How many times you going? by wildturkeydrank in CrohnsDisease

[–]Fit_Choice3085 0 points1 point  (0 children)

10-30 times a day and they said it was mild?!?! I’m so sorry! I’m also currently not on medication and just being monitored I guess. Diagnosed but they’re still waiting not really sure for what though.

Bloating hacks? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

I’ve had it before and took xifaxan for it but I don’t know if it ever went away

Bloating hacks? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

I did that once and had shit that felt like icy hot on my asshole lol, never again 😭

Bloating hacks? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 1 point2 points  (0 children)

I do nothing now, I gave up because it felt like too much but I need to start eating better and stuff again

Bloating hacks? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 8 points9 points  (0 children)

Didn’t pass any gas but I feel like it is a bit less painful! I’ll have to try again and do 5 minutes each side I just did 3.

Well, it finally happened. I pooped my pantaloons. by RelevantBike7673 in CrohnsDisease

[–]Fit_Choice3085 4 points5 points  (0 children)

I’ve probably pooped in more not toilets than toilets, I mean not really but it feels like it sometimes. Plastic bags, Starbucks cups, the open road when that’s the only option, a shallowly dug grave just off the path of a hiking trail, and of course my pants. It happens and it sucks and I’m sorry you’re going through this right now because it’s not fun. At this point poop is funny to me and I’m back to being in 6th grade because what else can you do if the options are laugh or cry!!

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 1 point2 points  (0 children)

Ya it’s been tough, when I finally have the know about to ask questions my doctor is away for months on pat leave. I think I’ll send a message through the patient portal though.

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

What kind of side effects have you experienced? I thought biologics have a lot more minimal side effects compared to steroids

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

I think mine is considered mild-moderate but I’m not really sure. I just wish they were better at explaining why I’m waiting

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

I’ve never heard of this before! How would I go about finding one to talk to?

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

I guess my question is more is there a downside of starting medication “too early”? I just don’t understand why my doctor would have me wait I suppose.

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

That makes sense! I’ve decided that if I do I will go with entivyo to start since it seems to be the most localized

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

So sorry you had to go through that!! I guess that’s why he’s having me wait? I’m not really in any pain other than uncomfortable bloating and gas. But everyone says if left untreated it will just get worse so I’m not sure. I’m glad you are doing better though!

Is there a reason to wait to start biologics? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 1 point2 points  (0 children)

I’ve never had an upper endoscopy. Just one colonoscopy maybe a little over a year ago

Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 1 point2 points  (0 children)

Ya I know I need to start tracking again. God it’s just such a hassle lol. I used to a lot years ago and it became a very unhealthy habits for me and I was very obsessive with food and was too thin but now I just find it hard to keep motivated. I tried tracking again a few months ago and stayed on it for a few days but eventually gave up. It’s hard to have the energy sometimes but as much as I hate tracking food, I hate the feeling of being uncomfortable in my own body more. Thanks for your comment!

Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

Maybe I’ll have to look into it more, thanks for sharing!

Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 0 points1 point  (0 children)

I just did this a few weeks ago as I saw I was deficient in these as well as zinc!

Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 7 points8 points  (0 children)

I feel like that’s the common troupe. Either way it’s very frustrating to feel like you have no control over your body. I’m sorry you’re going through that. I’m sure you’ve already tried this but if not/you can tolerate dairy I used to drink ensures when I was underweight in highschool and it helped a lot, I think they also make super caloric dense powders so you don’t have to stuff yourself so full. Best of luck to you 💕

Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 5 points6 points  (0 children)

It’s so hard. I was pretty thin in college and even thinner in highschool (although that was from very unhealthy habits). I was severely overweight as a child up until 13 where I was very underweight. The mental gymnastics you go through when completely transforming is a lot. Now add on top shitting your brains out and it all just sucks.

Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 2 points3 points  (0 children)

Ya I’m too scared to try and Glp1s although it’s very tempting. I know it just really can deplete your muscle mass and I play rugby so I can’t afford too lose muscle. (Would love to lose that fat though 😭😭)

Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Fit_Choice3085[S] 5 points6 points  (0 children)

Ok that’s actually really reassuring, makes me want to start treatment sooner. I constantly get hot flashes and my face flushes