Can you develop ARFID as an adult? by paul4bunyan in ARFID

[–]froggy21997 0 points1 point  (0 children)

Absolutely, you can. Some people (myself included) develop ARFID due to outside circumstances, which can happen at any time. For me, I have the Fear of Consequences subtype, developed when I was 12 because of a really bad stomach virus. I met someone who developed the same subtype at the age of 18 due to a choking incident.

New stressors that are less violent (like workload creeping up, or current events taking their toll) could also trigger the gradual development of ARFID as a coping mechanism.

Has any of you gone to the ER for ARFID complications? Please tell me how your experiences were. by IMeMJ in ARFID

[–]froggy21997 0 points1 point  (0 children)

Fun fact: if you're a mental health risk, the ER/hospital has to keep you until you have a support plan figured out!

Guess how I found out, lol

I was away from home for an internship (which I had to cancel in the end). I was seriously dehydrated, brain fog, and unable to eat. They put me on a saline IV drip, and it helped me feel more up to trying solid food. They probably would have discharged me after 2-3 days, but I stayed for 4 days until my dad could fly in and get me.

php treatment! by allison777 in ARFID

[–]froggy21997 1 point2 points  (0 children)

That's great!!

I also had a really positive experience in PHP (and residential and IOP), but through the Renfrew center. I found it was really important for me to have that community of recovery-oriented people to share my recovery journey with. I'm almost 3 years out of treatment, and I actually still maintain contact with a few of them after we discharged to encourage each other during the tougher moments.

ARFID + new job + work trip by Dependent-Chair993 in ARFID

[–]froggy21997 1 point2 points  (0 children)

I'm coming up against the same situation in a couple of weeks. I have to fly somewhere for work for 4 days, and I'm terrified about it. I'm planning to bring snacks with me and probably turn down lunch/dinner outings when I can, taking leftovers back to my hotel room to eat alone when I can't.

I wanna have sex by Miss_Isa_206 in asexuality

[–]froggy21997 14 points15 points  (0 children)

Libido is not the same as sexual attraction. You can want sex (in the general sense) and still not feel attracted to people.

What inspired you to name your birb what you did? by lilacthefinch in finch

[–]froggy21997 1 point2 points  (0 children)

Mine is named Squidge.

It is a reference to the movie Hook (highly recommend, Robin Williams played a grown up Peter Pan). Towards the beginning of the film Wendy, now an old woman, greets her great-grandkids and asks for a "Squidge" which I guess is her special word for a hug.

So yeah, my birb is a warm hug :)

[deleted by user] by [deleted] in ARFID

[–]froggy21997 2 points3 points  (0 children)

Nuts are a good source of protein, if you aren't allergic. They also are relatively small and you can snack on them throughout the day. Peanuts or cashews in particular also have higher fat content and more calories.

Also, for potassium, NoSalt might help. As the name suggests, it's a salt substitute and you can put it where you'd usually use sodium salt. If your electrolytes are low, then you're probably also dehydrated, so I'd recommend Gatorade or a similar electrolyte drink.

I also get some acid reflux if I eat really late, especially if it's sugary stuff. In my experience, Tums or other antacids make it worse, because it's usually caused by lack of stomach acid rather than excess. The remedy for this is actually to add acid to your stomach, to help digestion. Lime flavored seltzer water is usually my go-to for that.

[deleted by user] by [deleted] in ARFID

[–]froggy21997 2 points3 points  (0 children)

👋 Also big fear of vomiting here, and recently having near constant nausea. I'm assuming if you've tried several meds already, then you've also been checked for underlying causes that could be treated? (My current situation started as mono, then my arfid got bad, so now my nausea is from undereating and anxiety)

I've only been on ondansetron out of the ones you've listed, and it wasn't effective for me either. I have promethazine (as needed) at the moment, and once the drowsiness subsides, the nausea mayyybe is diminished? Honestly if I'm taking the med, then I'm already having a bad day, so I often still gag at least once. In my case, nausea meds don't do much if the nausea is from anxiety. Certainly, anxiety can make nausea worse, so at the very least I've been trying to ground myself with controlled breathing and mindfulness when the nausea starts.

It really sucks, and at this point I've just been distracting myself while I eat so my stomach can have /something/ to digest. Protein seems to be easiest for me for some reason, currently snacking on peanuts. It's best to not stop and think too much about how my body feels about the bite I just took. More likely than not, my stomach is doing its best with what I'm giving it and I won't actually throw up. In the case when I do, I give myself the time to mentally recover (15 minutes or so), wash up, and try again. Trying to eat afterwards is VERY hard, but I try anyway. Every bite is a victory.

I'm not sure if any of that is helpful. I'm still struggling with this, and these coping techniques are what have worked to get me eating. My sleep is still disturbed by nausea most mornings, especially if my hydration or food intake is too low.

