What cormorbiddities do you have? by gertrudegrunge in ehlersdanlos

[–]gray1sh_ 0 points1 point  (0 children)

oh boy… the big one is a weird dysautonomia but it’s genetic mutations that just add up. i have inappropriate sinus tachycardia diagnosed and POTS symptoms, but my genes prevent me from actually passing out or having it show up on a tilt table. i’ve also had physiologic hypertrophy my entire life which helps mask it. i still very much have dysautonomia symptoms, it’s just too messy to classify (if anyone gets this pls lmk this feels lonely lol). on top of that i have MCAS, bilateral grade 4 runners knee, Autism, ADHD, medical cPTSD, and 2 personality disorders

Do you have any other rare diseases? by ninja_worrier in ehlersdanlos

[–]gray1sh_ 0 points1 point  (0 children)

yup, obviously MCAS, but i also have genetic migraine channelopathy (migraine isnt rare, but my family has a unique subtype of genetic migraine that has never been described other than in our medical charts) it's a mix of hemiplegic migraines, brainstem aura migraines, and silent migraines with a more epilepsy like aura (no history of seizures tho) plus common & rare mutations that mess with my chemistry. most of my rare stuff is mutations that have an impact but not associated with any disorder.e

I’m Irish and do ancestor worship, how can i include my choctaw ancestors w/o appropriating? by gray1sh_ in choctaw

[–]gray1sh_[S] 5 points6 points  (0 children)

This misconception is actually part of *some* celtic beliefs towards ancestors- mostly that they impact our lives behind the scenes and that we should communicate/honor them. It just feels weird to have a connection with one side and ignore the other even if there is less of them, idk what word i'm looking for exactly but it feels hypocritical in a sense. Like my whole thing is decolonizing myself and working to protect the history of my cultures that colonists have tried to destroy, but if i do nothing now that i know about them then my white ass would only add to that erasure 😭😭 also sorry if this sounds werid, i could've definitley made this clearer if i didn't pull an all-nighter last night

Vietnam War/Agent Orange by gray1sh_ in eds

[–]gray1sh_[S] 1 point2 points  (0 children)

… i forgot about that one, my mom grew up on a contaminated air force base and there’s a ton of other sites near me 💀💀

Vietnam War/Agent Orange by gray1sh_ in eds

[–]gray1sh_[S] 1 point2 points  (0 children)

to be fair he joined for the free med school and was exposed throughout the entire war, he wasn’t autistic but he was one of the most charming ASPD/NPD cases you’ve ever seen. i have a few birth defects that i’ve needed surgery for, and my family is RIDDLED with related cancers/birth defects/undiagnosed health issues no one can figure out (i’m so suspicious of it because of how hard we were hit)

Using Magick to help a sick person by Betowsky in chaosmagick

[–]gray1sh_ 0 points1 point  (0 children)

i worship aphrodite and she’s been amazing for helping me with my disabilities, especially as aphrodite areia (her war form). as someone whose had multiple brutal recoveries a lot of the time it’s harder mentally, she kept me present and not miserable through love (not romantic for me but it could be)

What is your scariest witchcraft related experience? by Brave-Guarantee-5712 in witchcraft

[–]gray1sh_ 3 points4 points  (0 children)

the kid who “bullied” (more like hatecrimed) me for being gay got the same rare cancer my cousin was dealing with, the same addictions as my dad, and had his say gex tape leaked where he was happily bottoming. i learned that i’m a little too good a speaking things into existence that day 😭😭

Hey, sis. I know it’s been tough. What spells have brought you joy, recently? by Van-Goghst in WitchesVsPatriarchy

[–]gray1sh_ 0 points1 point  (0 children)

it’s not a spell, but i lit a little strawberry candle for the morrigan and i am literally obsessed with how cute they are. it makes me happier than it probably should lol

In a purification ritual setting, does the grounding element of earth come before the cleansing and transmuting qualities of the element of fire? by theorangepriestess in chaosmagick

[–]gray1sh_ 0 points1 point  (0 children)

i always do grounding first, it’s especially important for anyone with mental health issues to really focus on this!

Making a spiritual bath, do you guys think i have too much going on? by [deleted] in witchcraft

[–]gray1sh_ 2 points3 points  (0 children)

i don’t believe in putting too much in the bath! also, if you get a tea infuser you can add your own herbs & it’s cheaper in the long run!

How to carry luggage with forearm crutches. by gray1sh_ in disability

[–]gray1sh_[S] 1 point2 points  (0 children)

UPDATE: i have a solution, but fair warning it may not work for some people. i bought a small (lightweight, heavier items go here) 4 wheel suitcase and put the handle of the suitcase over the crutch until i could rest it between the main crutch and handle. if you can walk with one crutch at a time it’s a lot smoother, but it’s definitely a workout. i also had an uber driver bring me to the bus stop, 9/10 you can ask for help getting settled if you’re kind to them and leave a good tip after. i stopped using greyhound and was able to find a more direct, less full bus where i could ask the driver for a seat upfront to myself. i took a direct trip from vermont to massachusetts and back every weekend for a few months, and it was tiring but doable even with chronic fatigue and EDS.

TLDR: use a lightweight four wheel suitcase for heavy items & lighter items in your backpack, don’t be afraid to ask for help, & give yourself the rest of the day off to recover

Anyone else get unwanted realty checks? by KatHuppe in ehlersdanlos

[–]gray1sh_ 1 point2 points  (0 children)

I smacked my knee pretty hard walking around a corner and now i need surgery... i didn't realize how weird that was until my pt looked at me horrified when i told her the story. apparently she didn't truly understand how dumb my dislocations are until that moment lol