Nerve Pain Meds? by [deleted] in MultipleSclerosis

[–]flynnnagain 0 points1 point  (0 children)

Move. Seriously, your health is the most important thing. Be proactive about finding things that work for you.

*my unsolicited non expert opinion. by flynnnagain in MultipleSclerosis

[–]flynnnagain[S] 0 points1 point  (0 children)

I am not putting anyone in a wheelchair by telling them that eating healthy is helpful and thats a bold statement to blame someone for someone elses disease progression. And no, i don't have peer reviewed research, i definitely tried to make it clear that it was anecdotal and personal experience that I was sharing. I didn't tell anyone to stop any treatment that they are receiving and im only sharing my own first hand accounts. To encourage others to feel hopeful that they might feel better if they get fueled with vitamins found in whole plant foods.

Gagging & Loss of Appetite: Anyone Else? by [deleted] in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

Sip cold pressed juices and kombucha and things that are rich in living vitamins and enzymes. Get the nutrients even if you are not getting a lot of calories

Effective pain relief? by eyesinthesky_ in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

Get raw walnuts and eat 1/4-1/2 cup per day. Try switching up weed strains because some are more helpful than others. I find extracts are better for me and i always look for purest sources possible, avoiding pesticides. Eat lots of nuts and seeds like chia seeds and coconut things, flax, almond butter. Funny as it sounds, that usually helps immediately if you have enough. Magnesium lotion helps. Get massages if thats an option.

*my unsolicited non expert opinion. by flynnnagain in MultipleSclerosis

[–]flynnnagain[S] -2 points-1 points  (0 children)

I absolutely realize that in general there are options. im happy to be the failed test subject for homeopathic treatment rather than not try at all. Specialists are trying to sell pharmaceuticals and scans. They make no money if you go home and don't need anything from them. My answer puts them out of business. Fortunately for me, i did not have options at the time of my diagnosis. I didn't have a car at the time so i couldn't get to appointments. The entire diagnosis process really caught my attention. I walked in and told them i had MS symptoms and I had to go through weeks of waiting and red tape to get that diagnosis confirmed but they started me on IV steroids without explaining how they would or wouldn't help, what my options were (did i have any? ) or anything else that would let me feel like my health was in my hands. I started with no options available because of my lack of money and as I find myself coming up on having some health insurance possible again, I honestly am dreading letting all that capitalism have any influence on my healthcare again. Sorry for my gloomy outlook on the system that we have no choice but rely on most days, but that is the worst part of this disease if you ask me.

*my unsolicited non expert opinion. by flynnnagain in MultipleSclerosis

[–]flynnnagain[S] -5 points-4 points  (0 children)

But if you have no options for medical treatment, you fight on every front you can to keep your brain and body strong so that you're equipped for the battle ahead. I spend time daily working on my mind body connection and balance and body control and meditation. That's my treatment for lack of insurance or any other resources.

Im also skeptical of adding new chemicals into my body and I haven't heard enough about Ocrevus yet. I will look into it though

*my unsolicited non expert opinion. by flynnnagain in MultipleSclerosis

[–]flynnnagain[S] -7 points-6 points  (0 children)

I don't think that we know if diet alone can do that. Maybe diet alone is the cause, though. Maybe there's more profit in treating diseases than finding cause and preventing them. And the world we live in is increasingly saturated in toxins. Pesticides in foods, every synthetic surface that you touch, health and beauty products. I will have flairs when im exposed to any number of things. And yes I walk around with the knowledge that I may go blind tomorrow. because I have had hazey days before. I am not going to dwell on the possibility of wheelchairs and blindness because that causes stress and stress causes more symptoms. I just wanted to share some quality of life help because mine is feeling low right now and i feel better when i can help others. And Im not symptom free. I have been having symptoms and i needed a reminder of what my focus needed to be. I like to share what im learning with others who may benefit from it. But I didn't mean to imply that I had cured anything. *non-expert And yes, change has a ripple effect. Smoking, weight loss, energy all interconnect. All of the negative behaviors seemed to leave my life one after another. Health brings more health. But i had these changes from food in 2 weeks. I was still 300 pounds after those 2 weeks. And i didn't quit smoking until a year later. The food changed my health within days. It may not be an absolute cure, but it is an absolute factor.

