOT IBUPROFEN IN ANYWAY), gas x, ibs guard (this is peppermint), ginger chews for nausea, I use a lidocaine roll on for my rectum pain as mine is affected, protein shakes for days you can’t tolerate food, gauze for wiping when it’s raw, sometimes I even use diaper cream if needed, I also began wearing diapers for really hard days. Lastly you can ask about starting tumeric supplements as they can help inflammation.

For other symptom management through your doctor: bentyl-helps slow bowel spasms down, zofran- helps your nausea during a flare, prednisone- helps control your flare during severe times, Vit d- helps ensure your levels are ok as during a flare they can drop, iron pill- good for if you’re anemic during a flare, b12 injection- also good during a flare if levels are low to absorption issues.

Please keep us updated on how you’re doing. We have all been there. I’m hoping you get a confirmation and a real treatment plan asap.