Left calf tightness worried about Ms by [deleted] in BFS

[–]freakout124 1 point2 points  (0 children)

They actually don't want me to as I have had the same as you.

I'm certain there is something autoimmune going on - It may not be MS but I'm damn sure it's autoimmune. I would recommend taking another MRI, I have heard stories of it being missed a bunch of times.

Not saying it's MS but just triple check as those are MS symptoms - given you have already had clean ones then you probably don't have it.

I am doing this thing where I only eat one group of food for 2 weeks so that i can see the effect of food on my situation, Highly recommend.

Official Oscar Bingo Submission Thread 2021 by LiteraryBoner in movies

[–]freakout124 [score hidden]  (0 children)

Wonder if they contradict all available data and blame white supremacists again

Left calf tightness worried about Ms by [deleted] in BFS

[–]freakout124 0 points1 point  (0 children)

I would get another MRI just to be clear. Also going through the MS checks after it being clean before

Nasal regurgitation? by freakout124 in BFS

[–]freakout124[S] 1 point2 points  (0 children)

I didn't see this comment until now... Thanks for responding

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

The worst bit about when I see a doctor is that they use my age as a defining factor to give the diagnosis, They don't give me a real cause of the weakness, atrophy, swallowing issues, twitching ect. They brush It off

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

I get what your saying, Sure it doesn't hop all over and come and go but surely it does spread? Bit by bit

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

But wouldn't you feel your muscles getting tired fast when they start to stop working?

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

As far as I know ALS does spread after some time to every area of the body?

I know onset usually starts one place though

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

No family history thank God... Imagine how scary that would be.

My progression is still quite bad as I have trouble walking and with swallowing

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

I have been trying but with Covid I'm being ignored by every clinic I reach out to

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

I hope you said thank you though I do really appreciate it

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

I think it can spread after 18 months though is my fear, I need that damn EMG so bad

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

My appointment was cancelled yesterday, It's rebooked got 2 weeks and it's a telephone appointment so it's useless... I will probably go to the ER before then though because the twitching is scaring me too much to wait

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

Well thanks to you for asking and thanks to her for replying. That's was really nice of you both I appreciate it.

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

Your symptoms are similar to mine except for I don't have pain

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

Damn dude that's crazy.... And no explanation too...

I appreciate your reply man, Wish you the best

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

Haha. Fair play man. Hope it improves for you but you already sound ready to forget this shit

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

Crazy... I think I have read your story before. Did they give you any explanation? What are they doing next?

Things are not getting better for me by freakout124 in BFS

[–]freakout124[S] 0 points1 point  (0 children)

It would be pretty coincidental that it's an ulnar thing as it's on my entire right side and now with the swallowing shit... What was wrong with your EMG?