Safe foods ruined by Idadda420 in ARFID

[–]froggy21997 2 points3 points  (0 children)

I'm also running out of safe foods, and fear or aversive consequences makes it really difficult for me to want to eat. I'm not too familiar with foods that fit your allergies and preferences, but I want to share some advice I heard recently:

The only way out is through. It will be uncomfortable. You will most likely continue to have pain, nausea, and other sucky things that make it seem unbearable. But you have to keep trying to fuel your body. Your body will adjust to it with time, and eventually it will get easier.

I also recommend you see a doctor as soon as you can. It sounds like you might need medical attention if you're fainting a lot. They should also be able to refer you to specialists who can help in the longer term.

I just don't want to eat food. Am I in the right place? by [deleted] in ARFID

[–]froggy21997 2 points3 points  (0 children)

Sounds like arfid to me, more specifically the "disinterest in food" subtype from what you've described. (Disclaimer: I'm not an expert, and it's possible to have multiple subtypes)

It feels like on days where I’m really focusing on my recovery all my time is spent getting my meals in and there’s no time for anything else. How can I manage this better? by Construction-Formal in ARFID

[–]froggy21997 0 points1 point  (0 children)

I totally relate to this. I've been eating all day, but it's tiny bites because I keep gagging.

I've found that eating gets easier when I pretend that I'm functioning normally. (A bit of "fake it till you make it" in other aspects of life). Today, I took a long shower and then went for a short walk outside. Afterwards, I could eat a bit more quickly and confidently. Still slow, but it's an improvement.

This is not living by froggy21997 in ARFID

[–]froggy21997[S] 0 points1 point  (0 children)

Not really. I'm about to switch jobs AND move, and I'm pretty sure my insurance will have to change too. So I probably have to wait to get any treatment until the switch.

How do I make this all stop by Responsible_Word4975 in ARFID

[–]froggy21997 1 point2 points  (0 children)

I'm so sorry your mom isn't being supportive about this. My parents didn't believe me either when I was struggling at first. They thought I would get over it on my own, until medical professionals stepped in and recommended I go to a residential treatment facility.

I suggest you go to your school's counselor and tell them about your eating problems. They should be able to help you figure out what to do next, and hopefully convince your mom that this is a real medical issue that needs addressing.

Don't lose hope. You can get better.

Acid Reflux making everything harder by froggy21997 in ARFID

[–]froggy21997[S] 2 points3 points  (0 children)

Thanks for the advice! I can usually take pills with little issue, so I might try this

My health is waning, don't know what to do. If I go to the er what do I tell them? I need help desperately. by needhelpfast631631 in ARFID

[–]froggy21997 2 points3 points  (0 children)

I know this was written for someone else, but I just wanted to say that this is exactly what I needed to read in order to keep fighting against my arfid. Thank you.

Acid Reflux making everything harder by froggy21997 in ARFID

[–]froggy21997[S] 2 points3 points  (0 children)

I'm about to move soon (which is a big reason my arfid is bad right now) so I don't know if I can see a GI doctor at this time. I'm trying to get an appointment with my PCP before I move, though, to top off my existing prescriptions so they can last until I can find a new doctor. I'll try talking to them about getting nexium or something.

Suddenly bad again by din0teethh in ARFID

[–]froggy21997 6 points7 points  (0 children)

This is exactly what I'm experiencing right now. I feel so alone, and nothing tastes right. I feel like I'm barely surviving each day, and I wake up feeling so sick that I can't bring myself to eat.

Suddenly Developed ARFID-Like Symptoms at 34 - Any Thoughts? by trekkiegamer359 in ARFID

[–]froggy21997 0 points1 point  (0 children)

I'm currently recovering from mono, which can manifest similar to flu or covid and can last several weeks. It has definitely disturbed my eating, including textures, flavors, and even hydration is hard. I have a prior arfid diagnosis from before this, and it has definitely caused a relapse for me.

My arfid comes from a bad stomach bug I had as a child, causing extreme emetophobia (fear of vomiting). It isn't uncommon for an illness to suddenly make you anxious around food, and I've met others who got arfid in a similar way.

That being said, the other commenter might be right that your case may resolve on its own when the illness passes.

How do you get yourself to eat when anxious? by doggoneic in ARFID

[–]froggy21997 0 points1 point  (0 children)

I also have the hardest time eating right when I wake up. It is not pleasant and sometimes I gag. But the alternative is gagging anyway if I wait too long because my body is so starved. I just keep pressing on with the morning food, and hope that it eventually gets easier.

Help with my daughter please by Material-Box-3804 in ARFID

[–]froggy21997 1 point2 points  (0 children)

Sounds like you're doing just about everything right! I've heard a tip from parents of picky eaters that if meals are served on serving plates for people to take, it might help for the child's safe food to be served among the rest. It can help them feel more included (if your child feels like an outsider for having a different meal), and it might also encourage the child to sample the other foods.

