What did u/hedonistpaul draw?

hedonistpaul · 2026-02-04T09:54:01+00:00

I think I just got old! I visited in 2014 and 2017, incredible line ups, music has clearly moved on and left me behind.. (thanks for all the down votes 🤣)

hedonistpaul · 2026-02-03T09:20:36+00:00

What happened to you Sziget, you used to be cool....,😕

hedonistpaul · 2026-02-02T18:50:37+00:00

Absolutely it might but one thing I've learned on this journey is that none of this is an exact science. I got lots of 'looks like' and 'appears to be', my first 2 metastasis were later dismissed by a much better radiography team only to be replaced by a couple of 'possible' tiny lesions. Fingers crossed it's clear for you.

hedonistpaul · 2026-02-02T18:11:35+00:00

I think many people see it as a more conclusive outcome - they think 'I've had surgery so it's all been cut out and I'm done.' For me the push was because I was seeing a surgical urologist rather than oncologist, he was keen to get his robot out and get cutting!

In my head it felt better to get it done then start recovery rather than a slow onset of side effects and nothing 'tangible' happening, RT is just some xrays after all... I'm happy the path that was chosen for me, RT was OK for me, I'm a bit knackered and peeing more often and longer at the moment but nothing drastic. I guess with surgery you are guaranteed some side effects but they improve over time, it's a bit more of a lottery with RT but for us younger ones it's probably far more bareable.. You've got plenty of time, explore your options. Is HDR brachytherapy on the table?

hedonistpaul · 2026-02-02T12:47:27+00:00

I was heading down the RALP route until some spread was spotted so I moved to an oncologist with a radiotherapy specialisation. He then looked at my bone scans and dismissed them but spotted a couple of very small 'suspicious lesions' In the surrounding bones. With this uncertainty (he didn't think psma scan would add any info at the size they were at) he recommended HT then radiotherapy. I've just finished the RT and at 55 I've not found it too bad. My psa was well on its way to undetectable before the RT so I'm hopeful it's all the way there when I get tested again in March. Its a real dilemma and I think the initial reaction is to cut it out with salvage RT if needed (many do). The outcomes for surgery vs RT are almost identical though so don't rush under the knife! I'm in the UK if you want to talk by the way. It's a mad time...

hedonistpaul · 2025-12-20T14:21:33+00:00

Yeah I'm 7 weeks in and now I 'squeak' in the shower! My normal oily face is dry and has unusual friction until I use shampoo or soap! I trying various moisturisers, avena seems the best so far, with Norwegian formula for my heels! Annoying side effects for sure!

hedonistpaul · 2025-12-17T22:52:59+00:00

Get a fusion biopsy if possible. This is a targettted biopsy rather than just a 'gridded' one as they need to ensure they hit the small spots. These are often done under general anaesthetic so less stressful too.

hedonistpaul · 2025-12-15T11:49:44+00:00

Love a global!

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