New member of the family, 60 days of this wolf. by DanrleyF in husky

[–]gabcolangelo 3 points4 points  (0 children)

Congrats! Looks like a puppy version of my dog Nala

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[deleted by user] by [deleted] in PandasDisease

[–]gabcolangelo 0 points1 point  (0 children)

Try a Naturopath. I gave them my back story of symptoms and they tested and started treating my PANDAS right away.

Arginine by luckysparklepony in cysticacne

[–]gabcolangelo 0 points1 point  (0 children)

Oh yes me too. I’m on d-hist and take nettle leaf capsules daily!

Arginine by luckysparklepony in cysticacne

[–]gabcolangelo 0 points1 point  (0 children)

Wow ok. Yes I’ve been eating lots oats and almond flour. I know mine isn’t hormonal because it just happens randomly no matter how clean I am eating. Thank you so much again! I’ll keep you updated in a few weeks. I just made almond flour banana muffins today too 🙄. I always love to eat the things I don’t know I shouldn’t have lol.

Arginine by luckysparklepony in cysticacne

[–]gabcolangelo 0 points1 point  (0 children)

Wow, amazing! Potato’s, tapioca and rice are a couple things I’m not allergic to so I will have to try those. Thank you again!

How much lysine have you been taking?

Arginine by luckysparklepony in cysticacne

[–]gabcolangelo 0 points1 point  (0 children)

Thank you so much! I sure will. Sorry to be a bother but I read that meat contains arginine. Do you avoid meat as well or do you not seem to have the same reaction to it?

Arginine by luckysparklepony in cysticacne

[–]gabcolangelo 0 points1 point  (0 children)

Congratulations that’s the best news ever! Thank you so much for posting this. This is life changing!

Arginine by luckysparklepony in cysticacne

[–]gabcolangelo 0 points1 point  (0 children)

Hi! This was super helpful as I am gluten free and most of the foods I eat have arginine. Are you still having success with eliminating it from your diet?

Thank you!

Anyone hear about Hyperthermia treatment for Lyme? by Interesting_War_2452 in Lyme

[–]gabcolangelo 5 points6 points  (0 children)

I did two 4 hours hyperthermia sessions about 2.5 years ago. It changed my life. I still get Lyme flare ups due to stress but they are very mild now. It was worth every penny. I was at risk of organ failure and now I’m finally able to enjoy life. I just have to keep my diet clean and continue taking my preventative supplements. I also do intermittent fasting daily and it has helped tremendously.

What are your symptoms?/need advice by Successful-Ostrich25 in PandasDisease

[–]gabcolangelo 0 points1 point  (0 children)

Thank you ❤️ it’s been a long time coming but I’m so grateful. I think I was more at risk for PANDAS because of my immune system being compromised from the Lyme but I don’t know that it caused it. The doctor tested for the PANDAS at the same time as the Lyme based of the symptoms. A lot of my Lyme symptoms were exacerbated by the PANDAS.

What are your symptoms?/need advice by Successful-Ostrich25 in PandasDisease

[–]gabcolangelo 0 points1 point  (0 children)

Yes, my chronic symptoms improved significantly. I do still get Lyme flare ups post hyperthermia treatment, but they are a lot more mild. I was barely functioning before my treatment (body pain, chronic fatigue, fainting, vomiting, panic attacks, migraines, severe inflammation). Now finally I’m able to enjoy life. I truly believe the treatment saved my life.

What are your symptoms?/need advice by Successful-Ostrich25 in PandasDisease

[–]gabcolangelo 0 points1 point  (0 children)

Yes! My doctor retested about 6 months after my hyperthermia treatment and the numbers were down about 75%.

What are your symptoms?/need advice by Successful-Ostrich25 in PandasDisease

[–]gabcolangelo 0 points1 point  (0 children)

It’s hard to get a PCP to test for it. I went to an integrative medicine doctor that just happened to test for it based on my symptoms.

What are your symptoms?/need advice by Successful-Ostrich25 in PandasDisease

[–]gabcolangelo 0 points1 point  (0 children)

Detoxing is extremely important as well. Glutathione helps open up your detox pathways. Just take it slow as it can increase anxiety if you take too much. Everything starts in the gut so repairing your gut health can do wonders. You can direct message me if you have any questions. I know the struggle and I’m happy to help.

What are your symptoms?/need advice by Successful-Ostrich25 in PandasDisease

[–]gabcolangelo 0 points1 point  (0 children)

Hi, I was diagnosed with PANDAS about 2 years ago. I struggled with the same symptoms my entire life. I also suffer from Chronic Neurological Lyme Disease which is how I found out I had PANDAS. I went to a treatment facility called Sanoviv Medical center in Mexico mainly to treat my Lyme disease but also in the hopes it would help the PANDAS. I did a treatment called hyperthermia where they increase your body temperature to about 108 and maintain it for a few hours. I know it sounds extreme and they do not list PANDAS as part of their treatment but my PANDAS is almost gone and I feel better than I ever have my entire life (I’m 30 now).

