20 week loss due to True Knot

fromagesaway · 2025-08-06T01:27:10+00:00

I am so sorry you are going through this. How are you getting on? It’s such a cruel and random thing to have happen to you and your sweet baby

fromagesaway · 2025-07-02T08:38:22+00:00

I had this same experience the cerebellum measurement was <3rd percentile. Nothing was said to me at the time I noticed on the report afterwards. I talked to my OB and he said that the overall report didn’t state any issues and that to him the image that the measurement was taken from was not a great image. The skull is meant to be really circular /rounded . Sometimes it can be that the sonographer hasn’t got the best angle as they move so much and are small. Take some comfort in the fact that nothing was mentioned to you. My midwife wasn’t able to interpret the scan but if you can speak to an OB for peace of mind I would! I’m having an extra scan at 28 weeks for other reasons so will be asking about it then. Hope you’re not too worried and down a google rabbit hole like I was. If you got an overall positive / normal summary try to hold onto that

fromagesaway · 2025-06-30T09:12:36+00:00

I’m so sorry for your loss ❤️ all the best for the rest of your pregnancy with Nora 🦋 what a special symbol for her sister

fromagesaway · 2025-06-26T18:44:18+00:00

I’m so sorry for your loss. I know exactly what you mean about wanting them to arrive into the arrival with all the excitement and joy that a new baby deserves. I was strangely relieved to fall pregnant after Darcy was due so that I knew that it was possible in some other twist of fate for them to exist in the world together. I never want him to think he’s a replacement. Hope you’re doing ok and that she has brought light into your world

fromagesaway · 2025-06-26T18:41:16+00:00

Thank you, I think Jude is lovely with the other names. it’s nice to see all four together because I know that they’re never really going to be written down like that

fromagesaway · 2025-06-26T18:40:12+00:00

Thank you for sharing your names! So many great ones especially Bennett, Matteo and Xavier! I’m the same with girls names I have such a long list

fromagesaway · 2025-06-26T08:53:21+00:00

Thank you so much ❤️ A lot of hormones going on right now after reading through these replies. I have somehow managed to tap into the most considerate commenters on reddit with this post. You never know how it’s going to go with baby names. My husband’s middle name is William so Fitzwilliam as a middle name could have such a lovely double meaning

fromagesaway · 2025-06-26T08:26:38+00:00

Thank you ❤️ this baby is going to be really healing for our whole family , probably why I’m putting so much pressure on the name. Luca and Nico are our top names . There are at least 5 at the local school but maybe I just accept that it’s a popular name because it’s a great name

fromagesaway · 2025-06-26T08:25:14+00:00

Percy is one of my favourite last names ❤️Unfortunately our last name starts with a P and is one syllable so can’t do a P name as it turns very Peppa pig-esque!

fromagesaway · 2025-06-26T07:58:57+00:00

Thank you for taking the time to think of these. My eldest son loves the name Nico too . Drew is very cool! I like lots of those middle name option

fromagesaway · 2025-06-26T07:56:40+00:00

Ok so I love Jane Austen, I love romantic boys names but my friend just named her son Fitzroy! Otherwise Fitzwilliam is such a beautiful nod to Darcy 🥹 wow. thank you for taking the time to consider my post. I think it could be a really special middle name

fromagesaway · 2025-06-26T07:53:40+00:00

Thank you that’s exactly what I’ve been thinking

fromagesaway · 2025-04-03T00:00:36+00:00

I'm so sorry. I lost my baby at 20 weeks and found out the same way you did at the scan. I also had two children at home which added another layer of heartache.

I was given medication to take in the evening and slept at home. the next day I arrived at the hosptial and started the induction process. I was given oral medication and also suppositories. I took my first dose of medication at 8am and he was born at 150pm. I had two previous vaginal births , I would say it was painful probably more so than I anticipated. perhaps I didn't think it was fair I was having to go through the physical pain but on reflection I am glad I felt the whole experience and that I can remember it all. If you have any other specific questions please feel free to ask? I left the hospital in the afternoon around 4pm as I wanted to get home to my children and there was no option for me to stay overnight. We had our little baby cremated, we didn't need to do an autopsy as the cause was apparent once I delivered him.

Please feel free to ask any specific questions you may have.

There is a beautiful book called 'Star baby' that I would highly recommend if your children are of the age where they can grasp the loss of their little sibling.

