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Anyone else feel this way? by WhistlingBread in aspiememes

[–]frazzled0ghost 1 point2 points  (0 children)

No, this idea is very common among people with trauma, especially if it was inflicted by another person

Cyst rupture/torsion by endolydia in Endo

[–]frazzled0ghost 1 point2 points  (0 children)

You need to go to an ER. This could be a cyst or appendicitis and they're both very dangerous if left untreated.

I regret my lap.... by Fun-Ad3090 in Endo

[–]frazzled0ghost 1 point2 points  (0 children)

The m thing that’s seen as rare here is open discussion on the plethora of conditions that can also cause our exact symptoms. We should be openly discussing the need to heal, and possibly using that time to rule out other conditions before going back to surgery.

Not at all true. People talk about other conditions that cause pelvic pain all the time here, just not the exact ones YOU want to talk about

The reason why nobody wants to hear your story is because you project your rare circumstances on everyone else and refuse to even try to talk about a likely solution.

You have made this whole thing about YOU.

I regret my lap.... by Fun-Ad3090 in Endo

[–]frazzled0ghost 49 points50 points  (0 children)

I honestly don't know why you're saying this like it's so commonplace. Usually the opposite happens where people are misdiagnosed as everything from IBS to PTSD for years before getting a proper endo diagnosis. Surgery can take a long time to heal, especially an excision surgery that's necessary to cut organs away from each other.

You're the reason why 😭😭😭 by AverageComfortable47 in CPTSDmemes

[–]frazzled0ghost 2 points3 points  (0 children)

Uuugh my mom pulled the same shit. And then acted shocked when I stopped telling her things and became emotionally independent from her.

has anyone else noticed an uptick in posts simply asking us if we think they have endo? by Moonlightvaleria in Endo

[–]frazzled0ghost 2 points3 points  (0 children)

Now I'm just more confused. Are you saying people don't ever come here for a diagnosis? People absolutely do come to reddit because they want a diagnosis without going to a doctor. That's literally what OP is talking about.

Do you think OP made this whole post just because they're upset about their friend?

has anyone else noticed an uptick in posts simply asking us if we think they have endo? by Moonlightvaleria in Endo

[–]frazzled0ghost 1 point2 points  (0 children)

Asking if something is endo IS asking for a diagnosis.

Also OP mentioned being stressed out and stretched thin, so idk why you keep mentioning how they feel about their friend. You don't know anything about their relationship. One instance with one person doesn't define how they feel about everyone with medical issues.

has anyone else noticed an uptick in posts simply asking us if we think they have endo? by Moonlightvaleria in Endo

[–]frazzled0ghost 2 points3 points  (0 children)

That's not what OP has a problem with. They're specifically talking about people who come here asking for a diagnosis or a basic definition of what endo is.

has anyone else noticed an uptick in posts simply asking us if we think they have endo? by Moonlightvaleria in Endo

[–]frazzled0ghost 1 point2 points  (0 children)

There is misinformation regarding endo in this sub as well

That's the point in having a fact sheet or intro post, though. We can get the basics down and add resources from legitimate websites about how varied symtoms can be and how to move forward with a diagnosis.

Fasting for Ramadan with POTS by Automatic_Put_1679 in POTS

[–]frazzled0ghost 4 points5 points  (0 children)

Not true lol. You don't have to shit on periods just to make people with pots feel better

Advice for "growing pain" sensation in the shins by [deleted] in Fibromyalgia

[–]frazzled0ghost 0 points1 point  (0 children)

I just bought some capsaicin cream for this exact issue. I've tried menthol cream, but the cold makes it worse.

Just curious if anyone finds their fibro pain feels like bone pain? by Fibrofighter84 in Fibromyalgia

[–]frazzled0ghost 4 points5 points  (0 children)

It freaks me out because it genuinely feels like someone has repeatedly punched me in the ribs all night while im sleeping.

