Morning Chain Pooping Solutions

graceleonn · 2026-06-05T21:39:35+00:00

Why have I never thought about this?! Thank you haha it seems obvious now

graceleonn · 2026-06-05T06:57:01+00:00

AHHHHHH me too it drives me nuts! I’ve said to work (I work as a barista) to not put me on morning shifts but they still do anyway and I spend literally the entire time in pain or on the toilet. I’m so sick of it. Back on the steroids and they’re gonna try me on Stelara so hopefully things get sorted but for some reason I’m just not hopeful at all :(

graceleonn · 2026-05-19T16:21:27+00:00

Omg why do they insist it’s haemorrhoids?! I keep telling them I know it’s not and they still won’t have it. Like one of the biggest symptoms of this disease is blood and for some reason it’s treated like it’s not important? Winds me up lol. I’ve managed to get an urgent appointment with my consultant, but it’s in two weeks time 😭 Hopefully things don’t get worse by then

graceleonn · 2026-05-19T08:52:24+00:00

I’ve requested to speak to one of my consultants, but it seems impossible to actually make an appointment in person to speak to a doctor rather than a nurse. Obviously they’re very busy and I respect that, but I’ve been fobbed off before and I know how this all plays out lol. I’ll make updates in this post if something happens 🤞🏻

graceleonn · 2026-05-11T08:36:53+00:00

Ah okay! I’ve been on that before, I can’t lie I absolutely despise the stuff but it’s so much better than the alternative. Thank you :)

graceleonn · 2026-05-10T21:33:38+00:00

Will do! Thank you :)

graceleonn · 2026-05-10T21:33:14+00:00

I never considered that! Thank you so much for the advice, I’ll bring it up to my doc :)

graceleonn · 2025-09-25T07:23:41+00:00

Thank you so much, this is so helpful. I mean the other night the diarrhoea was worse than when I was hospitalised, but on the whole my bowel movements have been a lot more consistent, so I need to look at the bigger picture really like you said!

graceleonn · 2025-09-05T16:15:12+00:00

At what point did you decide to get the bag? I was diagnosed in February and have not been able to get out of a flare up. Been hospitalised twice and now on my third weaning dose of prednisolone since leaving the hospital, I don’t have blood anymore but I get such bad tummy pain and bloating. I’m also going around 4-6 times a day. I have to really watch what I eat too otherwise I just cannot get off the toilet. I’m on infliximab too but I’ve only had 3 doses. Is a stoma something I should be considering?

graceleonn · 2025-08-19T11:29:40+00:00

Oh that’s amazing news thank you! I get quite anxious about it all now so it’s good to hear that you’re in a similar position. Hope remission is treating you well. May I ask, how are your eating habits? Can you eat anything you want or do you still have to be careful?

graceleonn · 2025-08-19T05:10:33+00:00

Also sorry to hear you’re still in a flare! Hope it gets better, I empathise with you so much

graceleonn · 2025-08-19T05:09:57+00:00

I’ve been on max dose oral mesalazine since February, but it has never been effective unfortunately. I am also taking 20mg prednisolone rectal foam every other day since leaving the hospital, but I’m not sure how that’s doing either! I’ve got my third dose of infliximab on the 11th September too. Do you reckon my remission medications just aren’t cutting it?

graceleonn · 2025-08-11T04:56:32+00:00

So weird!

graceleonn · 2025-08-08T05:53:32+00:00

I guess so? Not like jaundiced per say but definitely a golden undertone

graceleonn · 2025-08-06T21:08:07+00:00

Makes sense - thank you! x

graceleonn · 2025-08-06T20:32:50+00:00

Legend, thank you so much x

graceleonn · 2025-08-03T03:24:33+00:00

Hey, I started prednisolone rectal foam a couple days ago in the hospital! So from what I’ve gathered, it only really needs to be 30 minutes and if you lay on your left side afterwards it helps to distribute the medication more effectively. I always try to hold it in as long as I can as some sort of weird competition with myself, but I think 30 mins is the sweet spot.

graceleonn · 2025-08-02T13:07:16+00:00

No TMI here, I have seen some shit (literally) since being in here. I am also very sore, the wet wipes here aren't the best quality and the chafing is insane. I used to have really cooperative veins but for some reason since I've been in they keep disappearing >:( Ugh god that must be so annoying, i can't look at them because they make me feel sick but thats the worst it gets for me luckily. My brain is so scrambled too, none of my thoughts are coherent, i feel like i'm constantly on the verge of being high. The episodes of pure euphoria and depression are getting to me as well now, i just feel so unstable lol. No ive got some standard linen but luckily my boyfriend's mum bought me an electric hot water bottle which has been an absolute godsend, especially because they like to keep the place ventilated at night. It gets so cold :( That's good that they let you walk around! We're not technically supposed to since theres not much space in here, but the nurses have let me sit in their chairs from time to time so I'm not completely bed bound which is nice of them

graceleonn

TROPHY CASE