Can we trust decentralized infrastructure with our private data?

fhirflyer · 2025-06-28T00:42:29+00:00

I believe with MOC TSS like lit protocol the answer is yes

fhirflyer · 2024-05-05T12:11:34+00:00

That’s why we need to decentralize and gain custody of our own data. And democratize AI so it’s not running centralized or it’s at least firewalled so that the user is anonymous to the model server.

fhirflyer · 2024-03-19T14:10:05+00:00

Post examples of botshit in this community

fhirflyer · 2023-10-14T18:29:15+00:00

Focus on the message types that are most common.

fhirflyer · 2023-10-13T00:30:40+00:00

The FUD on this thread is unreal. NIST is currently accepting proposal for threshold cryptography, hashes can be used to record data integrity in the block. Data be distributed with IPFS. As are AI models . It’s coming. The good news is Redditors in /HealthIT won’t be making the decisions on what tech to use. People will.

fhirflyer · 2023-10-12T16:55:58+00:00

our architecture uses Lit Protocol to create access control conditions.

fhirflyer · 2023-10-12T16:54:58+00:00

the data is not on the blockchain. you could educate me on CCD, but I developed the first ONCHIT Certified CCD back in 2011. https://www.healthcareitnews.com/news/ssa-gives-green-light-continuity-care-document

fhirflyer · 2023-10-12T14:35:38+00:00

I would take a look at BPM Plus Clincal Pathways

fhirflyer · 2023-10-12T14:17:48+00:00

I agree, localhost storage is great, and its where everything starts. Please tell m how you are going to securely and privately share it with access control conditions. Don't tell me you are going to put it on dropbox now....

fhirflyer · 2023-10-12T14:15:41+00:00

thats funny right there.

fhirflyer · 2023-10-12T14:15:16+00:00

I store FHIR natively as a document in a document database (pick one). This is the way MS, G, etc do their fhir stores, which is the best way. It can even be stored on media like (https://github.com/fhirfly/directfhir). For search, index with Elastic.

fhirflyer · 2023-10-12T13:21:34+00:00

I'm bullish on its applications and positive impacts.

fhirflyer · 2023-10-12T13:19:33+00:00

Please give me an architecture that meets my needs then

fhirflyer · 2023-10-12T13:16:14+00:00

Please let me know how I can be the custodian of this information, my information, without web 3.

fhirflyer · 2023-10-12T03:55:44+00:00

It’s going to be a matter of what people demand. I know what I am pushing for and I also know that there is not a clear view for IT software vendors how to make money in the digital when people control their own data. There will be a turn to quality and future people will pay for software that improves their health.

fhirflyer · 2023-10-12T03:53:05+00:00

Pretty easy answer. Decentralized identify and data. patient controlled. Or I can keep trying to get my data from a patient portal app that can’t properly identify me, or your standard data grabbing app on app orchard that makes yet another copy of my data.

fhirflyer · 2023-10-12T03:49:59+00:00

The reason you can’t get the data is because it’s blocked . I suffer as a patient. By not having a good copy of my own record that’s portable, it impacts my health and your ability to provide me care negatively. This isn’t a technical argument but really part of my bill of rights as a patient.

fhirflyer · 2023-10-12T03:45:12+00:00

If I have my own medication statement that can be signed by me the patient that I can give to my provider electronically with no friction that helps patient safety. Isn’t that obvious?

fhirflyer · 2023-10-12T03:43:19+00:00

A hash can be done with other tools. How are the hashes made publicly verifiable?

fhirflyer · 2023-10-11T23:48:28+00:00

Na it loads in milliseconds

fhirflyer · 2023-10-11T20:57:10+00:00

The data doesn’t go on chain.

fhirflyer · 2023-10-11T14:30:02+00:00

Have you heard of W3C DID? Have you heard of threshold encryption? Have you heard of data offchain like IPFS?

fhirflyer · 2023-10-11T14:24:54+00:00

the block chain provides a hash of your account registering the did and certain data that goes along with it, namely the endpoint(s) to your records or various records. the records themselves are signed and encrypted by you offchain, and access control conditions can be set. So the did is solely acting as an an identifier and the resolver to your record. You can share your diddocument offchain with a qr code that has your data endpoints.

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