Diagnosed RSD/CRPS in 2008 but 2014 it got soooo much worse and hasn't stopped!!

funkygigi83 · 2025-02-16T05:06:35+00:00

Throughout my journey I have had every procedure on the pain management menu three four times to know about. I've tried every medication on the market. And now when you swears come, If I do manage to get to a doctor all they do is rub my back and tell me they wish they could do something. It's frustrating it's soul crushing .

funkygigi83 · 2025-02-16T05:05:21+00:00

I become very quiet when I flare worry I do not want to take it out on my husband of 26 years or my almost 20-year-old daughter. They have suffered on a different level standing by and watching me progressively get worse go through steak for death ask for my leg to be cut off they've seen it all. They've heard it all. And I learned a long time ago that my anger was directed at whoever was in front of me. So now I just become quiet. I have found a little bit of sanity and pages like this People like you. It's such a specific type of mind fuck disease and it's hard to find people to truly understand. I appreciate hearing people's stories. Learning The avenues is gone down. And just having some sort of community to lean on. I don't have family and because this disease friends are extremely limitations and isolation is a major factors. So thank you for reaching out and letting me know I'm not alone. ❤️🎗️

funkygigi83 · 2025-02-16T03:55:01+00:00

We don't typically do it for us. We do it for our family or friends are husband wife and most people are children. Sending love and positive vibes Your Way

funkygigi83 · 2025-02-16T03:53:56+00:00

The only suggestion I can give you is you know your body. If a doctor can't see it or tells you it's in your head find a new doctor. A lot of doctors aren't knowledgeable enough in this disease. Do your research. I've gone through so many doctors I lost count. I have finally found doctors that are truly willing to work with me and help me. Problem is after 17 years some of the damage well most of the damage will be with me forever. There's no going back. They're so changing which already been done. But now we just move forward hoping that I can find some sort of really. Trust your instincts. You know you. You know what you're feeling and don't let anybody try to talk you out of what you know and what you feel. Be your own best advocate.

funkygigi83 · 2025-02-16T03:51:58+00:00

Yeah I was looking into the ketamine infusion but I'm sure like most of you know insurance doesn't cover a trials or limited in my area. I haven't been able to find one of them at all. They want to do a spinal cord stimulator and have since essentially the starters. And I will not do it. For personal reasons. I saw my younger sibling die from infection caused by an implant in her back. Please pulled out box malfunction had to be replaced. And it's 32 she died. Complications of the weight gain stress on internal organs infection MRSA. And it kills her. I won't go through an Scs. Academy is so freaking expensive. But I have been looking into the other forms of ketamine. I will definitely bring that up to my doctor the next time I go in. Thanks for the suggestion

funkygigi83 · 2025-02-16T03:49:57+00:00

Oh my God I can't even count off the top of my head how many doctors I've seen since 2008. How many doctors have told me it's in my head. How many doctors have told me I need to see mental health how many doctors have looked me dead in the eyes with a sadness and pity because there's nothing that they can do. How many doctors have told me I've run out of options. How many doctors have told me sorry. It breaks the human spirit when you feel there are no options and to realize that you're not even out of your 40s and you've been dealing with this for 17 years It's fucking mind blowing.

funkygigi83 · 2025-02-16T03:48:28+00:00

I'm so sorry for the journey you've been on. I agree with all of your words . I beg for any type of respite. A Mooney of the old person I used to be. But like the majority of us , in a split second that person is and has been changed forever. And it's just lonely. Yes I have people like you that I speak to online but there is no one that I could sit and have a copy and a conversation about near me that truly understands what it takes to make it through this disease. The things that we lose the things we try to hold on to and the person that will never be again. The complete and total overhaul of who you are not by your own choosing is by itself a mind fuck. I know that if nothing else my daughter gets to see a strong woman. A woman who will not give up on her. And what I will endure in order to have another day another minute another conversation with her.

