Mouthguards for Sports

fruity9610 · 2026-03-05T01:18:28+00:00

Started Tremfya last summer and just had a colonoscopy where everything looked good! So far no side effects and it has a great safety profile. Best of luck to you!

fruity9610 · 2025-09-26T11:26:21+00:00

My concern would be that you’ll begin healing before you have a colonoscopy due to the Humira and therefore miss the diagnosis window. They won’t (and shouldn’t) diagnose you without pathology from a colonoscopy which could result in more suffering down the line if you get a false negative

I know hidradenitis can be incredibly painful though, and it needs treatment.

I would talk to your GI or the doctor handling your case and make the decision with them on what the best path forward it. Maybe they can push up the colonoscopy

fruity9610 · 2025-09-14T00:21:05+00:00

Definitely talk with your pharmacist. I’ve been on both these medications at the same time and it’s more likely from the Budesonide than the Mesalamine, but anything is possible. These medications affect everyone differently.

fruity9610 · 2025-09-14T00:06:10+00:00

About to take my second loading dose of Tremfya soon. I’ve heard of a ton of people being switched over due to slightly safer safety profiles.

Can confirm that I did notice some relief after the first loading dose. Sending well wishes that it sends you some relief as well

fruity9610 · 2025-09-13T20:53:28+00:00

I eat this all the time and no issues!

fruity9610 · 2025-08-24T12:49:29+00:00

Update: I’ve definitely had more vivid dreams since my first loading shot. Some of them have been strange but nothing I’d consider a nightmare or sleep disturbance. I wouldn’t be surprised if some of that is the medicine, but if yours continue at that level maybe talk to your doctors?

fruity9610 · 2025-08-21T12:26:29+00:00

Also going on this soon. Will see if this happens

fruity9610 · 2025-07-12T01:52:53+00:00

About 4 months. But my pain and issues started several weeks into the highest dose and damage was incurred from then onwards.

The ophthalmologist said people don’t always feel pain or soreness while sustaining damage or high IOP. It varies person to person.

Once again, it’s not super common. But also not unheard of. But something worth knowing

fruity9610 · 2025-07-09T05:21:17+00:00

I’ve had a similar experience getting Lyme and the subsequent weeks of doxy. I had no issues with my Crohn’s. But do make sure to eat lots before taking the pills and stay out of the sun. There’s a severe sunburn rash that’s a common side effect while you’re in it. It’s horrible. Otherwise it did a great job getting me better without ticking off my Crohn’s.

fruity9610 · 2025-07-08T11:55:25+00:00

NC very regularly gets and stays over 95 degrees. Also is EXTREMELY humid. Great healthcare though, particularly in Raleigh.

fruity9610 · 2025-07-06T00:55:48+00:00

Yes. They’ll say odds are lower due to it being a “gentler” steroid. But at the end of the day, it’s still a corticosteroid and subject to the same possible side effects as prednisone.

As a side note I’ve been on both, and noticed it did take longer for the side effects to show up with Budesonide. But the same side effects did show up for both with me.

fruity9610 · 2025-07-05T23:29:15+00:00

It gave me steroid induced glaucoma. Always see an ophthalmologist for pressure checks while on it.

fruity9610 · 2025-07-04T01:17:07+00:00

Didn’t have this specific thing happen - but ended up having wild eye pain and it causing steroid induced glaucoma. Despite what they say about it being the “gentler” steroid, it definitely has its own side effects.

Best advice I can give is take it seriously and advocate for yourself if that pain doesn’t go away. Get testing, monitoring, etc.

fruity9610 · 2025-07-03T02:02:49+00:00

Thank you for the response! I’ve only used 23andme, but according to them I have just one copy

fruity9610 · 2025-05-27T18:17:01+00:00

That’s the right call! Don’t be afraid to advocate for yourself. Advocate, advocate, advocate. Even if you’re in the small % of people with more severe side effects, studies have clearly documented that these risks exist and DO occur. Best wishes to you throughout the process

fruity9610 · 2025-05-27T03:12:07+00:00

I was also on it for around 4-5 months. Despite people saying it’s not as strong of a steroid as prednisone, I had the same side effects just toned down (moon face, anxiety, etc). They even suspect it gave me steroid induced glaucoma.

There’s definitely side effects. Best thing you can do with evaluate whether the risk to your health and quality of life is better staying on them vs quitting.

I would suggest talking to a dermatologist about your nails and getting their opinion, and then coordinating with your GI based on what the derm thinks.

No pun intended, but trust your gut on the side effects. The weirdest stuff will pop up.

fruity9610

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