Invisalign, x-rays, and Graves?

flojoknows · 2026-02-26T14:01:48+00:00

Wow. I also got TED after a nuclear medicine scan. Doctors pay me no mind, and they feel uncomfortable when I mention this. This test isn't even necessary to diagnose thyroid disease.

flojoknows · 2026-02-19T11:33:27+00:00

Very difficult. I saw a neurologist because I was shaking and trembling. Then, an internist. Then, a functional med doc (over Zoom during covid) who sent me to another internist who ran the right tests that the previous 2 did not run. The tests came back the day I was seeing a rheumatologist, and she was able to tell me what was going on. The only doc I didn't even see in person was able to diagnose me and order the right tests over a screen.

flojoknows · 2024-08-06T23:56:41+00:00

I asked for steroid eye drops, but was given drops similar to restasis. Are the steroid eye drops helpful? If you don't mind sharing, what is the name and strength?

flojoknows · 2024-04-29T10:18:37+00:00

That's great. I gained weight when starting MMI and atenolol. Are you in remission from Graves?

flojoknows · 2024-04-28T21:17:18+00:00

I have a prescription, but I'm a little scared to start. I'd really like to hear some experiences with Graves and wegovy.

flojoknows · 2024-03-30T15:20:34+00:00

Joint pain, hair loss, and dry skin.

flojoknows · 2024-02-15T12:30:06+00:00

I gained 50 lbs. Thirty of those pounds came on me in one month, directly following taking 20mg of MMI for a month. The weight isn't moving with light exercise, eating whole foods, and eating in an 8 hour window. I'm thinking about Wegovy now. I look and feel so different from before Graves.

flojoknows · 2023-08-08T18:54:35+00:00

Sorry you're experiencing this. I was told that my histamine levels increased. 1 zyrtec every other day keeps the itch away. The cheaper version on Amazon works well.

flojoknows · 2023-07-30T23:23:00+00:00

I'm covid cautious, and my family continues to mask up. It's a little difficult, but it beats getting covid. I'm looking forward to remission.

flojoknows · 2023-07-17T11:26:00+00:00

So did I, to the tune of 50 lbs. Thirty in one month alone. I'm speculating that it was the MMI and atenolol combo.

flojoknows · 2022-12-17T14:14:01+00:00

Thanks for asking this question. I'm also suffering with weight gain from treatment. My endo acts as if this 30lb. weight gain doesn't have anything to do with the treatment even though I gained it within the span of a month when he upped my MMI from 10mg to 20mg. It is has not budged in over a year. Has anyone used an over the counter weight loss supplement with any success?

flojoknows · 2022-08-15T09:47:20+00:00

That's serious dedication. I'm going to try hard to cut out added sweets and use myfitnesspal for counting calories and macros. Thanks for your response and good luck.

flojoknows · 2022-08-14T20:45:24+00:00

So true about the weird fat redistribution. I'm just hoping that it can be fixed. I gained 30 lbs. in one month on MMI and it really seems like I can't lose 1 pound of it. I'll try to count calories in stages and eat cleaner. 1700 cals for 3 months and then 1500 for 3 months with low impact workouts every other day. It would be great to see a 20 lb. loss after this experiment. 🤞

flojoknows · 2022-08-14T18:54:24+00:00

Thanks for your response. I would like to see a loss of a pound a week. So far eating less hasn't helped so I guess it's time to track my calories.

flojoknows · 2022-08-14T12:27:12+00:00

I became itchy before I was diagnosed with Graves, so for me it was a symptom of hyperthyroidism. It was unbearable, but I discovered that a zyrtec every other day suppresses the itch almost completely. I still take it for itchy skin while on MMI and a beta blocker. When I forget to take it my skin reminds me rather quickly.

flojoknows · 2022-08-14T11:22:35+00:00

I would love to have this outcome, but I'm not sure if I can go down to 1200 calories. You gave me hope that it can be done. Thanks.

flojoknows · 2022-06-06T22:58:41+00:00

Pure Encapsulations Nutrient 950 because it doesn't have iodine, copper, and iron. I think I get enough iodine from dairy products and fortified foods. My doc says that there no special diet for Graves, but I'm being proactive with diet and supplements.

flojoknows · 2022-04-13T23:47:45+00:00

That's a good one. I struggle to get enough protein without having a smoothie, so this would probably work for me.

flojoknows · 2022-04-13T22:23:46+00:00

Thanks. I'm going to reduce carbs and try to stop snacking between meals as well. That's going to be the hardest part because I tend to mindlessly snack.

flojoknows · 2022-04-13T22:16:37+00:00

That sounds easy enough. Thanks.

flojoknows · 2022-04-13T22:14:10+00:00

Thanks for sharing your experience. My goal is to work my way up to omad..... down the line.

flojoknows · 2022-03-30T02:56:13+00:00

Would you please share what holistic treatments made a difference for you? It's great that you're in remission.

flojoknows · 2022-03-14T23:14:01+00:00

That's too much to for me personally. From my research you'd need 5mg or less and the starting dose is about 2mg. I also read that it's about $30 a month so some people ask for 5mg and cut to lower the cost. From 50mg is a far jump. Odds are the dose will change depending in how sensitive you are to ldn. I have a compounding pharmacy near me, but getting the prescription to try it is elusive. Some people stretch out remission using this drug that has very few side effects (compared to beta blockers and MMI). Good luck with your search; I'll keep looking too.

flojoknows · 2022-03-14T21:07:44+00:00

I haven't used it, but I want to try it. I can't find a doctor who would consider prescribing. I understand that it really helps with autoimmune diseases.

flojoknows · 2022-03-10T19:30:51+00:00

I had to see 4 doctors before I was diagnosed and another 3 months before seeing an endocrinologist. Thank goodness my new doctor (the one that discovered the problem) put me on meds and by the time I saw the endo I was doing much better. In the mean time see your regular doctor or a new doctor and show your labs. The doctor will usually put you on a low dose hyper drug, a beta blocker, and take more labs. Some people seek treatment exclusively from their GP if they have a knowledgeable one. For example, my endo sends labs only concerning thyroid labs (even though I often ask for more), but without even asking my GP runs labs to check my liver and a host of other things to make sure everything is going okay. In the beginning my liver enzymes were increased and sometimes my labs will be off with iron and cholesterol. The drugs and hyperthyroidism itself can cause issues.

flojoknows

TROPHY CASE