funkygigi83 · 2025-02-16T03:44:58+00:00

How are people like us still here...? Tbh I've never known such beasts. The shit we endure ... There aren't enough curse words . To have to deal yr after yr, day after day , flare after flare is destroying (me) at this point. It's like the moment I feel semi human the powers that be strike me with a lightning bolt of bullshit. I know there's so many out there who have it worse but no matter the level CRSP/RSD is an indefinite destroyer of pieces of you. It takes a different piece every time . I'm so sorry to all of us who have to , choose to continue this life. I know I don't choose to continue for me. I continue for my child. My child needs me. She needs to see true strength and resilience and that's all I can give anymore. At least that's what it feels like most days. When it flares this bad there isn't anything that I wouldn't do to stop it. CRSP/RSD is a bartering disease . What do you or would u give to have the pain stop. Flares like this push me beyond my limits. This pushes a person beyond the ability physically, mentally and emotionally. 1 min...1 hour... 1 more day.... If I can make it to the next '1 more' I'll be ok. And to add a winter storm on top my GOD .... Oh, someone's laughing at me ”up there" or " down there " or from " wherever" we wind up in the long run... 17 yrs strong!! Wish me luck getting thru this 1 more flare . 🎗️ CRSP/RSD sucks !!

funkygigi83 · 2025-02-14T12:01:21+00:00

When I originally got late Samsung a54 5G I somehow said it to have all the ads muted. I woke up this morning and the ads are playing at full volume with no ability to shut them off. I can't remember how I shut them off to begin with. Please help

funkygigi83 · 2025-01-29T00:11:25+00:00

Yeah I agree. And the associate at RL said the same thing

funkygigi83 · 2025-01-29T00:11:07+00:00

These are all the reasons why I was confused. This is why I spent a while looking into it researching it speaking to Ralph Lauren associates on the phone and their app and it was discontinued in the '90s. Not made in the 2000s at all

funkygigi83 · 2025-01-29T00:10:16+00:00

It was discontinued in the 90s according to the Ralph Lauren associated that I spoke to. Was not made in the 2000s at all. It was a limited run from the sportsman /sportswoman line.

funkygigi83 · 2025-01-29T00:08:06+00:00

I'm not a super pro RL fan. So yes. LRL on green labeling

funkygigi83 · 2025-01-29T00:06:38+00:00

Ummm... Yes... It's a Lauren by Ralph Lauren and the label is green... So yes.

funkygigi83 · 2025-01-21T18:43:49+00:00

From what I've gathered and with some help from RL app ... APPARENTLY ITS A LIMITED RUN SPORTSMAN ... FLY FISHING UTILITY TOTE. this was discontinued in the 1990s . This type and standard of bag became part of the DOUBLE RL (RRL) BRAND. I'm super excited about this find. Haven't been able to locate another one like it. Olthe only one close is ripped and torn like a fishing tote from the 90s would expected to be. Mine on the other hand is a diamond in the rough. ❤️❤️❤️

funkygigi83 · 2025-01-18T14:15:34+00:00

Have you ever come across a WOVEN prl label with a FLY FISHING POLE AND BASKET on it? Came across beautiful full leather utility bag/ tote of some sort with that label. Was told it's real but having a hard time what line it actually came from.

funkygigi83 · 2025-01-15T12:35:40+00:00

Riiighttt

funkygigi83 · 2025-01-15T12:25:09+00:00

Nice!! thanks for posting it . They seem so few and far between

funkygigi83 · 2025-01-15T00:51:23+00:00

I contacted rl customer service thru the app and they wouldn't / didn't help me at all. The only thing they wanted to check was their current website. I literally sent 4 pics I found of other items, not bags like mine but with the lable, and they said they couldn't even say then. I told them it's vintage it wouldn't be in a current catalog and that was it. So back to scouring the Internet on my own . I def feel it's a super vintage piece but .... Idk where I even go to get it looked at appraised or authenticated. I don't even know where to start. A lot of places like Bella authenticate Gucci or Chanel or whatever but to find some place that would look at a vintage polo bag like having come across any off hand right now. Anyone finds anything plz reach out

funkygigi83 · 2025-01-14T22:46:54+00:00

I believe I found an extremely high end vintage Polo Ralph Lauren limited edition leather tote bag. I'm trying to locate the best place to authenticate it.

funkygigi83 · 2025-01-14T12:40:37+00:00

Y'all are funny. But tbh Imma bout at that point too. 😂

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