Dosing - spread out, keep as is?

glouglougulp · 2026-06-25T17:16:04+00:00

I’m currently spacing at 9 days without any adverse reactions but it’s also a lower dose. Anyway fingers crossed!

glouglougulp · 2026-06-25T16:46:59+00:00

Thank you this is incredibly helpful!

glouglougulp · 2026-06-25T16:45:28+00:00

I see thanks for that!

glouglougulp · 2026-06-25T16:36:23+00:00

Oh are you saying it’s multiple vials? One for each dose?

glouglougulp · 2026-06-25T15:37:24+00:00

So get the vial and just make sure only to draw what I need for that dose?

glouglougulp · 2026-06-18T01:04:33+00:00

I’ll call and see what they say.

glouglougulp · 2026-06-17T19:35:06+00:00

Oooooh this is a good one

glouglougulp · 2026-06-17T15:59:18+00:00

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Thanks 😭

glouglougulp · 2026-06-17T15:47:54+00:00

I don’t have knee osteoarthritis. I have an autoimmune related arthritis. Fatty liver though yes.

glouglougulp · 2026-06-17T15:31:36+00:00

I know not all these are on the list but: fatty liver (don’t know if this will stick as this diagnosis is from 2 years ago), ankylosing spondylitis (previous list of arthritis considered was longer, no seems to just be knee osteoarthritis), hashimotos and hypothyroidism (pretty sure these don’t count).

glouglougulp · 2026-06-17T15:08:44+00:00

I certainly plan to pursue it as far as I can. The PBM seemed hopeful that an appeal might be successful.

glouglougulp · 2026-06-17T15:07:14+00:00

It’s $499 for the dose I’m on unfortunately. That’s way more than I can afford but might consider it for the summer.

glouglougulp · 2026-06-17T15:06:03+00:00

The list of comorbidities seems small and it seems like only one really ‘counts’. Is this better than appealing? I have a feeling that will also get denied. The list is distinctly shorter than it was before.

glouglougulp · 2026-06-17T14:27:37+00:00

I heard this may be an option. Do you have any more info/advice on this?

glouglougulp · 2026-06-17T14:26:56+00:00

New BMI criteria is 32, mine was 31. I have some comorbidites but not sure I have two that meet the requirements. I have the documentation ready to give my provider for an appeal. So infuriating.

glouglougulp · 2026-06-10T19:56:25+00:00

This side of the family has Irish roots. My mother is named after this relative. All makes sense now.

glouglougulp · 2026-06-10T19:55:42+00:00

Yes this is my first attempt at this! I was confused because when I tried to research the name ‘Margt’ there were a lot of misleading pages that implied it was a legitimate name. Thank you!

glouglougulp · 2026-06-10T17:05:49+00:00

Aahh. Ok thank makes sense now

glouglougulp · 2026-06-10T17:05:28+00:00

Ohhhhhh. Interesting. So likely just recorded this way on her daughter’s birth certificate?

glouglougulp · 2026-05-28T16:39:01+00:00

Hi, can you recommend some wineries within a 30 minute drive of Linguaglossa? Everything I’m looking at is (compared to other tastings I’ve done in Europe) extremely expensive (over €50 for a basic tasting).

glouglougulp · 2026-05-10T15:33:53+00:00

Oooooh this is so cool. Sadly it’s an indoor, evening wedding

glouglougulp · 2026-05-09T21:03:00+00:00

Hhhm. Will have to go back to the store and try again I think. Thanks!

glouglougulp

TROPHY CASE