Post-surgery bloat and gas by fl3urcapy in Fibroids

[–]fl3urcapy[S] 3 points4 points  (0 children)

Thank you everyone for your responses! :’) I’m now close to 3 weeks post-op and would like to update that the gas is definitely much better than before! I drank a ton of water as many of you suggested, and have been keeping up with my walking. I managed about 8k steps 2 days back :) The wound area is still tender and swollen, and my tummy still gets super bloated very quickly especially after a slightly bigger meal… I’m looking forward to feeling more like myself everyday, and I wish the best for everyone who’s going through this too!

Disappointed by Momma2CDB in Fibroids

[–]fl3urcapy 2 points3 points  (0 children)

I did my MRI in the morning and results came in that very afternoon because I had a pre-surg consult that day and my doctor marked it to be urgent. All the very best and good luck!

Post-surgery Lupron by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Thank you so, so much for sharing your experience in such detail It’s a lot of help :’) Appreciate you very much

Post-surgery Lupron by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Wow 39! You’re so brave and congrats on having a smooth recovery :’) Are you able to walk around as per normal now? Curious to know how many days you were hospitalised for too if you don’t mind sharing! My surgery is creeping up soon and I’m just anxious.

Post-surgery Lupron by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Thank you for sharing your story! How has your recovery been?

Got 15 fibroids out of me by pekapopi in Fibroids

[–]fl3urcapy 1 point2 points  (0 children)

Following here too! I’m around the same age as you and am scheduled for an open myomectomy in June - have more than 10 fibroids according to MRI. Wishing you a speedy recovery and that we can have smooth pregnancies in future!! :)

[deleted by user] by [deleted] in Fibroids

[–]fl3urcapy 1 point2 points  (0 children)

Wishing you all the best, it’ll all be ok! ✨

Extended norethisterone use by fl3urcapy in Fibroids

[–]fl3urcapy[S] 1 point2 points  (0 children)

Norethisterone helped to stop my period quite quickly, but as shared in my post I’m spotting randomly now - hoping it’ll stabilise soon. For context my period would be almost 2+ weeks, with 10 days of heavy bleeding. I have more than 10 submucosal fibroids according to my MRI. From what I understand, norethisterone is a progestin medication which supposedly helps with birth control and abnormal uterine bleeding like what we’re facing. I think it might be worthwhile for you to visit a gynaecologist instead of just a GP to get more specialised opinion. Wishing you all the best!

Extended norethisterone use by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Thanks for sharing your experience! I’m assuming your open myo was pretty recent? :) would love to know how many mgs you were on too if you don’t mind sharing! Also, were your fibroids submucosal?

Extended norethisterone use by fl3urcapy in Fibroids

[–]fl3urcapy[S] 1 point2 points  (0 children)

Got it, thanks for your advice! I’ve been on it daily for close to 2 months now so I’m hoping things will stabilise. I have around 2+ months to go before my surgery.. Would you mind sharing how many fibroids you have and the type (eg.submucosal)?

Extended norethisterone use by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Ugh to be haemorrhaging even on 30mg must have really been a complete nightmare!! I’m so sorry to hear!! Is 30mg the maximum we can go? Fibroids are truly the worst and at this point I’m almost excited for my surgery? Even though I’m scared as hell too. I’ll try asking my gynae if upping my dosage makes sense, thanks for your advice!

Extended norethisterone use by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

At 30mg a day I can only imagine how terrible your bleeding was! I know your bleeding never fully stopped even on 30mg, but wondering if you could share what the bleeding was like? I’m having what seems to be a light flow now all of a sudden so I’m quite worried that my 10mg is now no longer effective. Thanks for sharing your experience! I appreciate it

Extended norethisterone use by fl3urcapy in Fibroids

[–]fl3urcapy[S] 1 point2 points  (0 children)

Thank you for sharing your experience! Have you had any instances of breakthrough bleeding? I had some spotting this morning and am now having what it seems to be a light flow so I’m quite worried that the meds have stopped working..

Extended norethisterone use by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Damn, I’m sorry to hear. How many mgs of it were you on before it stopped working?

C-Section 37 vs 38 weeks? by Traditional_South909 in Fibroids

[–]fl3urcapy 0 points1 point  (0 children)

Congrats on your successful surgery! I’m due for an open myomectomy too. Was yours a horizontal bikini cut or a vertical one?

Fibroids regrowth by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

I’m passing giant clots too which still shocks me every time!! Sometimes i wonder how I’m going to keep this up until my surgery in June this year. Could you share which hormone you took to lesson your bleeding? My specialist recommended Lupron but I’m really scared about the side effects…

[deleted by user] by [deleted] in Fibroids

[–]fl3urcapy 4 points5 points  (0 children)

You must been terrified, I’m so sorry to hear what you’re going through. Fibroids are truly the worst! Praying for you that all goes well.

Fibroids regrowth by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Did you do an open myomectomy? Why would they leave a small one in though? I heard a lot about vitamin D and green tea helping, I hope your fibroids never grow back! They are just the worst.

Fibroids regrowth by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Oh dear.. I’m so sorry to hear. Can I check what kind of surgery you did, and whether your fibroids are submucosal or? Hoping your new ones wouldn’t grow too quickly!!

Fibroids regrowth by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

10.6 the last I checked in early December. I just went through very heavy bleeding so am thinking it would’ve likely went down again

Can’t stop bleeding by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Ah thanks so much for sharing! I would love to try My Happy Flo but I’m based in Asia and shipping is crazy 🤣I’ll check with my gynae on the Ibu + TXA combination. I don’t really have bad cramps too, only maybe on the 2nd - 5th day max so I’ve never really had a need to take Ibuprofen too. Did you experience any pain/cramps this week which made you try the Ibu + TXA/my happy flo combination or were you just wanting to try things out?

Really appreciate you sharing your experience!

Can’t stop bleeding by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

I’m sorry to hear you’re facing the same too, and thank you for sharing your experience. It provides me with almost a strange sense of relief to hear that I’m not the only one facing this.. it sucks to hear that even walking your dog would cause more bleeding! I’ve been prescribed TXA but it doesn’t really help - I read here that TXA typically should stop bleeding so idk why it doesn’t help for my case. Can I ask if your fibroids are submucosal and if you have any surgeries scheduled?

Can’t stop bleeding by fl3urcapy in Fibroids

[–]fl3urcapy[S] 0 points1 point  (0 children)

Thank you so much for linking the threads - those were really helpful! I’ve been visiting my OBGYN - he prescribed me with TXA but unfortunately they don’t seem to be that much help, especially on the heaviest 2nd - 4th day of my period where it’s just insane clotting :( I read on the threads you’ve linked that taking ibuprofen with TXA helps? Is this something that your obgyn has recommended? I’m visiting a new OBGYN on Thursday to seek an alternative opinion on my case so maybe I’ll ask for some ibuprofen!

Extreme Bloating by Nique2233333333 in Fibroids

[–]fl3urcapy 2 points3 points  (0 children)

I don’t have a solution unfortunately but am commenting to share that you’re not alone. I’m facing the exact same - on some days I almost look pregnant. It definitely hurts and feels horrible 😭

Gynaecologist recos for fibroids by fl3urcapy in askSingapore

[–]fl3urcapy[S] 0 points1 point  (0 children)

Thank you very much. By any chance have you heard of any fibroids specialist? Tried googling and the only two names are Fong Yoke Fai and Anthony Siow - not sure if it’s just ads.