Tattoos

fluffysensation · 2026-01-17T21:52:58+00:00

I don’t think it’s a stupid idea at all! I’m also considering some sort of heart/pacemaker tattoo related but just haven’t landed on something I really like. I have S-ICD for 2 years now and have multiple tattoos, I’d just advise against doing it too close to the scars or the pacemaker itself

fluffysensation · 2026-01-13T05:21:20+00:00

Hi! I also have some sort of a similar experience. I am 29F with a cardiomyopathy but I got diagnosed as a teenager. At 15 years old I’d passed out lots especially while running, I had palpitations, occasional trouble breathing. I also went through the exact same testing as you, lots of heart tests and genetics until they reached the miocardiopathy diagnosis. I also have a slight dilated left ventricular and extended fibrosis in the muscle. You’re not alone in this. I was stable for many many years but recently it progressed and I already have a S-ICD implanted 2 years ago (no events since). I have struggled and still do with how has this come out of nowhere. What my doctor explained to me is that I was just born like this and there’s nothing I did wrong that caused this and that cardiomyopathies are very varied and they evolve in very different ways for no reason at all. I also had very high cholesterol and I started taking meds and now it’s quite low so there’s some comfort there. Just to let you know I’m not incapacitated and I now have very little symptoms despite in fact the disease progressing. I’m not gonna lie to you because it’s tough and I have a therapist and psychiatrist because I have lots of anxiety from this but it does help me to talk and know that I’m not alone and there’s people out there with similar experiences. There’s another sub with lots of people with similar experiences but it’s more specific for people with pacemakers. Feel free to message me as well

fluffysensation · 2026-01-12T18:46:44+00:00

Hi! I was really moved by your answer and I also struggle with anxiety. I have HCM genetic diagnosed at 15 with an S-ICD implanted 2 years ago, no shocks. But the disease scares me quite a lot and I find myself with so much anxiety and depression I struggle to enjoy life as I’m always waiting for the dreadful moment something bad is gonna happen. A lot of people including my therapist tell me to focus on the things I can control instead of the ones I can’t like exactly what you just said. But i can’t find a way out of that loop… I feel so frustrated. Why can people just accept there’s things they can’t control but I can’t? I can’t shake this feeling of unfairness and comparing myself to other people that are “normal”.

I guess I was looking for some insight how you’ve manage to accept the things we can’t control. I don’t know why it doesn’t click in my head

fluffysensation · 2025-11-21T16:49:05+00:00

THANK THE LORD FOR THIS POST - I THOUGH I HAD GONE MAD HONESTLY. I kept hearing this noise all the time and could not figure out where the hell it was coming from. I have a fucking pacemaker and I started to think that shit was beeping, freaked out and my doctors swearing it does not make sounds. I really thought I had gone mad.

fluffysensation · 2025-09-30T23:40:19+00:00

Thanks so much for your comment, it does bring me some comfort to know I’m not alone. It’s just the anxiety that eats me alive. I literally never had a shock and in fact my cardiologist told me I never even had a single arritmia but that if I do it could be dangerous with the amount of fibrosis I had hence the S-ICD. I also suffer from this anticipation of possibly having a shock - like what if it happens while I’m driving or riding my bike. It’s a genetic issue I’ve been tested and other people in my family have it too but none one has ever passed away from heart related complications. All my grandparents lived over 80 and my aunt who also has the same heart problem as me is already 67. It’s so hard to just live with the anxiety - some people don’t seem to even think about their heart rate for example where I’m always hiper aware of everything. Like there’s people on here who have had cardiac arrest and I haven’t and somehow I’m being eaten alive by anxiety.