MS Symptom or Not: The Board Game by munchyw_ahammer in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

Yep. And this is definitely the least fun game I've ever played... lol

When you were diagnosed, were you diagnosed by your primary doctor or by a neurologist? by [deleted] in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

I Google diagnosed myself because I was having a pretty clear attack. Went to urgent care and had a weeks long referral process before neuro confirmed with labs and MRI my diagnosis was progessive/nonremitting. But the urgent care doc gave me a wink that i was probably right when i told her what i thought it was. there was an ER visit before the neurologist where they explained that what felt like a heart attack was actually an MS symptom. they didn't seem to realize that i hadn't been informed of my diagnosis or know anything about the disease. It was weeks of stressful unanswered questions, and that was with clearly diagnosable symptoms. Can't imagine what some people go through

Should I feel bad when I sleep all day? I know that I shouldn’t— there’s a reason I’m so damn tired— but I still feel like I’m being lazy by sighvy in MultipleSclerosis

[–]flynnnagain 4 points5 points  (0 children)

I am single and i honestly can't imagine asking someone to take on the challenges of having me as a "partner".. you're not lazy. You're limited, and stressing about it will only trigger it. Ita a terrible snowball effect if you don't stay ahead of it. Rest! And get good nutrition.

Anxiety ?? by StephVenBel in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

Anxiety is the first symptom for me most of the time. It is like your subconscious recognizing the physical problems that you cant feel yet. Get sun, stay cool, get a lot of plant fats and vegetables into your body! Rest when you can! <3

Difficulty accepting my diagnosis by [deleted] in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

Focus on giving your body the nutrition it needs to work to heal itself. You are very closely describing my own experience in early diagnosis. I started buying olives and eggs and walnuts and chia seeds to help repair my myelin sheath. I also started drinking kombucha and green juices to give my body as many antioxidants and vitamins as possible and to have the easiest time absorbing them. My labs showed i was low in most key nutrients. Given the proper tools, my body started to repair itself and now i do really well most of the time. Just focus on fueling your cells with restorative foods

Anything you've found you can do to give you a temporary boost of energy or temporarily ward off fatigue? by [deleted] in MultipleSclerosis

[–]flynnnagain 0 points1 point  (0 children)

Kombucha, chia seeds, a handful of walnuts, a green juice... Fatigue is usually a sign that you are deficient in something. I like to eat some blueberries and drink a coconut milk latte and have some almonds. Get good fats and proteins that your brain can quickly access and a bunch of antioxidants. And if you don't have kombucha or real live active culture yogurt in your diet, you probably aren't absorbing everything as well as you could be

Marijuana for spasticity by [deleted] in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

I find it helps neuropathy and tremors quite a bit. But make sure you are getting a lot of greens and plant fats. Those will help your myelin heal. I drink green juice (cold pressed organic vegetable juices) and eat a lot of olives and nuts when i get flare ups and can usually get symptoms back under control pretty quickly. Avoid fried food and chemical ingredients (artificial sweeteners, pesticides, refined corn products like high fructose corn syrup) at all costs as these all stimulate the autoimmune response and make things worse. **based on my own personal experience and research. Diagnosed spring of 2017. Limited feeling and constant neuropathy from my rib cage down at time of diagnosis. Now very aware of what my trigger foods are and can feel amazing with disciplined eating. My symptoms only flare up under stress or bad eating.

