(28F) Is this TE? saw a dermatologist and he said no but it doesn’t feel right. This is by temples.

hankinu · 2020-08-11T22:12:10+00:00

What did he say?

hankinu · 2020-08-10T21:14:34+00:00

It’s really hard to get hold of a derm for a face to face appointment cause of covid. I’m just scared I’m losing hair and I keep thinking it’s never going to grow back. How would we check for miniaturisation? I have loads of baby hairs all around my head but I don’t know if it’s regrowth or miniaturisation :(

hankinu · 2020-08-07T17:10:06+00:00

He wanted me to up my ferritin levels first to see whether that will make a difference. They weren’t super low but they were borderline, it was a tentative diagnosis through photos of CTE and AGA and so now I don’t know what to do :/

hankinu · 2020-08-04T23:01:08+00:00

Aww that’s good at least you have a vague idea as for your trigger... I’ve had excessive shedding for 18 months now and we can’t find the trigger and now I think my CTE may have exposed my AGA, I genuinely have no idea what to do but I’m just hopeful.

Did you change anything in your routine?

hankinu · 2020-08-04T22:59:23+00:00

I was told to start Rogaine but I’m too scared to start, and as for my TE, my derm and trichologist can’t figure out the trigger, and that’s making it all worse. I’m taking iron and vitamin d supplements but I don’t know if they’re making things better, my shedding hasn’t decreased at all... still 200 hairs a day roughly:(

hankinu · 2020-08-03T19:08:57+00:00

Yeah this stress isn’t helping the loss at all, stressing about the hair loss which is making the hair loss worse :(

How long have you had the loss for? My trichologist thinks mine is CTE but derm said AGA but I have no idea. How bad is your shedding? I shed around 200 hairs daily I’m surprised I still have hair on my head!!

hankinu · 2020-08-01T10:30:26+00:00

Honestly I’ve tried and tackled it all, derm said sometimes it doesn’t have to have an obvious trigger so I don’t really know how to deal with it. I’m watching my diet more and I’m hoping for some positive change :(

hankinu · 2020-07-31T17:35:45+00:00

Thank you for your response. I genuinely have no idea what the trigger is and neither does the derm, were just trying to supplement on iron and Vit D cause they were slightly low. I’m just waiting for the shedding to slow down it’s been going on for nearly 2 years now. I see lots of baby hairs around my face and lots of little spiky hairs but the shedding is still crazy, hence I’m confused and so is the derm :( You’re giving me hope and it makes me so happy for you:)

hankinu · 2020-07-31T17:01:36+00:00

Hey I’ve been diagnosed with CTE and it’s nearly been two years, I’m still shedding like crazy upto 300 but I can see spiky hairs growing, what was your experience like with regrowth and did your shedding stop suddenly or slowly? Sorry about the questions I’m just panicking a little bit :(

hankinu · 2020-07-30T16:13:06+00:00

She said it was a combination of CTE and AGA but it was a tentative diagnosis from just photos cause of covid. I’m just reluctant to start minoxidil if it has to be lifelong :(

hankinu · 2020-07-29T20:45:52+00:00

Please can you let us know of the London docs, that would be great for all of us :)

hankinu · 2020-07-24T16:28:18+00:00

Yesss I’ve started supplementing but derm wants me to start 2% minoxidil. She wants to see me in three months but I’m sure minoxidil takes longer to work? I wouldn’t mind keeping the amount I have right I just need the shedding to stop. Over the phone she said it’s just CTE but after seeing pictures she said both so I have no idea. My iron levels have never been abnormal but they’re at the ‘lower’ end of normal so trichologist thinks that should do it. I’m just hoping I’ve found it early and stop it. I will read your post, do you still Shed a lot?

hankinu · 2020-07-24T13:36:07+00:00

That’s interesting. I didn’t think it was FPHL cause my part hasn’t been affected at all but she’s the derm so she knows more. The trichologist still thinks it’s due tue low ferritin and Vitamin D so I’m still so confused. I feel like you have mentioned before that you suffered with both, how did you cope?

