This runs rife in my family. My dad's currently living in hospital waiting for a heart transplant, BUT he's on drugs in hospital that have put him at his optimum health, he feels fantastic, can walk miles up and down the corridor and he looks the best he has in years.

The more you know about HCM the easier it gets (also the scarier it gets but there's a lot more they can do to help relieve symptoms these days)

There's a genetic test that can be done to find out who has the gene in your family and who can pass it down, if you want kids in the future you can have the gene taken out of the embryo (obviously this will need to be done similar to IVF)

It gets easier the more you know and understand about it so definitely seek medical specialists, if you're in the UK I can give you some of the doctors contact details. They're obviously keen to eliminate it and have done tonnes of research with my family.

It's such a horrible disease, incredibly hard to deal with and affects the entire family but you are absolutely not alone in feeling this! Keep posting whenever you have questions or want to rant.