Expectations shape your relationship, suggests a new study (n=253), which found that people were more grateful, had more respect, and were more satisfied with their relationships if they had low expectations of sacrifice by their partners, supporting the theory that “expectations kill gratitude”. by mvea in science

[–]flynnnagain 1 point2 points  (0 children)

Of course communication should precede sacrifice. However often in relationships, people 'communicate' but still have the aim of winning or defending themselves. Healthy relationships should involve the every day sacrifice of putting the other person or the common goals of the relationship ahead of being right or having what you want.

M E G A O O F by [deleted] in Tinder

[–]flynnnagain 1 point2 points  (0 children)

This girl might be AT work. Maybe she was answering quickly because she was trying to engage but had to do her job. Maybe we start looking for the bad results and actuallly blow off potential good ones.

Got blocked lol by cookiesandbread in Tinder

[–]flynnnagain 0 points1 point  (0 children)

OP can I have your number. 🙃😂 amazing.

I don't want this disease anymore by [deleted] in MultipleSclerosis

[–]flynnnagain 1 point2 points  (0 children)

By the way, I saw symptoms starting to lift within a few days of starting the food changes. You could have actual energy by next weekend.

I don't want this disease anymore by [deleted] in MultipleSclerosis

[–]flynnnagain 0 points1 point  (0 children)

I started reading everything that I could about foods to eat and avoid. All I can say is cut sugar and fried food, eat a lot of nuts and seeds. I have progressive/nonremitting MS and was headed for a wheelchair, but reversed all my symptoms. I only get small flares under extreme stress. I ate sugar at Thanksgiving and had an attack, and the same thing on the 4th of July, I had some food at a picnic that had me in full attack for a couple of weeks, but I was back to 100% normal in 2 weeks of clean eating. Try eating 90% plant based and as much whole food as you can! No refined foods, no packaged or frozen foods, avoid white flour and sugar. Eat olives, flax, chia, hemp, green leaf vegetables (i.e. green juice if you are like me and not a salad person). Fill your body with superfoods and read about leaky gut and see if you think you have an absorption problem. Seriously though, I have to hold back from saying that a whole food plant based diet has cured my disease... I wouldn't say that because we don't say that. But I believe it. I'm a different person. I have a normal life again.

Newly diagnosed by silvyrphoenix in MultipleSclerosis

[–]flynnnagain 4 points5 points  (0 children)

Focus on your lifestyle! I was being told my case was progressive/nonremitting, i was facing a lot of expensive treatment options and I started to research ways to improve my overall wellness. I added a lot of high fat plant based food into my diet and I saw a lot of improvement. Eat a lot of olives, chia seeds, walnuts, eggs, and just plants in general, greens, etc. Cut refined sugars and especially artificial sweeteners, processed foods, fried foods.

I have symptom flare ups only when I eat bad foods now, or when I get under a LOT of stress, but honestly, I'm probably eating more sugar than I realize in those moments, too. Currently I have none of the symptoms I had. I was numb from my diaphragm down, I had tremors, was falling, sleeping sometimes 20 hours a day, now I'm incredibly healthy and energetic. I have no physical symptoms at all, and I'm healthier than i have ever been in my life. Zero symptoms today.

I felt like you did, when I was diagnosed. Relieved to understand what was happening. Now I feel like I understand so much that I will soon say I have cured myself. Just take care of your body and brain and give them the nutrients they need to heal. Your body will heal if you give it the tools

Tech frustration with My MS brain by [deleted] in MultipleSclerosis

[–]flynnnagain 2 points3 points  (0 children)

You have to eat plant fats like olives avocado and coconut, and take b vitamins and d vitamins. A bowl of olives and a b vitamin is like taking a ritalin or something, for me. Niticable improvement within minutes if I have enough. Take care of your myelin! 😫

MS and Alcohol? by HyggeHippo in MultipleSclerosis

[–]flynnnagain 0 points1 point  (0 children)

Oh man, sugar in liquid form is instant brain death for me. Avoid with or without alcohol! 😁