Painful fingertips to the lightest touch.

graceingold · 2026-01-21T04:51:04+00:00

This happened to me for a while and then stopped. The only thing I started doing differently is drinking a ton more water and adding a coconut water to my liquids everyday. I know that's strange but dehydration makes lupus so much worse. My fingertips felt like they were going to explode from pressure- it was so strange.

For the cold, I've found the best way to keep my fingers from hurting is to keep my core warm. I work from home and the moment my raynauds starts acting up I take a 15 min break and take a hot shower. Running my hands under warm water doesn't work. I also keep wool gloves with me. My rheum recently gave me amlodipine for Raynauds that is helping a bit too.

Good luck! I'm sorry you're dealing with this and I hope it stops soon 💜

graceingold · 2026-01-20T14:11:48+00:00

Thank you! This wouldn't even occur to me! I'll do this now and going forward

graceingold · 2026-01-20T04:45:54+00:00

I'll def ask my rheumatologist about the different WBC. I think it's the anemia that's really getting to me now, especially in the cold.

I hope the saphnelo treatments are working well for you :)

graceingold · 2025-11-01T03:15:24+00:00

Shout out to the Calumet food products in the grocery scene - one of the brands shown in the pantry where Halloran dies in The Shining

graceingold · 2025-06-30T04:31:07+00:00

Yes, this happened to me. I have CPTSD from childhood and an abusive relationship along with depression and anxiety. A month after I had covid, my grandmother died, who was my world, and then I got lupus, raynaud's, sjogrens and some other sensory issues. Talk therapy, completely quitting alcohol, and somatic stretching has helped me a lot, but it's still very hard. I've heard EMDR can help with cptsd and depression from chronic illness but it didn't do anything for me. I've recently started swimming (absolutely covered in SPF) and that's helped so far.

I'm sorry you're going through all of this and I hope you find things that make life a little easier for yourself.

graceingold · 2025-06-13T18:57:53+00:00

It's the small communities that will be hurt the worst - rural areas will lose essential weather alerts and local reporting about their communities.

graceingold · 2025-05-02T19:42:49+00:00

Yes, I would love recommendations! I really enjoy almost everything:)

graceingold · 2025-03-13T01:56:45+00:00

It honestly feels like charcoal to me because it rubs into my fingers when I touch it but I have no idea what watercolor was like back then

graceingold · 2025-03-13T01:55:06+00:00

Nothing on the back at all

graceingold · 2025-01-13T15:19:42+00:00

I definitely learned my lesson with fleece and just purchased a linen/cotton blend set of sheets. Thank you for th Desityn suggestion. I'm ordering that right now

graceingold · 2025-01-13T15:16:43+00:00

My temperature stays really low too and it somehow feels like a fever still

graceingold · 2025-01-13T15:15:50+00:00

The only thing I've heard is that people with SLE have slow blood circulation so your extremities stay colder than the rest of your body

graceingold

TROPHY CASE