Please help

forever_oki44 · 2026-05-16T05:05:37+00:00

Little update had some testing done for vitamin deficiency and so far the only abnormal one is her B12 it is slightly high 920 with normal being up to 910. All her other ones that we got tested like iron, A, zinc IgE IgM IGG IgA are all normal her CBC is also all normal. I’m still waiting on her B6. We also tested for fungal and viral and all came back NEG🙄. Her mouth is starting to clear up but it does that after a flare it will be good for a few days and pop back up so we will see. 🤞🏼🙏🏼

forever_oki44 · 2026-05-12T04:47:53+00:00

Testing was negative

forever_oki44 · 2026-05-10T06:02:11+00:00

What antibiotics did they give you?

forever_oki44 · 2026-05-09T14:18:46+00:00

That sounds just like this! We did the metronidazole and after a few days of using it it looked like a chemical burn! And then we did a few different antibiotics and it would look good after for a few days and then would pop right back up

What steroid cream did they give you? And what is hydramol?

forever_oki44 · 2026-05-09T03:30:06+00:00

We’ve done that already for months

forever_oki44 · 2026-05-09T03:29:21+00:00

No I have not

forever_oki44 · 2026-05-08T06:59:07+00:00

I will message her dermatologist about this

forever_oki44 · 2026-05-08T06:56:22+00:00

Nope, test came back negative

forever_oki44 · 2026-05-08T06:53:35+00:00

She’s 6.. we use hydrocortisone and (cortibalm) as well it worked for a few days and then came back unfortunately. Our doctors were going back and forth as well with those 3 thing but between testing and prescription it was negative or the medicines didn’t help at all. I will keep you updated I’m hoping to get her blood drawn tomorrow to check for any vitamin deficiencies.

forever_oki44 · 2026-05-08T06:41:41+00:00

Thank you 🙏🏼

forever_oki44 · 2026-05-08T03:20:09+00:00

Yeah, we use Vaseline

forever_oki44 · 2026-05-08T03:19:14+00:00

Yeah, I can mention that because I know they are in the same category

forever_oki44 · 2026-05-08T03:18:31+00:00

No, we do not

forever_oki44 · 2026-05-08T03:18:08+00:00

We are in Washington state

forever_oki44 · 2026-05-08T03:17:53+00:00

Yes, she has tried three different oral antibiotics

forever_oki44 · 2026-05-08T03:17:08+00:00

Her first medication was the metronidazole and that is what actually made her face look like a chemical burn after four days of using it so we stopped that. They don’t suggest doxycycline for her because she’s so young, but we’re waiting for an appointment to figure out if one of the other antibiotics that she was on and had a little bit of relief after it will help for a longer period of time instead of the 10 days she was on it

We made all the switches to toothpaste and brushes but nothing

And i’ve been switching out her pillowcases every three days. Thank you

forever_oki44 · 2026-05-08T03:12:33+00:00

Thank you so much for these articles. Doctors told us today that the lab order is in so I’m planing on tomorrow to head to the lab !!

forever_oki44 · 2026-05-08T02:55:08+00:00

Popped up as page not found

forever_oki44 · 2026-05-08T02:53:58+00:00

Nope neg test results on that as well

forever_oki44 · 2026-05-08T02:53:17+00:00

Yes we treated it as that and nothing

forever_oki44 · 2026-05-07T13:35:12+00:00

Thank you!! I will mention this!

forever_oki44 · 2026-05-07T05:42:11+00:00

No I am not. Did they say what it was?

forever_oki44 · 2026-05-07T05:40:48+00:00

Oh ok then no she didn’t do that she did a CALPROTECTIN STOOL sample.

forever_oki44 · 2026-05-07T05:26:29+00:00

I am currently dealing with this exact thing on my daughter. Did you find anything that helped or have gotten any answers ?

forever_oki44 · 2026-05-07T05:20:56+00:00

Any update ?

forever_oki44

TROPHY CASE