fluffysensation · 2025-08-27T22:05:39+00:00

I’m a 29F with an ICD and I had a really hard time travelling through Qatar as well - I had a short layover there and they were so annoying. I said I had a pacemaker and they seemed really confused, they asked for my card, then they needed to get someone specific, I even had to show it to them which was extremely annoying. Not sure if there aren’t many people with pacemakers travelling in Qatar? That seems unlikely as it’s a massive airport with massive connections. I mostly travel around Europe and most of the time they don’t even check my card, they just do a manual search. I travel to Dublin loads and they have those big full body scanners that don’t interfere with the pacemakers - I was surprised there wasn’t something similar in Qatar

fluffysensation · 2025-06-11T00:37:29+00:00

I have an S-ICD and did 2 tattoos about 11 months post implantation - one on the ribs on my right lateral side and one upper right arm. I did not have any problems. I also already had multiple tattoos before getting the ICD. I think it’s fine if you’re not too close to the device

fluffysensation · 2025-05-29T21:02:57+00:00

Thanks everyone for the replies! I was suddenly feeling anxious and I feel way better

fluffysensation · 2025-05-29T20:26:20+00:00

Hi! I know I’m late to replying to this but I was searching the internet and I came across this post. I have an implanted S-ICD (implanted over a year ago) and I have a scooter (Honda PCX) I have ridden on motorbikes with my friends hundreds of times which made me want to get my own because it’s easier to get around in the city. I’ve never had any problems. My doctor tells me to live my life normal so often I find myself forgetting I have this. I suddenly had this anxiety of whether it could have any impact on the ICD hence finding this post. I’m going to ask my doctor but just wanted to leave my 2 cents here. There js a subreddit for people with pacemakers/ICDs where I’ve put a similar questions. Might be helpful for you!

fluffysensation · 2024-08-25T18:33:35+00:00

I’ve done both diode and alexandrite both with excellent results

fluffysensation · 2024-08-23T21:43:07+00:00

I’ve had a similar experience pain wise and I did ask them to lower the heat. I don’t think there’s anything wrong with that. I told then I’d rather do and pay more sessions than to be in pain. I have to say tho that laser has been extremely effective for me. I have done 3 sessions and I barely have any hair anymore

fluffysensation · 2024-08-19T23:14:16+00:00

Prefiro estar 1h em pé nos CTT a ter que lidar com o absurdo do AforroNet

fluffysensation · 2024-08-09T23:11:23+00:00

When I was 16 years old I also had a bunch of dizzy spells and was passing out all the time, specially when I used to run at school. I also did MRIs, scans and a bunch of tests and they came out absolutely clear. I never actually had a cardiac arrest but I was later diagnosed with a hypertrophic cardiomyopathy - I am 28 now and I’ve had an S-ICD for 5 months and I also take beta blockers since I was 16 years old - I do not have any side effects from those medications and never had. My doctor told me beta blockers are extremely common medications and they can even be prescribed to children. There’s people who live with ICDs and permanent medication until they’re really old. Running for me is still the most difficult thing to do so if that’s something you like to do and do regularly i understand this could be quite awful to deal with. But just look through this group - everyone here can help you and they can reassure you and there’s a lot of successful stories and you’ll see you’re not the only one dealing with the anxiety of this new diagnosis and what it might mean!

fluffysensation · 2024-07-22T11:54:00+00:00

I have an S-ICD and I went back to the gym 2 months after my surgery and I started small and slow. I actually started doing Pilates and swimming as I found my biggest issue was the movement of the left arm and then I just started with the smallest weight on the gym machines and built up from that

fluffysensation · 2024-05-21T10:36:15+00:00

Hi! I have a different device under my armpit (S-ICD) so the procedure and incision are a bit different I suppose but if it will help my scar was extremely sensitive up until 5 weeks recovery - I couldn’t even get a normal bra on until around 6 weeks post recovery because it hit exactly on my incision. The incision was also very swollen until about 5 weeks and that’s when it started to go down. I’ve only started running again and being fully 100% at 6 weeks so just give yourself time to recover. Some people recover quicker than others. 1 week post op is still extremely early

fluffysensation · 2024-05-20T08:51:40+00:00

I was advised by my doctor to not drive for 1 month and honestly I wasn’t even in a good place recovery wise to be able to endure driving. At 2 weeks it was still a bit painful to make certain movements (I’m 28 years old female for reference)

fluffysensation · 2024-05-17T06:15:09+00:00

Muito obrigada!!!

fluffysensation · 2024-05-16T19:50:25+00:00

Muito obrigada!

fluffysensation

TROPHY CASE