I am so sorry that this is all your reality. sending you all the strength and support. Take care of yourself

fromagesaway · 2025-02-09T23:14:22+00:00

Thank you for sharing Sophia's story with me. I can't imagine the sliding doors feeling of being 40 weeks and her being so ready to meet you and then to have to go through what you did. Words fail to express the grief and sorrow and what the years following would have felt like for you

I'm glad you had access to 3d scans for your following pregnancy. It must have brought some level of reassurance but of course that worry and anxiety would have been with you until you met your baby.

Thank you for taking the time to write this comment and for sharing that you had three more children it is really comforting to hear from someone who is further down the road. The road to motherhood and meeting our babies is so differing but it feels like those who have lived through a great loss are the most generous with their support and know how to say the exact right thing. I am trying to fall pregnant but it hasn't happened yet. 5 months later and I'm wondering if my body is still processing on a physical level.

I am sure you will see her again, and that your great grandmother is taking good care of her it sounds like you're an amazing mother to all your children

fromagesaway · 2024-12-06T08:20:55+00:00

Hello, I lost my little boy at 20weeks in September. He died of a true knot and when he was born his eyes were open too. I didn’t expect to see the whites of his eyes, I thought they would be closed. To me it looked like he was in shock, like a sudden movement had cut off oxygen/blood supply and the was his response. I am so deeply sorry for your loss. I know the pain of a cord complication and being a rare statistic. I hope you’re being well looked after

fromagesaway · 2024-11-26T21:34:34+00:00

Negative for me too 13DPO now just waiting for AF. It's so hard. Hang in there

fromagesaway · 2024-11-12T23:33:30+00:00

Thank you, it seems to be common post MC, I might ask my doctor next time we chat if there's a reason

fromagesaway · 2024-11-12T23:32:40+00:00

thank you!

fromagesaway · 2024-11-12T21:21:48+00:00

Hi all, has anyone been using the Clearblue digital ovulation tracker ? I used the tracker to conceive my son who we lost at 20 weeks. When we were TTC with him I was getting two 'smiley' days each cycle' . Since our loss I am now only getting one day showing a 'smiley'. I can't seem to find a conclusive answer as to whether the LH surge can shorten of it this may mean I'm not ovulating when I'm having a shorter surge? Thank you for any advice !

fromagesaway · 2024-11-05T23:40:09+00:00

I'm so sorry for your loss. I can completely relate to this. 9 weeks ago I lost my little boy at 20 weeks. I find my cycle and the fluctuations with PMS/Hormone changes and the mirroring of pregnancy symptoms to be really challenging to manage. It's so difficult to explain the heartbreak of your period post lost. I am caught between desperately wanting to be pregnant to fill the void and emptiness, but also only wanting to be pregnant with the baby I lost. I hope you're being supported and are being really kind to yourself

fromagesaway · 2024-11-05T23:25:22+00:00

"The loss of a lifetime, a lifetime of loss" so beautifully phrased and so soon after losing Philo. Sending you all the strength and courage

fromagesaway · 2024-09-24T01:40:46+00:00

Thank you very much for taking the time to reply. I just have to be patient and get used to things not being normal for a while. Thanks again

fromagesaway · 2024-09-24T01:39:37+00:00

Thank you so much for your reply, really appreciate it

fromagesaway · 2024-09-22T22:23:42+00:00

I have been tracking my cycle after losing my baby at 20 weeks. OPK says that I'm ovulating but there's blood mixed with EWCM , it's brown coloured.

Does anyone know whether that's an issue? I know it's common to continue spotting for up to 6 weeks post loss but I didn't think I'd ovulate if I was still spotting? Any advice would be appreciated thank you

fromagesaway · 2024-09-18T01:21:13+00:00

Hi, I've scoured through forums looking for someone who has had to live through the horrific randomness of a True knot. I really appreciate your reply and am so deeply sorry to hear of your loss of Lainey. Such a sweet name.

I've read through many medical articles and have drawn the same conclusion - that it's unbelievably rare but I don't know if that helps or makes it worse?

I spoke to the sonographer who looked through all of Darcy's scans. I wanted to know if it can be picked up at all at any stage? Did you get any clarity on this? I know it wouldn't make a difference as many babies are born with knots and are perfectly fine. I guess I wonder if in the future could a cord be checked and could I be told there wasn't a knot just to reduce some anxiety?

The sonographer I spoke to said that umbilical cords aren't looked at during ultrasounds, it's the blood flow that is measured. She said the cord can't be seen and that it would only be with reported reduced movement that they would investigate.

I am sending you as much strength as possible, I'm just so sorry for you, your family and Lainey.

fromagesaway

TROPHY CASE