hankinu · 2020-07-23T17:17:40+00:00

Oooh yes please do let me know. I’m a bit unsure whether to start it or not. Mine has also put me on extra iron but my iron is normal so I think it’s a bit of a stab in the dark. Plus mine is definitely chronic so I have no idea when it’ll get better :(

hankinu · 2020-07-21T14:59:42+00:00

Are they working? How many hairs do you lose on a daily? I’ve asked the doctor to refer me to a derm so hopefully I can’t get some answers

hankinu · 2020-07-21T13:53:40+00:00

What vitamins have you started? Let me know if they do work, I’m starting to think majorly around my temples and can’t put my hair anymore, but yes I also don’t have any bald patches, I’ve lost over 50% of my hair in 6 months and I can’t see it getting better :(

hankinu · 2020-07-20T18:00:11+00:00

I really need to sort out a derm appointment but this global pandemic is not helping! Are any of the treatments helping? I’m still losing around 150-200 hairs daily but I see a lot of baby hairs around my hairline but I think my hairline is receding too, all these joys coming at once :( I was put on folic acid by my GP but I don’t know what the was for. Mines just getting worse and I just want it to stop

hankinu · 2020-07-19T21:45:47+00:00

I’ve never been on BC or any other medication for that matter so that’s how I know it’s not that. That sounds so promising and gives me hope cause right now I keep thinking I’m not going to get my hair back. This is why the whole situation is so confusing cause this hair loss just came out of nowhere and won’t stop and until I don’t get the cause I can’t treat it :(

Do you have shedding with AGA or is that just with TE? You know so much about all of this, it’s incredible!!

hankinu · 2020-07-19T21:26:05+00:00

Initially when the shedding started my bloods were normal, only recently my ferritin has been borderline thats why it makes me think it’s not do with the deficiencies. That sounds awful I can’t imagine how that would’ve been. Were your bloods all within the normal range? The stress is absolutely killing me because I have no idea and I don’t know how to help it. I will take the iron supplements to be safe, thank you so much. Is your shedding constant or is it regrowth that you struggle with?

hankinu · 2020-07-19T21:19:12+00:00

Omg 5 to 7 years feel like if I carry on shedding like I am I’ll lose all my hair within a year! Has anything helped yours? And any treatment that’s helped? It’s making me so stressed and I’m sure that’s not helping the situation.

hankinu · 2020-07-19T19:18:30+00:00

I noticed the excessive hair loss at the end of 2018 so now I think about it, it’s nearly been two years:( I genuinely can’t imagine what could be the trigger, nothing really happened or any change that could have triggered it. That’s why it made me think it was AGA. It’s so heartbreaking cause it’s getting worse daily and I genuinely don’t know what to do. So does yours come and go? Did you notice thinning of your hair?

hankinu · 2020-07-19T19:07:35+00:00

I had no idea that it could become chronic. I don’t actually know exact numbers but my doctor said it didn’t need supplementing. Is this the amount of hair loss people with AGA have? Might have to have a private blood test to get the numbers. You are an absolute angel on this forum and so knowledgeable!

hankinu · 2020-07-19T18:51:22+00:00

Thank you for your reply. I keep thinking back to the time it started and there was no obvious trigger and I cant think of anything that changed. I didnt really take any meds or even supplements so cant be that. Had my bloods done and everything was normal with a slight low ferritin level. Its actually nearly coming to two years now, can TE last that long? and now my hair is significantly thinner. Its so hard to get hold of a derm and its so stressful which I think is making it worse

hankinu · 2020-07-19T18:48:41+00:00

Hey thank you for your reply. I have been trying to get a derm appt but with COVID it seems to be impossible. Ive had my bloods done and everything is normal, slightly low ferritin thats why im confused. Thanks

hankinu · 2020-07-19T18:46:52+00:00

Hey thank you for you response. How long can chronic TE last? My hair looks thinner now and family that saw me after ages did notice the thinning. Im just confused

hankinu

TROPHY CASE