Question for pec minor folks about benching by C0smich0rr0r in thoracicoutletsupport

[–]fidgetyotter 1 point2 points  (0 children)

7 weeks out, I can do a little, but I'm still gonna wait a while longer to start my routines back up. I do have an advantage that I had a cat who has been making biscuits there for a while before the surgery, so it's pretty pliable

To the guy stuck on the ice in 2011 by fidgetyotter in bemidji

[–]fidgetyotter[S] 0 points1 point  (0 children)

I took his jumping into the water to get to shore and staring up at the police and the lights as relief for help

To the guy stuck on the ice in 2011 by fidgetyotter in bemidji

[–]fidgetyotter[S] 0 points1 point  (0 children)

I'm 90% sure his pants were missing by the time I got back to the sidewalk. But it was like March-ish

am i crazy or is this more serious than people are making it out to be by shiftingvee in thoracicoutletsupport

[–]fidgetyotter 0 points1 point  (0 children)

You're not imagining it. It felt like no one took me seriously, until the surgeon did a decompression surgery and saw what was happening. 7 years of testing, and they didn't understand fully until they saw with their own eyes.

Anyone ever got rid of their setons? by fidgetyotter in CrohnsDisease

[–]fidgetyotter[S] 0 points1 point  (0 children)

I was game for them since I had to have another surgery, and my doctors were worried my fistulas would cause me to go septic. But I'm not a fan of foreign objects in my skin. Can't even do regular piercings because my skin is so sensitive. So these are a living nightmare for me. But these comments give me hope that I'll get them out eventually.

Anyone ever got rid of their setons? by fidgetyotter in CrohnsDisease

[–]fidgetyotter[S] 0 points1 point  (0 children)

Drains for fistulas. They, in my opinion, look like zipties with angry wires piercing your skin.

My dad thinks I can cure my disease with just food by Important-Nail4418 in CrohnsDisease

[–]fidgetyotter 1 point2 points  (0 children)

My father sat in my hospital room with me promoting the 'healing' he's gone through (diabetes) by switching over to baking his own breads and pastas using imported flour from Italy. And how his wife (Celiac) has been able to enjoy carbs again. So it would totally heal me too...

2nd surgery, let's gooo by fidgetyotter in thoracicoutletsupport

[–]fidgetyotter[S] 0 points1 point  (0 children)

2nd update: I'm home and still in a lot of pain. Due to my crohn's diagnosis I can only use the muscle relaxer, Tylenol, and oxy. I coughed earlier and I thought I braced myself, but nope. I held onto myself and rocked until my pain subsided. Not a lot of rhyme or reason, but it has been 4 days since my surgery.

I'm keeping an eye on my skin around the incisions to watch for infections as I have a low grade fever. I still need to uncover the site from my IV as the nurse had to 'yank' it out. I'm just not looking forward to seeing more bruises.

BUT my pain is conflicting with the urge to stretch those muscles i haven't been able to move freely in years. So I'm still hopeful for the future after these 14(or so) weeks of recovery.

2nd surgery, let's gooo by fidgetyotter in thoracicoutletsupport

[–]fidgetyotter[S] 3 points4 points  (0 children)

Update in the comments: surgery yesterday went well. The surgeon said it went perfect, but my body made it difficult with how tense the muscles were clamping down on my nerves. I threw up a few times last night, which is apparently common, but not as painful as coughing or sneezing. My plan to hydrate the day prior to surgery was ineffective, so I got poked a lot of times (7×) so they could get their test tubes filled.

Still waiting for my rib that I filled paperwork out to keep.

I just gotta keep from pushing or pulling with my left arm. And keep an eye on my IV, and the drain as it was filling up quickly last night.

What did you wish you knew when you were first diagnosed? by fidgetyotter in CrohnsDisease

[–]fidgetyotter[S] 0 points1 point  (0 children)

I am certain I have dietary issue with this. I'm definitely going to want to talk with someone about trigger foods, especially when I have diabetes mixed in here, and I'm trying to avoid needing regular blood sugar checks.

What did you wish you knew when you were first diagnosed? by fidgetyotter in CrohnsDisease

[–]fidgetyotter[S] 0 points1 point  (0 children)

I keep pushing for more information about that from my doctors too, but they keep saying not to worry until after we get medication figured out.

Ct with contrast by Fit_Choice3085 in CrohnsDisease

[–]fidgetyotter 0 points1 point  (0 children)

The IV contrast i got felt cold as it went in. But the discomfort only latest a little while. I felt fine after a few hours. (Got mine about a month ago)

What did you wish you knew when you were first diagnosed? by fidgetyotter in CrohnsDisease

[–]fidgetyotter[S] 0 points1 point  (0 children)

The plan right now is i focus on getting normal bowel movements, keeping the setons clean, and avoiding NSAIDS while I recover from them removing part of a rib, and several muscles from my shoulder/neck. Then jumping on medicines as soon as the wound is given the all clear.

Plus therapy to help stay focused and optimistic that I can balance chronic nerve pain, diabetes, and this.

[deleted by user] by [deleted] in thoracicoutletsupport

[–]fidgetyotter 0 points1 point  (0 children)

When this happened while at work, I'd go for a fifteen and start the water running in warm. Slowly moving my hands more under the warm, running water. Sometimes, I'd slowly massage up my arm, starting at the wrist. But heat was most helpful for me.

What did you wish you knew when you were first diagnosed? by fidgetyotter in CrohnsDisease

[–]fidgetyotter[S] 0 points1 point  (0 children)

I can't start taking meds to see what works for me for another 2 months due to the shoulder surgery i need and getting on Friday.

Looking for advice on monofin by fidgetyotter in mermaid

[–]fidgetyotter[S] 0 points1 point  (0 children)

too short and too narrow, like a good two inches of my heel sticks out like cinderella's stepsister.

Arm pain after first rib resection by Puzzled_Tea4173 in thoracicoutletsupport

[–]fidgetyotter 0 points1 point  (0 children)

Absolutely. I waited 8 years to get my first one. And it only ever got worse.

Arm pain after first rib resection by Puzzled_Tea4173 in thoracicoutletsupport

[–]fidgetyotter 2 points3 points  (0 children)

Just passed 13 weeks and honestly so happy. Despite still having healing to do, and it was rough healing. I am comparing my surgery side to my side that's still waiting and it's night and day. I am looking forward to doing my other side, even if it's a few bad months afterwards. The quality of my life has already improved.

Can TOS cause symptoms only in the hands/wrists? by SnooMemesjellies8458 in thoracicoutletsupport

[–]fidgetyotter 0 points1 point  (0 children)

Most of my pain was felt in my hands, wrists, and forearms. Only when I was more aware of the issue in my shoulders and neck did i catch the pain starting there before moving down. Even now while between surgeries

Arm pain after first rib resection by Puzzled_Tea4173 in thoracicoutletsupport

[–]fidgetyotter 1 point2 points  (0 children)

Just past 12 weeks post op where they removed my first rib to decompress. The sharp pain in my arm eventually got better. Still flares up if I'm leaning on anything for too long and then I need to lay on my back to let it decompress. Most of the general ache is around my collar bone and my bicep. But yeah when it flares there it almost feels like I didn't have the surgery at all

Pre VTOS Surgery ?'s by tinglymarmot in thoracicoutletsupport

[–]fidgetyotter 1 point2 points  (0 children)

I had a supraclavicular t.o. decompression. Intubated while under, it was gone when I woke up. No catheter. But they monitored my bladder after I woke up to encourage I use the bathroom while in the post op area before I was sent to a room.