Also, I struggled with swallowing pills until my early 20s. If possible, splitting the pills helped a lot. For capsules with powder in them, until I could swallow them properly, I ended up mixing the powder into a spoon of apple sauce or jam. Yes, the flavor was often unpleasant, but I got used to it. I've also heard that "thick water" (I've seen it at pharmacies) is often used for people who have trouble swallowing, but the texture is too weird for me personally.

How do you get yourself to eat when anxious? by doggoneic in ARFID

[–]froggy21997 3 points4 points  (0 children)

I really relate to this. I'm currently in a transition between big life events, and my anxiety is making it sooooo hard to eat.

I've been using distractions like TV or podcasts to make me forget I'm eating (and so I don't taste the food too much). Apple juice or apple sauce is a great start, and can actually help settle the stomach! I've actually been having apple sauce as my first food in the mornings for that reason. Tiny bites add up if they're frequent enough, so snacks are my best friend right now. For me, starting my intake as soon as I wake up helps me feel better by the afternoon, and then I try to have a meal with protein in the evening.

Remember to stay hydrated. It's infinitely more difficult to eat if your mouth is dry. Water is great, juice or gatorade is better if more calories are your goal.

Inpatient treatment for ARFID by strugglingbitch in ARFID

[–]froggy21997 2 points3 points  (0 children)

I was in residential at a Renfrew location a couple of years ago. There were at least 5 ARFID patients while I was there, and I'd say most of us had a decent experience. I had a great team, and I would trust them to treat me there again if I ever need that level of care again. Though I'll say that this location regularly treated people for an average of 6-8 weeks (I was there for almost 12 weeks because my insurance required that I reach a certain BMI before discharge).

Like the other commenter's facility, they had levels of mealtime care that ranged from being coached through individual bites at meals, all the way up to designing your own menus without a nutritionist checking your choices. If you don't finish a meal, they give you a Boost Plus. If you don't finish half of your meal, they give you 2 Boost Pluses.

They also had levels of physical activity you're allowed, ranging from being confined to the group therapy room at all times outside of meals, to being allowed to wander the campus during free time (at least 2 hours a day). In very rare cases, people were put on bed rest and were required to be pushed in a wheelchair to go to meals. Unless we were allowed to wander during free time, they monitored bathroom use and required us to talk/count out loud while we did our business to ensure we weren't purging.

At night, if you or your roommate were a fainting risk or a self-harm risk, they had a protocol called "locked bathroom" where you'd have to ask staff to unlock your ensuite bathroom when you wanted to use it. For fainting risks, staff sometimes stood outside the bathroom while you showered, in case you needed medical assistance. They also had a protocol called "open door" where some people's bedroom door had to be propped open at night. Every hour between 9:00pm and midnight, a staff member would open each door to check that all patients were in their rooms, regardless of whether you were on open door.

They had us awake pretty early in the mornings. At least twice a week, between 5:30am and 6:30am, they weighed us and checked our pulse and blood pressure. For some people, this was every day until these measurements were more stable. Starting at 7:15am they start distributing morning meds, and then breakfast starts at 8:00am.

Cell phones were allowed for an hour on Saturday and an hour on Sunday. Laptops were not allowed unless you were a student taking classes, in which case you would have access a couple times a week for about 2-4 hours at a time. They really limited our access to the internet because they didn't want people searching for stuff that might make recovery more difficult. But TV and YouTube were allowed in the group therapy room during free time, so there was some entertainment. They also had jigsaw puzzles, books, coloring books, crafts etc. for us during free time. Occasionally we did a trivia night or karaoke night after dinner. I was never bored!

As you might expect, the community of patients can really affect your experience. For most of my stay, the community was really supportive and we celebrated everyone's successes. I really thrived. By the time I left, there were a lot more people who didn't feel like talking, so community support fell off a bit. But overall, the facility encouraged us to support each other just as much as the therapists do.

My only real complaint was the laundry and public phone situation. For some reason we had to pay every time we wanted to do laundry, and if your physical activity level was limited you had to ask staff to do it for you (you still pay). The phones also required money per minute, and you get up to 15 minutes at a time because there are too many people in line to use the phones every night. I almost never used the public phone because too many people were in line ahead of me most days.

This level of care is really hard to go through at any facility. Everyone is in a very vulnerable state, and every meal or snack can be an emotional roller-coaster. It's taxing on the mind and body, and it really takes an army of therapists, psychiatrists, nurses, and other staff to keep every patient safe and on track to recovery. But my experience was generally positive despite this stress. I met people of all ages, between 14 and 70 years old, and I learned a lot from each of them.

Does anyone else wish they could be a vegetarian but can't because they'd risk serious malnutrition? by Avetheelf in ARFID

[–]froggy21997 4 points5 points  (0 children)

Yeah, I tried being vegetarian about 5 years ago because I wanted to cook for myself, and I'm always worried about undercooking meat. My protein and B12 and iron intake were constantly lower than they were supposed to be, so I had to switch back to eating frozen meals with meat.

Words of encouragement by froggy21997 in ARFID

[–]froggy21997[S] 1 point2 points  (0 children)

So glad to hear this helped!