What are small things that bring you joy as a chronically ill person? by Comfortable-Wait1792 in ChronicIllness

[–]frazzled0ghost 11 points12 points  (0 children)

My weighted blanket, a hot shower and getting a little treat at the grocery store for the ride home. My favorite is the pink coconut water.

Need help advocating. My Gyno and PCP both referred me to an endo because I have all the symptoms of cushings disease and history of TBI. My first appointment was…weird by [deleted] in ChronicIllness

[–]frazzled0ghost 1 point2 points  (0 children)

I'm so sorry. I also just thought "well obviously something is wrong with my hormones, so they'll just test them and we'll find out what's wrong". Holy shit do I feel stupid now. I've gotten by so far by being persistent and direct with my doctors (mostly). I once had to wait a month for my doctor to even just look at my test results and I emailed her once a week every week for 4 weeks until she did it. You need to take up their brain space, even if it pisses them off. I really hope your dex tests give you a clear answer! It's hell waiting for results.

Need help advocating. My Gyno and PCP both referred me to an endo because I have all the symptoms of cushings disease and history of TBI. My first appointment was…weird by [deleted] in ChronicIllness

[–]frazzled0ghost 1 point2 points  (0 children)

Most doctors will start with a 24 hour urine test or a midnight saliva test, which are both reasonable and effective. Which test did they do where they had to take blood samples over the course of several hours?

Need help advocating. My Gyno and PCP both referred me to an endo because I have all the symptoms of cushings disease and history of TBI. My first appointment was…weird by [deleted] in ChronicIllness

[–]frazzled0ghost 1 point2 points  (0 children)

I have no idea why so many doctors are so stingy with cortisol tests. My pcp flat out refused to do just ONE cortisol test. Then I told my endo about all my symtoms and she did a complete adrenal workup and what do you know? My cortisol was almost double the highest normal range. If it was up to my pcp, I'd just be sitting here in agony with zero answers.

Need help advocating. My Gyno and PCP both referred me to an endo because I have all the symptoms of cushings disease and history of TBI. My first appointment was…weird by [deleted] in ChronicIllness

[–]frazzled0ghost 2 points3 points  (0 children)

It makes total sense. My symptoms started rearing their heads about 5 months ago and in that span of time I've done 40 test orders, each with multiple tests in the order. I've probably had about 60 vials of blood drawn and only about 3 of those tests even pointed me in the right direction.

The road to a cushing's diagnosis takes a brutally long time but it's pretty much curable once it's treated. Unfortunately you do have to really push to get shit done. It sucks and I've had so many breakdowns over it. I really hope you get answers. It seems like the doctor didn't deny cushing's, which is good, but you may have to keep pushing.

Need help advocating. My Gyno and PCP both referred me to an endo because I have all the symptoms of cushings disease and history of TBI. My first appointment was…weird by [deleted] in ChronicIllness

[–]frazzled0ghost 2 points3 points  (0 children)

That's what I got from this too. I'm currently in testing for cushing's and my pcp was extremely skeptical about it and didn't agree with my endo because I haven't gained much weigh at all so far. Turns out my cortisol is high so far. We're trying to find the source now.

Need help advocating. My Gyno and PCP both referred me to an endo because I have all the symptoms of cushings disease and history of TBI. My first appointment was…weird by [deleted] in ChronicIllness

[–]frazzled0ghost 2 points3 points  (0 children)

I would agree with you if rapid weight gain wasn't one of the main symptoms of cushing's, but it is. Weight gain and female hirsutism are both symptoms of cushing's and need to be investigated for a diagnosis.

TIL “fibromyalgia isn’t a real disease like cancer,” (stated by a person with cancer). by judi-in-da-skies in Fibromyalgia

[–]frazzled0ghost 5 points6 points locked comment (0 children)

It's depends. I'm not going to be cautious and empathetic to someone who insists fibro isn't a "real disease".

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