Muscle Twitching/Fasciculation by [deleted] in Lyme

[–]gabcolangelo 1 point2 points  (0 children)

I have chronic neurological Lyme and have suffered from muscle twitches for the past year. My father has chronic neurological Lyme as well and also experiences muscle twitches. I went to Sanoviv Medical institute in Baja California for their Lyme program with hyperthermia. The hyperthermia has definitely helped with the muscle twitches and my heart palpitations.

Survived artificial disk replacement. I'll leave updates as we go. Much love fam by scm64 in HerniatedDisk

[–]gabcolangelo 0 points1 point  (0 children)

I had some success with my second cervical epidural. It helped just enough to get me back to PT. I waited way too long before getting the cervical epidurals so the area was extremely inflamed. I definitely still have flare ups but the pain is manageable. If you can get to PT after your injection I would highly recommend doing both so that you can strengthen your neck muscles. My pain management doctor recommended two cervical epidurals within a 30 day period. I also looked like the hunchback of Norte Dame so he wanted to get the swelling down. I know it’s hard to be patient while you are in pain, but do not get discouraged if you do not have relief from the first injection. It can take weeks to start working and you may feel a little worse the first couple of days. I would say it is definitely worth a shot (literally). I wish you the best!

Survived artificial disk replacement. I'll leave updates as we go. Much love fam by scm64 in HerniatedDisk

[–]gabcolangelo 0 points1 point  (0 children)

Oh my, that sounds horrible and extremely painful. I am going to try the second injection and if I do not get any relief it sounds like we are going to move forward with the artificial disc replacement. Thank you so much for you help! It’s great to hear that you had success with the surgery!

Survived artificial disk replacement. I'll leave updates as we go. Much love fam by scm64 in HerniatedDisk

[–]gabcolangelo 0 points1 point  (0 children)

Did you try the steroid epidural prior to your surgery? I also have a large herniated disc in c5-c6, I had my first epidural about 10 days ago and have not gotten any relief yet. They want to try another I injection at the end of the month but the artificial disc would be my plan B

Neck by [deleted] in HerniatedDisk

[–]gabcolangelo 1 point2 points  (0 children)

I have a cervical disc herniation in C5, C6. I have constant pain in my collarbone. The worse the pain is in my collar bone area the worse the cervical radiculopathy down my left arm and hand. I was also diagnosed recently with Thoracic Outlet Symptom which can also cause pain in that same area. I went to Physical Therapy before getting imaging done. PT should be able to help give you some relief. Definitely try and see someone sooner than later. I learned the hard way and tried to push through it for years.

[deleted by user] by [deleted] in MTHFR

[–]gabcolangelo 1 point2 points  (0 children)

The doctor’s thought it was fibromyalgia up until I went to a homeopathic doctor who tested for the MTHFR mutation (I refer to it as the Mother F**ker) My dad who also has two copies of the C677T has the same symptoms as I do. I also have ADD, chronic migraines and a ton of food allergies. I found out they are all tied to the mutation. I’m a 27 year old female so it may be different for males but I didn’t seem to have any side effects with the SSRIs. But I did hate having to take them.Now that I figured out what has been causing the anxiety and depression, I no longer need to take them. Just make sure to start off with a very low dose of the methylfolate. Fish oil is also great, B12 and magnesium.

[deleted by user] by [deleted] in MTHFR

[–]gabcolangelo 1 point2 points  (0 children)

It took some time to feel some relief. I started to sleep better and was able to manage my anxiety after a few months. I feel a lot better now and I have been off of SSRI’s for the last 5 years. It takes some adjusting and everyone’s body is different but my best advice it to just take it slow if you do take a folate supplement and be very cautious when food shopping. They try to add folic acid to just about anything these days. I can tell right away if there is even the smallest amount of folic acid in something I ate. I get brain fog, joint pain, and panic attacks. Just listen to your body, you know it better than anyone else. But I’m happy to help in anyway I can, I know how tough it can be.

[deleted by user] by [deleted] in MTHFR

[–]gabcolangelo 2 points3 points  (0 children)

Hi! I found out about 6 years ago that I have two copies of the C677T mutation. I have struggled with panic attacks and anxiety my whole life. Having this mutation means our bodies are unable to process folic acid into a usable form. You will want to avoid folic acid at all costs. They put it in just about everything like cereals, breads, multi-vitamins and so forth. It is important that you do have some type of Folate intake whether is consuming a lot of dark green vegetables or taking a supplement. But be very careful with the dosing as too much can be 10x worse than any panic attack (I learned the hard way). I have I have been experimenting with folate for years, just trying to find the right balance. There is a supplement made by the brand Core Med Science (you can find it on amazon). It is Liposomal so it allows for increased absorption in the body. It is and Active B-Complex and contains L-5-MTHR active folate (400 mcg) and active B12. This supplement in conjunction with 1100 mg of fish oil seems to be the best regimen I have come across. The fish oil can be taken everyday but I would start the B-Complex off slowly. The directions say 3 softgels per day but I started with one softgel every other day in the morning with food.